Happy New Year
Happy New Year to all and a year filled with more happiness and health. May the sun shine a little brighter in the new year. Thank you to my family here who has helped me throughout the years. You all are a wonderful group of people with a lot of knowledge, experience and hearts that are bigger than the Grand Canyon, and for that I'm so grateful.
Much love and gratitude! Kim
Comments
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Happy New Year!
May the New Year bring each of you, peace, happiness, and improved health.
Many thanks to the heads, hands and hearts who have reached out to all in need here.
Hugs and a New Year's smooch!
Marie who loves kitties
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Wishing the same
To you Kim. The kindness and empathy displayed here is a model of how support groups should and do work. Everytime a year finishes and a new one begins my first feeling is that of surprise. I must admit that I am doing it tougher each year. I have just bought a cpap machine. My test showed that in rem sleep my O2 levels were dropping below 80%. That really is not good. My doctor ordered me to stop driving until I started treatment. He expected miracles but i suspected otherwise. I have the best machine I can afford ,it has a heated tube ,a humidifier and a facility to record my results that can be uploaded via cloud to the sleep centre. I have acclimatised well to the mask and such. I am sleeping well. No nightmares and panic at not being able to get enough oxygen. But by 430 each morning I have slept enough and can't get back to sleep. The heat and humidity is killing me . Apart from the better sleep I am feeling as bad as I have ever felt. My pain levels have been helped by the targin (oxycodone and naloxone0 but I forgot to take my morning dose on tuesday and I thought I was going to die. I still have trouble with the opiate induced constipation and I really have to work at stayingon top of it. I cannot explain it to my doctor It is nothing specific I just feel totally unwell. Sometimes I ask myself if this is what it feels like to die. Our bodies cop a real hiding from the treatment, the cancer the long term side effects of bothand all of the drugs It takes to keep us alive. My friend say to me why don't you just stop taking them. My answer to them is simple , because I will die if I do. This month I finish year sixteen and start year seventeen of survival . I really don't know how much longer I want to go on. I suspect that It will not be my decision and that I will catch some nasty bug and my kidnies will fail. I have no fear of death or dying. I have spent nearly a third of my life under some sort of threat from illness I just hope that I can maintain my dignity to the end. I am feeling fragile at the moment I shall just have to see what 2015 brings. Ron. Thinking of you all and specially Craig who is doing it so tough , peace mate.
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HNYron50 said:Wishing the same
To you Kim. The kindness and empathy displayed here is a model of how support groups should and do work. Everytime a year finishes and a new one begins my first feeling is that of surprise. I must admit that I am doing it tougher each year. I have just bought a cpap machine. My test showed that in rem sleep my O2 levels were dropping below 80%. That really is not good. My doctor ordered me to stop driving until I started treatment. He expected miracles but i suspected otherwise. I have the best machine I can afford ,it has a heated tube ,a humidifier and a facility to record my results that can be uploaded via cloud to the sleep centre. I have acclimatised well to the mask and such. I am sleeping well. No nightmares and panic at not being able to get enough oxygen. But by 430 each morning I have slept enough and can't get back to sleep. The heat and humidity is killing me . Apart from the better sleep I am feeling as bad as I have ever felt. My pain levels have been helped by the targin (oxycodone and naloxone0 but I forgot to take my morning dose on tuesday and I thought I was going to die. I still have trouble with the opiate induced constipation and I really have to work at stayingon top of it. I cannot explain it to my doctor It is nothing specific I just feel totally unwell. Sometimes I ask myself if this is what it feels like to die. Our bodies cop a real hiding from the treatment, the cancer the long term side effects of bothand all of the drugs It takes to keep us alive. My friend say to me why don't you just stop taking them. My answer to them is simple , because I will die if I do. This month I finish year sixteen and start year seventeen of survival . I really don't know how much longer I want to go on. I suspect that It will not be my decision and that I will catch some nasty bug and my kidnies will fail. I have no fear of death or dying. I have spent nearly a third of my life under some sort of threat from illness I just hope that I can maintain my dignity to the end. I am feeling fragile at the moment I shall just have to see what 2015 brings. Ron. Thinking of you all and specially Craig who is doing it so tough , peace mate.
Happy new year to you all, too. All the best to everyone in 2015.
something funny happened to me... last night I watched the ball drop. I have done this nearly every year since I was a kid. Well, I usually count down from 10, watch the thing drop, sing a few bars of Auld Lang Syne and then turn off the TV and go to bed. Or when I was younger, I'd turn off the TV and continue to party. Well, this year, I got interrupted and did not turn off the TV. Well, lo and behold, there's a whole after show on **** Clark that I never knew about. And fireworks, too. Who knew? So I watched a bit more of it and then went to bed. A lifetime first.
cheers to you all
Karin
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Happy
New Year to everyone. Thank you all for the support, encouragement and words of wisdom. Here's to a healthy 2015! To all who are NED may you stay that way and to those who are battling may this fresh start be a turning point back to health. The head of MD Anderson believes a cure will be found in his lifetime, why not 2015? Why not?!?!
Easyflip/Richard
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