Port - Post Surgery Pain
Comments
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CindiAWK said:Yay! One down!
So glad you checked back in, I was going to post earlier to let you know I was thinking of you but was crashed from my treatment yesterday. You did great! Keep hydrating and give gentle with yourself. Chris - I am thinking of you too - almost there. You are both strong and Chemosabes!
Hugs, Anne
Don't forget to stay on top of the bowel movement situation. Be proactive. I figured just taking the colace would be enough. NOT!
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TeddyandBears_MomTeddyandBears_Mom said:One down, 17 to go!
Hi All,
Thanks for all of the positive feedback. I DID make it through my first session. Abbycat2, I agree... the chemo wasn't bad for me either. I will say I am still very tendor at the port site and it wasn't pleasant when the nurse pushed on it but it was doable. She was very good. I got up this morning at 2 and took Advil, put a pillow under my shoulder and side and was finally able to get some sleep. Since my treatments are split up in smaller doses, I'm hoping for little to no side effects. Time will tell. I did sleep during some of it today. That Benadryl works like a charm. :-)
Chris, take a blanket! I needed mine and was glad to have it. Until my hot flash hit at the end and I was fanning. The nurses got concerned and I assurred them that this is normal. lol
Can't tell you how much you all mean to me. Thanks for being there.
Cindi
I never had a hot flash when I hit menopause at 51. I started getting them at night a couple of years before I was diagnosed with stage IVb UPSC at the age of 61. My PA at my family physcian's office recommended an over-the-counter drug, which did nothing for me. When my GYN heard about that, he told me it was a quack remedy. After my surgery and chemo, I no longer had any hot flashes. I think they were actually caused by my cancer. I'm guessing it was because my hormones were screwed up, as both my ovaries were found to have cancer in them. I hope your hot flashes go away after treatment like mine did.
Don't be surprised if you start getting mouth sores soon. That was one of my early results from chemo. The oncologist prescribed a mouthwash which made them go away quickly. Later on, about halfway through chemo, my blood count dropped and I got very short of breath when walking or climbing stairs. My skin looked pasty. I needed a blood transfusion. The last thing I got from chemo was peripheral neuropathy. I couldn't feel my feet, and I actually fell one time because I couldn't feel the drop-off from the driveway to the lawn at a friend's house. After a year or so, I got a pins and needles sensation in them, and then I started getting very brief stabbing pains, but only when I went to bed. I'm still not right five years later, but I'm much better than I was at first.
I used to feel like I'd had a couple of drinks and was "high" when the nurses prepared me for chemo with the initial drugs they put in the IV. It was almost a let-down when that feeling started wearing off. I didn't like having to sit there for about five and a half hours, and felt like I was being released from prison when I got out of there, although my nurses were almost all wonderful to me. I had my chemo in the summer and early fall, and it did feel good to get back out of the air-conditioning of the hospital into the hot air outside.
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Glad to hearTeddyandBears_Mom said:One down, 17 to go!
Hi All,
Thanks for all of the positive feedback. I DID make it through my first session. Abbycat2, I agree... the chemo wasn't bad for me either. I will say I am still very tendor at the port site and it wasn't pleasant when the nurse pushed on it but it was doable. She was very good. I got up this morning at 2 and took Advil, put a pillow under my shoulder and side and was finally able to get some sleep. Since my treatments are split up in smaller doses, I'm hoping for little to no side effects. Time will tell. I did sleep during some of it today. That Benadryl works like a charm. :-)
Chris, take a blanket! I needed mine and was glad to have it. Until my hot flash hit at the end and I was fanning. The nurses got concerned and I assurred them that this is normal. lol
Can't tell you how much you all mean to me. Thanks for being there.
Cindi
it went well. Regarding the blankets... yeah, it is frggin' cold in these hospital rooms, but myinfusion center has warm blankets for us. Yes! As many as we want! Yes, please!
Chemo orientation didn't tell me a lot that I didn't already know from my research and the ladies here, but I have to say that seeing it all laid out at one time was a bit overwhelming. Just want to be prepared and get this show on the road. There was a bit of a mixup in scheduling, and now my first chemo is next Friday. They hadn't allowed enough time in my Wednesday appointment.
BTW, I did ask my doctor about the weekly schedule vs. every 3 weeks. She did consider doing the taxol weekly, but said that in her experience the taxol weekly affects the blood count more than the every 3 weeks schedule. She did leave it up to me to decide, but since it was apparent that she did give it some thought knowing my physique, history, etc., I decided to go with her recommendation, at least to start with. Time will tell...
Keep us posted, Cindi. Much love.
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Anne's TreatmentAWK said:Yay! One down!
So glad you checked back in, I was going to post earlier to let you know I was thinking of you but was crashed from my treatment yesterday. You did great! Keep hydrating and give gentle with yourself. Chris - I am thinking of you too - almost there. You are both strong and Chemosabes!
Hugs, Anne
I'm going to take that as good news that you were able to get your counts back up enough to get the treatment.
Really wish it didn't hit you so hard but maybe, just maybe this will be THE ONE. You take care of yourself too Anne.
I drink loads of water so I think I will stay hydrated. And, I'm adding to it just in case.
Thinking of you every day!
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Pinkypinky104 said:TeddyandBears_Mom
I never had a hot flash when I hit menopause at 51. I started getting them at night a couple of years before I was diagnosed with stage IVb UPSC at the age of 61. My PA at my family physcian's office recommended an over-the-counter drug, which did nothing for me. When my GYN heard about that, he told me it was a quack remedy. After my surgery and chemo, I no longer had any hot flashes. I think they were actually caused by my cancer. I'm guessing it was because my hormones were screwed up, as both my ovaries were found to have cancer in them. I hope your hot flashes go away after treatment like mine did.
Don't be surprised if you start getting mouth sores soon. That was one of my early results from chemo. The oncologist prescribed a mouthwash which made them go away quickly. Later on, about halfway through chemo, my blood count dropped and I got very short of breath when walking or climbing stairs. My skin looked pasty. I needed a blood transfusion. The last thing I got from chemo was peripheral neuropathy. I couldn't feel my feet, and I actually fell one time because I couldn't feel the drop-off from the driveway to the lawn at a friend's house. After a year or so, I got a pins and needles sensation in them, and then I started getting very brief stabbing pains, but only when I went to bed. I'm still not right five years later, but I'm much better than I was at first.
I used to feel like I'd had a couple of drinks and was "high" when the nurses prepared me for chemo with the initial drugs they put in the IV. It was almost a let-down when that feeling started wearing off. I didn't like having to sit there for about five and a half hours, and felt like I was being released from prison when I got out of there, although my nurses were almost all wonderful to me. I had my chemo in the summer and early fall, and it did feel good to get back out of the air-conditioning of the hospital into the hot air outside.
My surgeon said he didn't believe in the over the counter stuff either. I had tried a couple of things and they didn't work. I have had hot flashes for 10 years. Enough already!
It would be great to be rid of them. So, something for me to hope for at the end of all of this.
Since I'm doing weekly transfusions, it only takes about 3 hours. Today went fast to me. Partly because I slept some. I had not slept much in the last two nights due to the port issues so the Benedryl hit me hard.
Thanks for all of the warning signs. I did buy Miralax and plan to start taking it tomorrow. Since I am only out of my hysterectomy 4 weeks, constipation scares me to death. Can't imagine having that kind of pressure while I'm still healing. yikes!
Love it that you are able to say 'five years later'...... :-)
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chemo roomEditgrl said:Glad to hear
it went well. Regarding the blankets... yeah, it is frggin' cold in these hospital rooms, but myinfusion center has warm blankets for us. Yes! As many as we want! Yes, please!
Chemo orientation didn't tell me a lot that I didn't already know from my research and the ladies here, but I have to say that seeing it all laid out at one time was a bit overwhelming. Just want to be prepared and get this show on the road. There was a bit of a mixup in scheduling, and now my first chemo is next Friday. They hadn't allowed enough time in my Wednesday appointment.
BTW, I did ask my doctor about the weekly schedule vs. every 3 weeks. She did consider doing the taxol weekly, but said that in her experience the taxol weekly affects the blood count more than the every 3 weeks schedule. She did leave it up to me to decide, but since it was apparent that she did give it some thought knowing my physique, history, etc., I decided to go with her recommendation, at least to start with. Time will tell...
Keep us posted, Cindi. Much love.
Glad they have warm blankets for you! My place is kind of a bare bones location. No TV. A little basket of crackers. They do use recliners that are comfortable so that is OK. I brought my lunch and was fine for the time I was there. One thing I noticed, I was really hungry when I got home. That is the first time since my surgery that I felt that way. My guess is that was a result of the steroids.
I will certainly post any side effects that I experience. It has been 7 hours post chemo and I didn't feel that push of energy that the nurse thought I might get. Darn it. And, I slept for 3 hours this afternoon. I think not sleeping much for the previous 2 nights may have something to do with it.
Chris, you will be fine doing this. It does feel strange walking in there for that first time. My blood pressure was up even with the LORazapam. And, I had a bit of a blue day yesterday morning. But snapped out of it by the afternoon. This crap does play with our emotions.
More to come my Chemosaby partner. :-)
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Thanks! My counts are low but acceptableTeddyandBears_Mom said:Anne's Treatment
I'm going to take that as good news that you were able to get your counts back up enough to get the treatment.
Really wish it didn't hit you so hard but maybe, just maybe this will be THE ONE. You take care of yourself too Anne.
I drink loads of water so I think I will stay hydrated. And, I'm adding to it just in case.
Thinking of you every day!
They added in a shot to boost hemoglobin production plus the infusion for calcium levels, both I will get every three weeks. i was already getting Neulasta as part of my second treatment in the cycle and they told me to plan on platelet transfusions probably every three weeks too. It amazes me how they manage all of this! I remember when my dad when through it 20 years ago and it was much more difficult to deal with And required hospitalization for a few days. The doctor said the progress has been through three generations of treating those side effects since then. he noted that even as recently as a few years ago my counts would've had me hospitalized. Just amazing!
On another note my hair is coming out pretty steadily now. So my stylist is going to shave my head this Saturday morning at the salon; three of my close girlfriends are coming and we are bringing in bagels for everyone. after the shaving I am getting a make up lesson / makeover.
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Even though cancer treatmentAWK said:Thanks! My counts are low but acceptable
They added in a shot to boost hemoglobin production plus the infusion for calcium levels, both I will get every three weeks. i was already getting Neulasta as part of my second treatment in the cycle and they told me to plan on platelet transfusions probably every three weeks too. It amazes me how they manage all of this! I remember when my dad when through it 20 years ago and it was much more difficult to deal with And required hospitalization for a few days. The doctor said the progress has been through three generations of treating those side effects since then. he noted that even as recently as a few years ago my counts would've had me hospitalized. Just amazing!
On another note my hair is coming out pretty steadily now. So my stylist is going to shave my head this Saturday morning at the salon; three of my close girlfriends are coming and we are bringing in bagels for everyone. after the shaving I am getting a make up lesson / makeover.
Even though cancer treatment is still miserable it is so much better than it was in the very near past. Hoping and praying for the best for you. i like your hair plans. Lou Ann
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Me too!flyerette65 said:Port Pain
I too had port pain and my port was very prominent and not barely noticeable, like most I have seen. It looked like I had a very large cyst on my chest. When I complained about the port pain to my cancer support group everyone laughed and said why do you think we didn't comment when you asked us if it was painful, it hurts! You're getting a foreign object placed in your body and it takes time to get used to it. I blamed the pain I was having on the fact that I had two rotator cuff repairs on the right shoulder and that there was probably a lot of scar tissue. Also someone mentioned the "restless legs" and bone pain. My oncologist told me the bone pain was caused by the Neulasta injections I was receiving. The restless legs really bothered me, especially when it felt as if my legs wouldn't support me and I actually fell a few times because both my legs just "gave". I noticed my potassium levels were low so I tried to drink a combination of coconut water and orange juice to give me more potassium., as well as eating a bananna everyday. I was finally put on prescription potassium pills and the restless, weak legs were no longer a problem. My first chemo, I was really scared and told the nurse I don't think I can do this but it got less stressful with each treatment. I, too, slept through most of the treatments because of the Benadryl. And I had bloodwork once a week and had the nurse take it out of my arm, rather than accessing the port. I had a wonderful chemo nurse, I think of her often, she was always upbeat and had a lot of empathy for her patients.
my port stick out like a big overgrown mole! I thought that was just the way they were. I was the one who mentioned restless leg and I need to take medication 2X a day to keep it at bay. I have had that feeling that my knees and legs are giving way as well as pain in my knees, ankles and legs. Thank goodness for Mirapex! Its amazing the things find out by sharing here. I was taking a potassium supplement for a while. I am going to try it again and see if it helps. Thanks, Sandy
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chemo day plus 1
Last night was uneventful. Glad for that.
I woke up at 4AM thanks to one of my little guys walking on my stomach. Didn't go back to sleep but stayed in bed until 6:30.
I got up to what looks like a sunburn on my cheeks. Doesn't hurt.
I had a slight headache that resolved after my coffee.
My shoulder and port are still sore but so much better. I can use my arm and lift it over my head now.
Had some mild anxiety that hit around 9:30. Not sure why. But I took a Lorazapam and feel much better. (Note: I don't use them often. Still on my first 10 day supply that I got back in June. :-) )
I had about 2 hours of energy that I took full advantage of. Washed some clothes, cleaned up the kitchen. It is amazing how much the little things make me feel more normal! My surgeon still won't let me vaccum. Major celebration ahead when that happens. 2 more weeks!!!!
Something I wanted to share that my chemo nurse told me: She said if I share a bathroom to make sure I flush the toilet twice and wipe the seat with Clorox wipes for 2 days post my treatment. This protects others from chemo exposure. I thought that was interesting.
More to come.
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Sunburn cheeksTeddyandBears_Mom said:chemo day plus 1
Last night was uneventful. Glad for that.
I woke up at 4AM thanks to one of my little guys walking on my stomach. Didn't go back to sleep but stayed in bed until 6:30.
I got up to what looks like a sunburn on my cheeks. Doesn't hurt.
I had a slight headache that resolved after my coffee.
My shoulder and port are still sore but so much better. I can use my arm and lift it over my head now.
Had some mild anxiety that hit around 9:30. Not sure why. But I took a Lorazapam and feel much better. (Note: I don't use them often. Still on my first 10 day supply that I got back in June. :-) )
I had about 2 hours of energy that I took full advantage of. Washed some clothes, cleaned up the kitchen. It is amazing how much the little things make me feel more normal! My surgeon still won't let me vaccum. Major celebration ahead when that happens. 2 more weeks!!!!
Something I wanted to share that my chemo nurse told me: She said if I share a bathroom to make sure I flush the toilet twice and wipe the seat with Clorox wipes for 2 days post my treatment. This protects others from chemo exposure. I thought that was interesting.
More to come.
I had that with my first chemo but never again. Nobody had mentioned it but google educated me, thank goodness, or I might have been calling the doc.
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TeddyandBears_Mom said:
chemo day plus 1
Last night was uneventful. Glad for that.
I woke up at 4AM thanks to one of my little guys walking on my stomach. Didn't go back to sleep but stayed in bed until 6:30.
I got up to what looks like a sunburn on my cheeks. Doesn't hurt.
I had a slight headache that resolved after my coffee.
My shoulder and port are still sore but so much better. I can use my arm and lift it over my head now.
Had some mild anxiety that hit around 9:30. Not sure why. But I took a Lorazapam and feel much better. (Note: I don't use them often. Still on my first 10 day supply that I got back in June. :-) )
I had about 2 hours of energy that I took full advantage of. Washed some clothes, cleaned up the kitchen. It is amazing how much the little things make me feel more normal! My surgeon still won't let me vaccum. Major celebration ahead when that happens. 2 more weeks!!!!
Something I wanted to share that my chemo nurse told me: She said if I share a bathroom to make sure I flush the toilet twice and wipe the seat with Clorox wipes for 2 days post my treatment. This protects others from chemo exposure. I thought that was interesting.
More to come.
Decadrone will cause red cheeks sometimes. Sometimes I get them and sometimes I don't. keep track of when and what goes on. It will probably be close to the same for each time. I kept a journal and found it to be very helpful. The first one is the hardest on your emotions and you made it . Hugs and prayers. Lou Ann
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Thanks Connie and Lou Ann,Lou Ann M said:Decadrone will cause red cheeks sometimes. Sometimes I get them and sometimes I don't. keep track of when and what goes on. It will probably be close to the same for each time. I kept a journal and found it to be very helpful. The first one is the hardest on your emotions and you made it . Hugs and prayers. Lou Ann
IThanks Connie and Lou Ann,
I had not seen anyone else mention the red cheeks on any of the discussions. Glad it is normal. I didn't panic, figured it was some kind of normal reaction.
I got really tired around noon today and have not felt like doing much.
Also, I'm having to push myself to eat. I'm not nauseas, just not hungry at all.
My upper back and shoulders were aching earlier. I took Ibuprofen, fell asleep and feel much better now.
I'm going to push myself to take a short walk with my boys when it cools down. It is important for all of us.
So far, so good though. Nothing has happened that isn't manageable.
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Sounds like you are on track so farTeddyandBears_Mom said:Thanks Connie and Lou Ann,
IThanks Connie and Lou Ann,
I had not seen anyone else mention the red cheeks on any of the discussions. Glad it is normal. I didn't panic, figured it was some kind of normal reaction.
I got really tired around noon today and have not felt like doing much.
Also, I'm having to push myself to eat. I'm not nauseas, just not hungry at all.
My upper back and shoulders were aching earlier. I took Ibuprofen, fell asleep and feel much better now.
I'm going to push myself to take a short walk with my boys when it cools down. It is important for all of us.
So far, so good though. Nothing has happened that isn't manageable.
I didn't have the red cheeks. The tiredness and lack of appetite are normal for me. I have been making myself get up at six and have coffee with my husband; today I fell asleep from 8 to 11. I try to graze for my appetite and had a smoothie today. Just got in from playing with my dogs - good exercise for all of us - trying to enjoy a break in our heat.
For me the energy level just dives, ok and ten minutes later it drops. But it is all temporary. You are doing so well!
hugs and prayers - Anne
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Just a thoughtTeddyandBears_Mom said:Thanks Connie and Lou Ann,
IThanks Connie and Lou Ann,
I had not seen anyone else mention the red cheeks on any of the discussions. Glad it is normal. I didn't panic, figured it was some kind of normal reaction.
I got really tired around noon today and have not felt like doing much.
Also, I'm having to push myself to eat. I'm not nauseas, just not hungry at all.
My upper back and shoulders were aching earlier. I took Ibuprofen, fell asleep and feel much better now.
I'm going to push myself to take a short walk with my boys when it cools down. It is important for all of us.
So far, so good though. Nothing has happened that isn't manageable.
Leg cramps and lightheadedness are signs of dehydration. So drink as much as possible. Sometimes that is not even enough and your cancer center can give you fluids. I was stubborn and didn't want to admit I needed it but when I,finally went in it sure did help.
It sounds like you are doing good. Remember with this it does go away and things get better. I am saying that to my self too, right now. Fatigue has set it and nausea is so to follow for me. Hugs and prayers, Lou Ann
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Lou AnnLou Ann M said:Just a thought
Leg cramps and lightheadedness are signs of dehydration. So drink as much as possible. Sometimes that is not even enough and your cancer center can give you fluids. I was stubborn and didn't want to admit I needed it but when I,finally went in it sure did help.
It sounds like you are doing good. Remember with this it does go away and things get better. I am saying that to my self too, right now. Fatigue has set it and nausea is so to follow for me. Hugs and prayers, Lou Ann
They gave me a prescription for nausea. And the nurse said to take it at the first sign. So far I haven't had any but she said they gave me nausea medicine in the IV that should last for 3 days. So that might be why. I drink a lot of fluids. Probably more than I need to. But, I drank a lot of water before all of this so figured I would add onto that just in case.
I'll be glad when I am healed from my hysterectomy. I still have sharp pains in my stomach and V at times. Nothing unexpected, just annoying. And, of course my port that started this thread. I really hate sleeping on my back. I'm hoping it will be well in the next few days and I can "roll over"! That is my whine for the day. :-)
Overall, I think I am doing really well. And, the information and support from everyone here is such a large part of that wellness. Knowledge is power. It is so nice to know that any question will be answered by people that have been there done that. Who could ask for more?
Always Grateful! Cindi
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I have several kinds of nausea medsTeddyandBears_Mom said:Lou Ann
They gave me a prescription for nausea. And the nurse said to take it at the first sign. So far I haven't had any but she said they gave me nausea medicine in the IV that should last for 3 days. So that might be why. I drink a lot of fluids. Probably more than I need to. But, I drank a lot of water before all of this so figured I would add onto that just in case.
I'll be glad when I am healed from my hysterectomy. I still have sharp pains in my stomach and V at times. Nothing unexpected, just annoying. And, of course my port that started this thread. I really hate sleeping on my back. I'm hoping it will be well in the next few days and I can "roll over"! That is my whine for the day. :-)
Overall, I think I am doing really well. And, the information and support from everyone here is such a large part of that wellness. Knowledge is power. It is so nice to know that any question will be answered by people that have been there done that. Who could ask for more?
Always Grateful! Cindi
I have several kinds of nausea meds. I never needed them when I was on Taxol/carbo, but now that I am on Doxil there gets to a point were nothing wants to work. Me , myself and I have decided that the chemo is trying to get out of my body through my digestive system and I need to throw-up. After I do I usually start to feel much better. Your attitude is great you will handle his. Hugs and prayers Lou Ann"
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Hot Flashes and Night Sweats
Ironically, after writing to you on here about my hot flashes starting many years after menopause, I was reading an e-mailed bulletin from AARP today on health problems people encounter with aging. One of the subjects they hit on was night sweats and hot flashes. They said these things could be caused by hormonal problems, neurological problems and even cancer. They said that a Mediterranean diet and a diet high in fruits can help significantly. So it looks like my suspicions about my hot flashes being caused by cancer were right. Yours may not be from cancer if you've had them for 10 years, but maybe they'll improve once you get past your treatments.
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AppetiteLou Ann M said:I have several kinds of nausea meds
I have several kinds of nausea meds. I never needed them when I was on Taxol/carbo, but now that I am on Doxil there gets to a point were nothing wants to work. Me , myself and I have decided that the chemo is trying to get out of my body through my digestive system and I need to throw-up. After I do I usually start to feel much better. Your attitude is great you will handle his. Hugs and prayers Lou Ann"
I never had nausea but lack of appetite was an issue- a first for me. I lost 4-5 pounds with each of the 6 sessions. I found some things that appealed and were easily prepared: yogurt, smoothies, cottage cheese, eggs, vegetable and fruit juices, toast, oatmeal. It sounds a bit boring but it was reasonably nutrious.
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Not about flushes and sweatspinky104 said:Hot Flashes and Night Sweats
Ironically, after writing to you on here about my hot flashes starting many years after menopause, I was reading an e-mailed bulletin from AARP today on health problems people encounter with aging. One of the subjects they hit on was night sweats and hot flashes. They said these things could be caused by hormonal problems, neurological problems and even cancer. They said that a Mediterranean diet and a diet high in fruits can help significantly. So it looks like my suspicions about my hot flashes being caused by cancer were right. Yours may not be from cancer if you've had them for 10 years, but maybe they'll improve once you get past your treatments.
This thread seems to have introduced a number of issues and I'd like to comment on a few. When talking about pain control medicine I see reference to Advil and ibuprofen. Ibuprofen is the generic name for Advil and Motrin. If one of these works for you it is likely they will all work. There can be differences in inactive ingredients that could make a difference for some folks but the active ingredient is ibuprofen in all three.
I got my port in March 2012 after chemo #7 or #8. Today I had chemo # 34. I don't remember having any significant or unexpected pain from having the port inserted, but I have experienced different use discomfort over the past 3 years. While prepping the skin for the needle, the skin is washed with an alcohol-like solution. One of my chemo nurses then gently washes the area with another solution so the stinging alcohol isn't pushed under the skin. I hardly feel any prick. My other nurse doesn't use solution #2 and the sting is really noticable. Another hint for those of you anticipating getting a port. The doctor may usually insert it on one side or the other based on habit, and will pick his usual side unless you request otherwise. Many years ago I hurt my right shoulder skiing and haven't been able to sleep on that side for decades. Since my right side was already shot I asked that it be put there to try to preserve my left side. If you have a preference, ask; if you don't, think about it. It could effect your tennis game, or seatbelt comfort.
I wish you all peace and comfort.
Maggie
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