Found 8cm on my sons kidney an hour ago

Just seeing this post, Blondy very sorry to hear you're going through this.  But he's in the right place.  Hopefully they can remove whatever it is and be done with it.  At his age, they will probably want to do genetic testing for Birt-Hogg-Dube or Von-Hippel-Lindau syndromes.  They are genetic defects that have a high rate of kidney cancers.  More common in the younger patients from what I've read.  Whatever the case, the first order of business is to remove the mass, run it through pathology and see what it is.  Hopefully it is benign (he could have even been born with the darn thing).  Just stay positive.  There are a lot of treatment options out there these days.  

Glad you at least found this board.  Hope "we" can help.

Keep us informed with the resuts and keep in mind, at least they caught it!

blondy1975 said:

They just informed us 16 hrs

They just informed us 16 hrs after the MRI that the cyst and kidney are bleeding. They are transferring him via ambulance to children's hospital to be monitored to see if bleeding stops. They do not feel it is cancerous.

Glad you let us know. Many of us have been hanging on with you!

Still, this uncertainty is challenging to say the least, huh?

Again, this is a "working" diagnosis.. not certain.

Good he'll be monitored closely. But why Children's hospital if he is 18?

Just curious.. keep us posted, if you can.

Hugs, Jan

blondy1975 said:

He can still be taken care of

He can still be taken care of at Children's even though he is 18. The urologist at this hospital can consult us on this because we came in the ER, not as a referred visit, but our insurance won't cover him after that. It was suggested to take him to Children's because he is still younger than most patience seen with a cyst this large, and a follow up MRI is necessary due to the blood being in the cyst that made it a little difficult to see everything.

Blony,

I may have been a little thrown off when you used the word tumor in your initial post. If it is in fact a cyst he may get a free pass on this Cancer stuff which has no part in the life of an 18 year old. Hopefully the Kidney issues will resolve themselves, but if they do have to remove the Kidney because of the cyst or bleeding issues we can still offer hope and comfort on this board as each of us has faced the loss of a Kidney and knows what the surgery and recovery are like. Hopefully you do not need us.

Icemantoo

blondy1975 said:

Another sleepless night as

Another sleepless night as fear takes over again. They transferred him to Children's Hospital.  They reviewed his scans and are not for sure what it is... a cyst or a mass. He made it sound like it's a cyst but has a mass of some sort inside of it. He said a team of specialist are having a conference tomorrow to discuss it and see "what will be the plan of attack". This can't be good. I am in utter disbelief.  The doctor at the first hospital SPECIFICALLY said it looks like a cyst and didn't see anything of concern.  But that because of bleed that it was hard to see everything and would need a follow-up scan in a couple weeks when the blood clears out. Please say a prayer

Even if it is not just a cyst - your son is obviously in good hands. Most probably there will be surgery, and. Your son will be tumor Free. Waiting is very hard, but even this hard time will pass, and things will get better!

hugs to you...

Alla

blondy1975 said:

Another sleepless night as

Another sleepless night as fear takes over again. They transferred him to Children's Hospital.  They reviewed his scans and are not for sure what it is... a cyst or a mass. He made it sound like it's a cyst but has a mass of some sort inside of it. He said a team of specialist are having a conference tomorrow to discuss it and see "what will be the plan of attack". This can't be good. I am in utter disbelief.  The doctor at the first hospital SPECIFICALLY said it looks like a cyst and didn't see anything of concern.  But that because of bleed that it was hard to see everything and would need a follow-up scan in a couple weeks when the blood clears out. Please say a prayer

I think the positive here is that they could be ruling out cancer. Many, if not most of us here heard "It's cancer" right away. No chance of anything else, which is what happened to me. The mass looking different, and the dilligence they are taking could in fact bring postive results. I think it's acutally a good thing they are forming a group to come up with a concensus of how to treat the issue, especially since preserving kidney function is important. Hang on to that thought, I will be hoping for you that this mass is just a cyst, and the impact of the skiing injury caused it to rupture. 

sblairc said:

Just wanted to add my support.

I post here on behalf of my husband. Seeing someone you love in so much pain is so incredibly heartbreaking, I understand. Whatever the issue, cyst or something else (it could be cyst with calcifications, as you have mentioned) please know we are here to support you. 

You must be so stressed. Even knowing he's in good hands it's still so hard to see your child in pain and be uncertain. Hang in there and we're all thinking of you. Hoping outcome is just a cyst and it'll all be resolved quickly.

You and your son are in my thoughts and prayers.