Katie

How do we contact Katie?

It is hard but sometimes all we can do is too pray asking God to give her strength to keep fighting. Let her know we love her and call on any of us for help or just to unload that is what we are here for.

Tim

Hondo said:

Keeping her in prayer

 

It is hard but sometimes all we can do is too pray asking God to give her strength to keep fighting. Let her know we love her and call on any of us for help or just to unload that is what we are here for.

Tim

 

Lifting prayers for God's grace to surround Katie and her family as they go through these difficult times.  May they feel the love and care of those here.

Hugs, Katie!

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

you've been there every step of the way for some of us, and we're here for you. You don't even know how your kindness and advice..has lead me to live a better life. Hoping and praying things will ease up for you and yours...Happy Spring, keep those so-called specialist on their toes 

MrsBD said:

Katie, I'm so glad you

Katie, I'm so glad you checked in. I've been praying for your family. It's so disheartening when you have a doctor who is not that good at communicating with compassion.  Stay strong. You have much support from your friends on this site. 

Beth 

You have always been here for me and all the rest of us through the years.  Of course it breaks our hearts to know you and yours are suffering through some bad times.

All I can offer is what you've already stated.  Be positive and know inside that it will all work out one way or another.

Tom

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

Understand your frustration.  It seems to me our GP just reads the reports from the specialists although he does write the pain scripts for Jim.

So much to manage.  I understand.

Just know we are with you.

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

Well there she is.  I wish you well Katie and many more new days and good tomorrows.

Keeping the faith.

Matt

wmc said:

Katie so sorry to hear this.

Don't know why any doctor would say anything like that. As far as your husband my heart goes out to you. I don't know how far it is, but hope this might help. My wife was told she has chronic kidney failure 20m years ago. her numbers keep going up some then down and she is one number from stage 4 but she walks every day [ also has fibrositis and was told she should be in a wheel chair 25 years ago] and that seems to help keep her numbers up. Her doctors can't explain why she is doing this good but she is.  She even rides a bicycle up to five miles a day and on bad days she still does two miles. I don't know if it is fath or just to stubborn or just luck but what ever it is I hope it keeps up. She took care of me after I had my surgery. Never give up hope. You will always be in my prayers, and I know for a fact mine have been answered.

Remember everyone is here for you and give any support we can. we're open 24/7

Bill

My hubbies eGRF was at 6 when he started dialysis.  Anything under 15 is very bad.  Yes this number does bounce around and can for years.  (his adreneal glands - filters of the kidneys stopped working)  If I'm not mistaken his stayed at 20 for over 20 yrs.  (but this number is just a guess...depending on many factors, but one to watch)  We were expecting this, and have tried to stay informed of options along the way.  Still when it's in your face and you're in the midst of the decision making much of what you thought you knew means very little.  His endo. has been wonderful in guiding us through the muck of it all.  We didn't put him on the transplant list years ago for many reasons...most importantly quality of life issues.  I know to many this doesn't make sense.  But knowing this is a last resort, and also a life saving resort we wanted this in our back pocket to use when we landed where he's at today.  Bill much of what you and your wife are walking seems so familiar, for the most part I pray no other couples ever have to walk it.  Thank you for your kind words.  Katie      

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

Katie, you are in my prayers. Lean on Jesus' arms, he will give you strength, even when you are unaware.

Debbie