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New Dr.
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new dr.
That surgeons's comment is worrisome to me. It just does not make a whole lot of sense to me.
Have you explored these web sites?: <www.ucsfhealth.org/joel.palefsky> - works w/dysplasia & HPV
<www.analcancerfoundation.org>
<aboutcancer.com> see Robert Miller's you tube video on anal cancer
<http://analcancerhelp.info/the-anal-cancer-story.html> - lots of web sites listed w/in this site.
Look up your colorectal surgeon's profile & ck. out his area of interest. I have not been impressed w/mine.
Hope this helps. Others on this site will add to my thoughts. Check out The HPV & Anal Cancer Foundation web site too.
Please look at the entry below yours on this discussion board regarding a newly diagnosed person. It contains a whole lot of helpful information.
Nic
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Me toonicotianna said:new dr.
That surgeons's comment is worrisome to me. It just does not make a whole lot of sense to me.
Have you explored these web sites?: <www.ucsfhealth.org/joel.palefsky> - works w/dysplasia & HPV
<www.analcancerfoundation.org>
<aboutcancer.com> see Robert Miller's you tube video on anal cancer
<http://analcancerhelp.info/the-anal-cancer-story.html> - lots of web sites listed w/in this site.
Look up your colorectal surgeon's profile & ck. out his area of interest. I have not been impressed w/mine.
Hope this helps. Others on this site will add to my thoughts. Check out The HPV & Anal Cancer Foundation web site too.
Please look at the entry below yours on this discussion board regarding a newly diagnosed person. It contains a whole lot of helpful information.
Nic
It concerned me as well. I was prepared for many things but to be dismissed was not one of them.
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mom2MJMom2MJ said:Me too
It concerned me as well. I was prepared for many things but to be dismissed was not one of them.
if I was in your son's position, I would be looking for a colorectal surgeon who is experienced with Anal Cancer. A second opinion. also, use the NCCN site to guide you. I live in the UK, but used that information to ensure that my team was on track with my care. If they fell down, as in my follow up, I was able to demonstrate correct procedures. We have to be our own advocate. Our lives depend on it.
best wishes (& don't be fobbed off)
Liz
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Newly Diagnosed
In general, for cancer or any other serious condition, your first shot is usually your best shot. If at all possible, I would seek an opinion at one of the Comprehensive Cancer Centers or an academic or teaching hospital. Most cancers are now treated by a multi-disciplinary team (surgeon, medical oncologist, radiation oncologist, pathologist,etc) ideally, all should be consulting on your case, and together present some treatment options.
If it is not possible/convenient to be treated at a distant site, it is often possible for your drs to follow their recommendations. Often people have radiation close by because of the daily/weekly sessions and maybe consult with a surgeon or medical oncologist elsewhere. Anal cancer may be a little different because the chemo/rads are concurrent.
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