News about our Djinnie

I'm at loss of words...

thank you for letting us know

This is heartbreaking. I haven't been heavily involved with her story, but I read a ton of her post. I am praying they can find some relief for her pain. My heart goes out to her

Thankyou jojo.  Please tell djinnie we are with her in spirit.  My heart aches.

Annie

Srashedb said:

Thank you

JoJo:

thank you for posting this; I too had been communicating privately with her but had not for a couple of weeks and was concerned about bothering her.

She is a very special lady and it hurts to learn that she is having so much pain.

if you hear anything more, please let her know that she is in my thoughts.

i dread signing on and seeing a post with her name just as much as I had been delighted to hear from her before this latest turn.

Thank you, JoJo 

Sarah

OH dear, how sweet of HER to think of US! Thank you so much, JoJo, for relaying her message to us.

I wonder if she is truly in hospice care. Hospice RNs are trained in knowing how to administer pain meds, in levels most MDs RNs cannot for home and hospital care. Hospice even knows how to read a patient's level of comfort when they can no longer tell you. Even I learned how to tell our RNs a patient was in distress when the Hospital medical team thought they were "fine."

A good hospice  eventually provides IV Pain med PUMP that computerizes the amount used and times patient or family pushes the boulus (button) for extra relief. That way you get continuous pan adminitstered and doses/amounts adjusted continually when needed. Morhine helps also to keep the airways open at that latter stage of dying. Weird because opiates suppress respiration when not dying.

Some  hospices do not provide this IV pump inside the home, but the one I worked for did. So, if you are in more pain, inspite of the pump, the Hospice RNs would come out to re-calulate on a DAILY basis,  if not hourly, so you'd never have to suffer. Of course if you are lucky enough to get into a residential hospice, they staff is right there.

Again, you need an MD to order Hospice care for a patient, even if in a hospital or residential setting.

The Hospice I worked for required daily RN home visits, once a IV pump was placed. The RNs were available 24/7 even during the night just to make sure the patient is not suffering. They also offer emotional support for the family with help and instructions and assisitance.

This is why we need to advocate for Death with Dignity laws here in USA (DJinnie is in France). That way she could decide when she feels enough is enough, and wishes to go peacefully without suffering. Again, this would be HER decision.

My heart is so heavy, no one should suffer like she has..is..

I continue to send my spirit of love, forgiveness,

and hope that she will have the peace she so well deserves..

Soon.. DJinnie soon..

Even though many miles separate us..

we are connected..

Heart to heart...

Spirit.. to spirit..

Love with lovely love...

May you know how much I love you!!

Thanks again, JoJo..

Hugs to us all!!!

Jan

Footstomper said:

Oh Djinnie

We are all thinking of you and wishing you the best in our own ways. Should you look in know that we hold you in our hearts. 

Thank you Jojo, for keeping us informed

Thanks Jojo. DJ, I am pulling real hard for you. We will see you again.

Thankyou Jojo. It is good to know how she is doing even though it is not good news. She is a dear, sweet lady and I will be praying for her and her family.

Hugs to you too! Melissa xox

So, so sad but thank you or for keeping us posted. I hope she doesn't have to endure much more. Sometimes life is just not SO good- BDS

Appreciate your post. I'm really sad to hear she's struggling with so much pain. I hope they can get it under control.

Djinnie, we're pulling for you.

Wishing you the best.

Hugs,

Todd