New Dr.

Mom2MJ
Mom2MJ Member Posts: 6
in Anal Cancer #1

My son went to the  new doctor today. He is a colorectal surgeon. He wants to do another biopsy and said that the "invasive squamous cell carcinoma" is only in the places that were removed. He feels that there is nothing to worry about. 

I'm still worried.

Comments

  • nicotianna
    nicotianna Member Posts: 209
    #2
    new dr.

    That surgeons's comment is worrisome to me.  It just does not make a whole lot of sense to me.

    Have you explored these web sites?:  <www.ucsfhealth.org/joel.palefsky> - works w/dysplasia & HPV

                                                        <www.analcancerfoundation.org>

                                                        <aboutcancer.com>  see Robert Miller's you tube video on anal cancer

                                                        <http://analcancerhelp.info/the-anal-cancer-story.html&gt; - lots of web sites listed w/in this site.

    Look up your colorectal surgeon's profile & ck. out his area of interest.  I have not been impressed w/mine.

    Hope this helps.  Others on this site will add to my thoughts.  Check out The HPV & Anal Cancer Foundation web site too.

    Please look at the entry below yours on this discussion board regarding a newly diagnosed person.  It contains a whole lot of helpful information.

    Nic

                                    

     

     

  • Mom2MJ
    Mom2MJ Member Posts: 6
    #3
    nicotianna said:

    new dr.

    That surgeons's comment is worrisome to me.  It just does not make a whole lot of sense to me.

    Have you explored these web sites?:  <www.ucsfhealth.org/joel.palefsky> - works w/dysplasia & HPV

                                                        <www.analcancerfoundation.org>

                                                        <aboutcancer.com>  see Robert Miller's you tube video on anal cancer

                                                        <http://analcancerhelp.info/the-anal-cancer-story.html&gt; - lots of web sites listed w/in this site.

    Look up your colorectal surgeon's profile & ck. out his area of interest.  I have not been impressed w/mine.

    Hope this helps.  Others on this site will add to my thoughts.  Check out The HPV & Anal Cancer Foundation web site too.

    Please look at the entry below yours on this discussion board regarding a newly diagnosed person.  It contains a whole lot of helpful information.

    Nic

                                    

     

     

    Me too

    It concerned me as well. I was prepared for many things but to be dismissed was not one of them.

  • pializ
    pializ Member Posts: 508 Member
    #4
    Mom2MJ said:

    Me too

    It concerned me as well. I was prepared for many things but to be dismissed was not one of them.

    mom2MJ

    if I was in your son's position, I would be looking for a colorectal surgeon who is experienced with Anal Cancer. A second opinion. also, use the NCCN site to guide you. I live in the UK, but used that information to ensure that my team was on track with my care. If they fell down, as in my follow up, I was able to demonstrate correct procedures. We have to be our own advocate. Our lives depend on it.

    best wishes (& don't be fobbed off)

    Liz

  • mp327
    mp327 Member Posts: 4,440 Member
    #5
    Mom2MJ

    I would highly recommend you seek out another colorectal surgeon for your son to get a second opinion. 

  • Adam26
    Adam26 Member Posts: 125
    #6
    Agree

    I agree with the others: get a second opinion and don't be fobbed off. If there is anything, it's far better to locate it and treat it now than assume everything is OK. Like the others said, find somebody who specialises in anal cancer.

  • tanda
    tanda Member Posts: 174 Member
    #7
    Newly Diagnosed

    In general, for cancer or any other serious condition, your first shot is usually your best shot.  If at all possible, I would seek an opinion at one of the Comprehensive Cancer Centers or an academic or teaching hospital.  Most cancers are now treated by a multi-disciplinary team (surgeon, medical oncologist, radiation oncologist, pathologist,etc) ideally, all should be consulting on your case, and together present some treatment options.

    If it is not possible/convenient to be treated at a distant site, it is often possible for your drs to follow their recommendations.  Often people have radiation close by because of the daily/weekly sessions and maybe consult with a surgeon or medical oncologist elsewhere.  Anal cancer may be a little different because the chemo/rads are concurrent.

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