ok I am going to give in and use the PEG
So I am not getting enough water or food in me and have decided to use the peg for a while and see how it goes. I do not remember exactly howto use it tho. I want to just use the bolus(sp) method but do you push the boost down or just let it drip? Do you dilute it? I feel kind of ignorant because its been so long since its been implanted. Can anyone help me?
Comments
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I just filled the syringe...
held it up, and let the Boost drip in . It goes pretty fast. I did dilute it a little bit with whole milk so it would go faster ....I didn't have much patience with feeding time. Be sure to follow every feeding with a couple syringe fulls of water to clear it out.
p
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I also used the suringe andphrannie51 said:I just filled the syringe...
held it up, and let the Boost drip in . It goes pretty fast. I did dilute it a little bit with whole milk so it would go faster ....I didn't have much patience with feeding time. Be sure to follow every feeding with a couple syringe fulls of water to clear it out.
p
I also used the suringe and worked great .used two cans 3-4 times a day along with the flushing plus extra water..
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feedingthennies61 said:I also used the suringe and
I also used the suringe and worked great .used two cans 3-4 times a day along with the flushing plus extra water..
Well that went ok! I feel a bit bloated but wow was that fast.
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Good to hear..........sharon 1 said:feeding
Well that went ok! I feel a bit bloated but wow was that fast.
That's good to hear. I only had the NG tube in the nose and then it went past my stomach to the intestines. Had to do 150 cc then a 60ccflush. Did not do well. They wanted 280cc and I got sick on 150 so I said no. At first it was right out of the frig. and I asked it it could warm up to room temp, that cold really felt bad. It was only going to be for six to 12 days so no peg for me. So glad that went well. Now you can stay hydrated but remember you still need to swallow. It doesn't take long to forget how to do it. In only six days I had to learn again and that first one was scarry.
Bill
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water flushsharon 1 said:feeding
Well that went ok! I feel a bit bloated but wow was that fast.
When you flush w/ water, you might find it more comfortable to use warm water. When I had a PEG, I could "feel" the cold water, and didn't like it at all. If i had refrigerated formula, I mixed it with room temperature formula.
I had the PEG severa months before my last surgery, and after my surgery it was a few weeks before I could do it myself. I had to remind the nurses to use the warm water.
Lorna
PS about a month after my laryngectomy, I was able to start eating again - and I haven't stopped!
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Peg feeding
I've been a PEG tube feeder for a year. I can't swallow so all my food goes through the tube. It's great to get the formulas down quickly but be warned if you continue to feed fast, over time you can develop Dumping Syndrome. It's when the food goes through the intestines too quickly, the stomach swells and you get painful gas and diarrhoea after the feed. I have it and it's not pleasant, I can't get back to normal and suffer gas every day which doubles me up. i have terrible noises as everything whizzes through my system like gurgling and rumbling just like a drain. Not everyone will get this but it's best to feed slowly, you can slow down by holding the syringes without plunger lower and putting just a little in the syringe at a time. It takes me an hour and half to get two formula bottles down. I Have a short break between bottles.
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Hi Sharonsharon 1 said:feeding
Well that went ok! I feel a bit bloated but wow was that fast.
Glad to see you and Peggy are filially getting to know each other. I use a 60cc syringe and I can normally eat 3 cups of food at one time plus a glass of water. The problem you need to watch is bending over, sometime if I need to bend over to do some work it comes up, just something I have learned to live with.
Tim Hondo
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Gasjackflash22 said:Peg feeding
I've been a PEG tube feeder for a year. I can't swallow so all my food goes through the tube. It's great to get the formulas down quickly but be warned if you continue to feed fast, over time you can develop Dumping Syndrome. It's when the food goes through the intestines too quickly, the stomach swells and you get painful gas and diarrhoea after the feed. I have it and it's not pleasant, I can't get back to normal and suffer gas every day which doubles me up. i have terrible noises as everything whizzes through my system like gurgling and rumbling just like a drain. Not everyone will get this but it's best to feed slowly, you can slow down by holding the syringes without plunger lower and putting just a little in the syringe at a time. It takes me an hour and half to get two formula bottles down. I Have a short break between bottles.
I too hate that but worse is when I am getting hungry and the gas starts to blow out of the side of the PEG through the stoma. It can get very loud and if someone does not know that I have a PEG they will think I am farting. I hold my head up high and say PEG Tube, most people don’t even know what I am talking about, but I do care, it is life and a part of my life I live everyday.
Tim Hondo
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Good laughHondo said:Gas
I too hate that but worse is when I am getting hungry and the gas starts to blow out of the side of the PEG through the stoma. It can get very loud and if someone does not know that I have a PEG they will think I am farting. I hold my head up high and say PEG Tube, most people don’t even know what I am talking about, but I do care, it is life and a part of my life I live everyday.
Tim Hondo
needed a good laugh you conjured up a picture in my mind like a cartoon of a jet of air shooting out of your belly. Didn't think it would sound like a rude noise but I love it. Put your rude noises with my drain noises we could have a music contract in no time. Maybe call it Hondos Water Music. Get it.....Handles Water Music. Boom Boom.
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Dumping syndromejackflash22 said:Peg feeding
I've been a PEG tube feeder for a year. I can't swallow so all my food goes through the tube. It's great to get the formulas down quickly but be warned if you continue to feed fast, over time you can develop Dumping Syndrome. It's when the food goes through the intestines too quickly, the stomach swells and you get painful gas and diarrhoea after the feed. I have it and it's not pleasant, I can't get back to normal and suffer gas every day which doubles me up. i have terrible noises as everything whizzes through my system like gurgling and rumbling just like a drain. Not everyone will get this but it's best to feed slowly, you can slow down by holding the syringes without plunger lower and putting just a little in the syringe at a time. It takes me an hour and half to get two formula bottles down. I Have a short break between bottles.
if anybody wants to read about this on the web, put (dumping syndrome with peg tube feeding) and quite a lot of articles come Up. There may be some on the site with similar symptoms and blame the type of formula as I did. High sugar intake doesnt help as it causes changes in the stages of digestion. Some fruit is high in sugar. I can't remember if this is mentioned in the ' Thread'.
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peg
I'm sure this will be quite outrageous to many or all. I used to nurse long term patients, and every one of them that had permanent pegs lingured for years and begged me to just pull the tube and let them die. Of course I couldn't, but I decided then that if it ever came to my having to have one, I'd just let nauture take it's course. I've only had patients who had to totally depend on it for the rest of their lives. Please let me know if it's as bad for you, having one.
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Hi Longtimelongtime said:peg
I'm sure this will be quite outrageous to many or all. I used to nurse long term patients, and every one of them that had permanent pegs lingured for years and begged me to just pull the tube and let them die. Of course I couldn't, but I decided then that if it ever came to my having to have one, I'd just let nauture take it's course. I've only had patients who had to totally depend on it for the rest of their lives. Please let me know if it's as bad for you, having one.
I have it all in my living will so that when I am at that stage in my life what I want my family to do. This will help to make it easy for them, I am not afraid of death because I know where I am going. Welcome to CSN H&N
Hondo
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Was really glad that put itsharon 1 said:feeding
Well that went ok! I feel a bit bloated but wow was that fast.
Was really glad that put it in as I couldn't eat anything anyway after surgery.Started to eat alittle until the rads kicked in and then glad again.Wanted it out after but they wouldn't take it out until after rads and first tests and as I started to gain weight again from eating he smiled and pulled it out..
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Peglongtime said:peg
I'm sure this will be quite outrageous to many or all. I used to nurse long term patients, and every one of them that had permanent pegs lingured for years and begged me to just pull the tube and let them die. Of course I couldn't, but I decided then that if it ever came to my having to have one, I'd just let nauture take it's course. I've only had patients who had to totally depend on it for the rest of their lives. Please let me know if it's as bad for you, having one.
Longtime, had I not started using this peg, I am afraid that I would be in REAL trouble as I cant eat a lot of foods right now other than soups and the water is unbearable. The taste is just awful although I am trying to swollow at least 1 or more per day. The rest I put in my peg. I admit that I am still trying different amounts to put in and what works best as far as bloat, but I am glad that I have it
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it's not a give insharon 1 said:Peg
Longtime, had I not started using this peg, I am afraid that I would be in REAL trouble as I cant eat a lot of foods right now other than soups and the water is unbearable. The taste is just awful although I am trying to swollow at least 1 or more per day. The rest I put in my peg. I admit that I am still trying different amounts to put in and what works best as far as bloat, but I am glad that I have it
I didn't get my PEG inserted until 2 weeks of radiotherapy and chemotherapy had made me dehydrated and malnorished. I lost 10pounds in 2 weeks and was in a terrible state. I'm now 3 weeks post treatment and still almost exclusively PEG feeding. I can swallow liquids but have lost taste and smell. I know some day I'll get back to eating but as so grateful for the PEG. Using it is not giving in, it's necessity for a while
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Hi AndrewAndrewP16nose said:it's not a give in
I didn't get my PEG inserted until 2 weeks of radiotherapy and chemotherapy had made me dehydrated and malnorished. I lost 10pounds in 2 weeks and was in a terrible state. I'm now 3 weeks post treatment and still almost exclusively PEG feeding. I can swallow liquids but have lost taste and smell. I know some day I'll get back to eating but as so grateful for the PEG. Using it is not giving in, it's necessity for a while
Welcome to CSN H&N, you are right it will all come back to your new normal and life will be just as good after. I have lived to see all my grandchildren come into this world, just when I think it is all over I find that there is another on the way. It has been a blessing to me to be here and a part of their life.
Hondo
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