Just not feeling well. Neuropathy in feet just struck full force out of no where.

ron50 said:

G'day Helen

    I hope it is not a permanent thing for you. My only advice is to get it checked out early. Having said that ,it did not do me much good. I started to get bad neuropathy in conjunction with severe arthritis. I had just come off 18 months of 75mg a day prednisone for my kidneys. It took them some time to realize I was steroid resistent ,duh. My rheumatologist trialed me on lyrica , neurontin , and endep. None of them helped and lyrica was not on the phamrasuetical benefit scheme for neuropathy at that stage only epilepsy. Nearly sent me broke. Since then I have found that immuno-suppressants ramp up my neuropathy. I saw a neurologist. he did nerve conductivity tests. I had told him I had moderate to severe neuropathy in both feet and legs and I needed to know what caused it and how to treat it. He did the tests then told me I had moderate to severe peripheral neuropathy in both feet and legs . He did not know what caused it and because he did not know he would not treat me. That will be $500.00 thank you.  A***e. It has now moved to my left hand as well. Strangely I am taking targin80/40 a day . That is 80 mg oxycodone and 40 mg naloxone an opiate antagonist. I believe the naloxone is acting the same as ldn, low dose naltrexone and seems to be taking the edge off the neuropathy. Talk to your doc about LDN as it seems to be a good medication with few if any side effects. It has to be made by a compounding chemist but it may be worth a try, Hugs ron.

I may just go to a naturalist.  I have no idea why this is italics!  lol  My friend said her naturalist gave her some herbs that are helpful.  I find that there are natural things to help with everything although since this is caused by a chemical, I'm not sure natural will help this time.

annalexandria said:

Neuropathy sucks!

i have in in both my hands and feet, and the feet are by far the worst.  Even just sitting on the couch like I am right now I have tingling and stabbing pains (also in my heels).  It's just really uncomfortable.

Both my brother and mom have/had trouble with this, so I think I may have an underlying propensity to it, but it's def got triggered due to chemo...came on during FOLFOX and never got better.  I don't think the docs have a clue as to just how much long-lasting damage comes from our treatments.

I know it's not a solution to the problem really, but I do find hydrocodone helps.  I was going to taper all the way off that stuff, as I am sick to death of getting rx's filled every month, but the neuropathy got so bad that I went back to a low dose.  Gives me some relief, and if I am planning on being on my feet for an extended period I can manage my dosing so that I get some in ahead of time and it does help. Maybe a possibility?

I started getting seriously addicted to oxycodone so I'm staying far away from all the codones.  I have an addictive personality.

Easyflip said:

Natural

remedies for neuropathy include L-glutamine and Cannabis oil. However with your addictive personality you may want to stay away from the cannabis : ) wink wink

Easyflip/Richard

Lol The last thing I need to do is start smoking weed Richard, it would be watch out world!  lol  I'm not sure the world wants a high me in it even for medical purposes.  My oncologist thinks it's because I'm fat!  She doesn't feel this is neuropathy.  She's telling me to lose weight.  I'm 5-6 and 184 pounds.  When I was diagnosed in 2012, I was 160.  I'm stress eating and I know it, time to stop.  I hope she's right.  The only way to find out is to actually lose the weight.