Port - Post Surgery Pain

Got mine yesterday as well.  Yes, there is some pain, but is manageable with ibuprofen.  Doctor told me if the pain was so severe that it couldn't be controlled with ibuprofen to call them.  I took ibuprofen primarily to sleep.  It does feel like someone is trying to pull an arrow out of my chest, but I am able to use my hand and arm.  Being careful about using those chest muscles, though.

Sorry you are having such extensive pain, Cindi.  Have you ttried ibuprofen?

I've had my port in for 9 weeks and still have port pain.  It makes using my right arm almost impossible.  When the chemo is done, the port is coming out.

Abbycat2 said:

My port surgery was painful

I had my port surgery the day before Thanksgiving almost 2 years ago and did that hurt! It felt as though someone had his fist inside the wound and was trying to yank my muscles out of my chest. Fortunately, it went away after a few days. I hate having a port but don't dare think about having it removed any time soon. My cancer is likely to recur- so I don't see the point of having it removed and then later replaced. Chris and Cindi, my first chemo infusion was memorable in that I didn't anticipate the effect of all that fluid going into my body. I barely made it to the bathroom!! Otherwise, it was not a bad experience. I developed symptoms of nausea and fatigue about 3 days after chemo. This was true throughout the 6 chemo treatments. I was fortunate in that I had minimal fatigue and nausea. The worse side effect was severe hip/back pain that forced me to have 2 epidural shots. Others here have talked about chemo-induced joint pain. I am hoping this does not happen to you two!

Wishing you both the very best!

Cathy

 

I have read several posts that mention the joint pain.  I have also read that Claritin helps with that.  I also found an old thread from RoseyR detailing the supplements she took to minimize some of the side effects from chemo.  It seems like she was one of the lucky ones that sailed through with very few effects so I've been very interested in the info she posted.

It never occured to me that I would be making bathroom runs (literally.)  Guess I need to be prepared for that.  Thanks for the heads up, Cathy.

TeddyandBears_Mom said:

rjchirp and Anne

Thanks for the feedback.

Anne, chemo on Thursday for me. That will be 3 days post the port implant. Do they put pressure on the port to administer the chemo? I'm trying to decide if I can do this or if I should delay. I know my doctor wants me to start asap so I don't want to chicken out.  I feel like I'm being a big baby here.  If it is a matter of sticking the needle in without pushing on the port, I think I can hang in there and do it. But right now, the slightest pressure hurts like crazy. 

I am thinking if your doctor wants you to go that quickly it is probably worth it.  I remember just a little pain when they put the Iv in place; the nurses sprayed mine with a numbing agent (still do), have you take a deep breath then exhale.  I don't remember that the pain lasted more than a minute.  Trust the nurses; they are so good at this stuff.  

That first chemo is stressful.  I was trying to contain my emotions that day walking in the door.  The nurses and other patients gave me strength.  Everything feels wierd, just keep talking to the nurses.  My experience is they are the best guides during the treatments, the doctors don't see what happens as much as they do.  i ended up sleeping through much of my treatment thanks to the anti nausea / allergy meds - usually benedryl.  I still sleep even in this new regime I am going through. 

you can do this!  Stay hydrated And like Cathy said - plan on many bathroom trips as they will load you up with liquids via the infusion!  Hugs!  

My port went in about a week before I began chemo. I had very little pain or discomfort after the port went in. I was afraid the chemo would make the port area hurt but, aside from the normal discomfort when accessing the port, there was no pain. I do thank God that I did get the port though. Chemo and all those blood tests would have been really difficult without it. 

Cindi, maybe you are getting some gas pains in your shoulder? I wouldn't worry too much about pain from your port during chemo. I remember being surprised at how well I felt after my first treatment! ( that changed 2-3 days later!). I do have restless leg syndrome (one of those conditions that sound like something that's all in your head until you get it!) and the Benedryl they gave me at my first treatment caused it to act up for about the first 1/2 hour of treatment but it eased off after that and they did not give it to me in subsequent sessions. I often dozed through much of the session. I too remember having to make several quick trips to the bathroom! 

Be sure to prepare for side effects that usually start a couple of days after treatment. It is VERY easy to get dehydrated! Drink plenty of water and don't be afraid to take frequent naps, you will probably feel a lot of fatigue as the chemo causes your blood count to drop. I thought I was drinking enuf liquids but I ended up in the emergency room twice after fainting due to dehydration. So take care of yourself and be sure to let your Dr know any side effects you are experiencing. I began experiencing peripheral neuropathy after my first treatment and it just kept getting worse after each treatment. My dr had to change one of the meds, Taxol, after my third treatment.

So, drink plenty of liquids, try to eat and get a little exercise every day. Just remember that your body has been through a lot and you do need time, and rest, to recover.  Sandy

TeddyandBears_Mom said:

Thanks All!

Really appreciate all of the feedback and tips on the chemo day. I'm looking forward to getting through that first one. Feeling a bit overwhelmed this morning and I know it is part of the process.  Tomorrow post chemo can't come soon enough.  Thanks again. Cindi

As you have read, it truly isn't bad.  You will probably feel good afterwards because of the steroids.  I ended up going to the furniture store afterwards so my daughter could help me choose upholstry fabric and order a new couch.  We actually did some more stuff after that.  a couple days later it was a different story but never was as bad as I expected.  It's interesting how different our experiences with the port were.  I was lucky.  The only time it really hurt was when I awoke in rr and morphine took care of that.  Afterwards I was just sore and had the tugging sensation from the weight of my breast.  

Hi Cindi,

I hope you are feeling somewhat better by now, and that you get a good night's sleep before your first treatment tomorrow.

I had my port installed the morning of the day before my chemo began. I did not like the pain that night, but it was not an issue the next day.

Hoping all goes smoothly tomorrow.

-j

DrienneB said:

Port Pain

Hi Cindi,

I hope you are feeling somewhat better by now, and that you get a good night's sleep before your first treatment tomorrow.

I had my port installed the morning of the day before my chemo began. I did not like the pain that night, but it was not an issue the next day.

Hoping all goes smoothly tomorrow.

-j

I too had port pain and my port was very prominent and not barely noticeable, like most I have seen.  It looked like I had a very large cyst on my chest. When I complained about the port pain to my cancer support group everyone laughed and said why do you think we didn't comment when you asked us if it was painful, it hurts! You're getting a foreign object placed in your body and it takes time to get used to it. I blamed the pain I was having on the fact that I had two rotator cuff repairs on the right shoulder and that there was probably a lot of scar tissue.  Also someone mentioned the "restless legs" and bone pain.  My oncologist told me the bone pain was caused by the Neulasta injections I was receiving.  The restless legs really bothered me, especially when it felt as if my legs wouldn't support me and I actually fell a few times because both my legs just "gave".   I noticed my potassium levels were low so I tried to drink a combination of coconut water and orange juice to give me more potassium., as well as eating a bananna everyday.  I was finally put on prescription potassium pills and the restless, weak legs were no longer a problem. My first chemo, I was really scared and told the nurse I don't think I can do this but it got less stressful with each treatment.  I, too, slept through most of the treatments because of the Benadryl. And I had bloodwork once a week and had the nurse take it out of my arm, rather than accessing the port.  I had a wonderful chemo nurse, I think of her often, she was always upbeat and had a lot of empathy for her patients.