Peg???

sharon 1 said:

Peg

It seems like whenever I get up from the chair or couch it erupts. When I was in the hospital yesterday to get it fixed they gave me this ointment to put on to stop the acid burns, but Ive had enough. Tonite is just as bad almost as before the re-aired it. Im going to go back in the morning and have it looked at again. I wonder if been constipated has anything to do with it. I took an enema today and it relieved that problem, but I dont know- IVE HAD ENOUGH

sharon1, i'm sorry you're having so much trouble with your peg.  others have had the same problem.  it doesn't seem like the docs would have such problems putting it in right.  i am praying for a solution for you.  i understand enough is enough but you must keep going forward.  i am praying they get it fixed when you go back.

God bless you,

dj

I'm really sorry to hear your issues with a PEG that you are not even requiring. I hope they get it sorted out for your sake. This is a perfect example the pro PEGers always forget to mention about just get one put in rather than wait until the need is clear. I'm sure it will get fixed soon.

Hondo said:

Mic-key Button

I have to agree the best PEG tube I ever had is the Mic-Key Low profile Button. To this day it does not leak and I have not got any infections. It is a lot better than walking around with some big tube sticking out of your belly, and people in Wal-Mart thinking you are steeling something and trying to hide it under your shirt.

Hondo

I was lucky enough to not have to much trouble except for some slight leaking.But my surgen told if at anytime I did not to go the ER .He said most aren't sure about them and also not to go if I have problems with my tach tube.He said to call his office and they would move up to see him right away.

sharon 1 said:

Spent the last 4 hrs at er

Well, since its a holiday, everything having to do with cancer is closed until tomorrow. My stomach was and is so sore from all the leakage burning into my skin that I went to see if I could get any relief. The er dr called ir dr on call and the ir dr said that he would see me tomorrow(guess he didnt want to come in). Needless to say I did get relief in a product called cavilon no sting barrier film which you put over your skin after cleaning to protect it from damage. Guess there is nothing else to do until holiday is over.

I had the most luck with the product called Calmoseptine. 

It is basically a diaper rash medicine - for adults - It has menthol in it.  I had a lot of leaking and burning skin also.  It was recommended to me by the wound care nurse.  It even has on the package about using for feeding tube sites.

I found it at my Healthmart pharmacy.  CVS didn't know what it was, and Walgreens I try to avoid.

In the 6 months I had a tube, I used it for 4 and half.  I think the tube was replaced 5 times.  We never could get it to fit right.  And, when it was finally removed, it wouldn't heal - and the GI doctor had to go in and clamp it from the inside. 

The low profile tube he wouldn't give me, because I was losing weight.  You need to be able to maintain your weight for that kind because he said you couldn't adjust the fit.

Good luck with it, and hope you get comfortable soon.

Lorna 2007 & 2014

hi iv had a peg for just over 10 years now, changed every 3 years or so, it did leak for a bit the last 1 i had put in , so i put anti cream in the hole got some  Mepore 7x8 off of doc cut it half way,for peg, in the middle and then put aroundpeg, nothing then leaked out and it heal up in a couple of weeks and ok now. Tom

Kritter said:

I feel your pain..

Do I know what you are talking about and going through right now. If you can read some of my posts.. under Kritter. I have the PEG as well and nothing but trouble with it since last September when they put it in.

 

I have been in the hospital the last three days due to dehydration, stomach infection...from my Peg tube. I developed Gastroparesis,,, I really hope they can get yours under control soon!!....Have you tried cutting a square bandage and placing it around the tube? I ended up using Desitin...for babies around mine. Using nothing now just constantly cleaning it.

 

I know first hand how bad that stomach acid is coming out burning you. I wish I could help more, I know the desitin worked for me but everyone is different.

 

 

Tips I have learned.. no sodas, no coffee, nothing acidic, that is what is working for me. Also cutting the boost, ensure or what ever in half with water, helps me. I hope some of this might help you get better. Hugs and Prayers .. Kritter

I'm really new to this, but I'm trying to learn. I had a Peg tube inserted Jan. 15, I got the stitches out today. As of now I've had no troubles, leakage. As in Sharon's case, I'm not using mine for feeding yet. So when you say no coffee, nothing acidic I'm confused. I'm not trying to catch any one at saying something wrong, Im honestly wanting to learn. If drinking coffee or anything acidic is something that could leak out around my tube,then I would cut back. It makes sense. But then in your next sentence you mentioned cutting the boost or ensure with water. But Sharon mentioned she's not using the tube for feeding yet. Again, i'm not trying to sound harsh. I haven't started any treatments yet, I won't until Feb. 3, when I start both radiation & Chemo. Until then, I'm eating ok. I'm just wondering is this acidic problem something that may arise if my tube mal-functions, and whether I'm using it for feeding or not? I already went through prostate cancer about a year and a half ago. But this is a whole different beast. I never had surgery of any kind before and this tube is scary. I really feel for Sharon and all the others who not only have to face cancer, but also these other problems. God Bless.    

an entirely different problem than what you are experiencing.  She's avoiding acidic things, and cutting her Ensure because her tummy can't seem to handle what goes into it.....you're have a leakage problem.....and stomach acid does burn skin...it's hard-core acid.  It seems when someone has a problem with their tube, it's never a small thing.  I didn't have any problems so I don't have any advice.  As for feeding through it, I didn't use mine until radiation was over (even tho they put it in before I started rads).....

I'd be insisting they fix it the first pop you get into see the Dr.  They can be stitched, and sometimes that helps....or they need to put in a new one....who's to say the one you have isn't defective in some way. 

p