Cetuximab

Sonja.K
Sonja.K Member Posts: 80 Member
in Head and Neck Cancer #1

I dug and dug through papers I had received and hid away and found the name of the clinical trial drug that was presented by my team.  I signed the paperwork to participate but am able to change my mind.  It is called Cetuximab.  Has anyone had any experiences with this drug?

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    There are several folks here

    who got Cetuximab (Erbitux).....I said the other day that it always surprises me that it's a "clinical trial" chemo, since so many have had it.  I wasn't one, tho.....I had Cisplatin. Cetuximab is easier on the body, and aside from an acne like rash, people generally feel better than when on Cisplatin.

    You'll be hearing from those who got the Cetuximab.

    p

  • Sonja.K
    Sonja.K Member Posts: 80 Member
    #3
    phrannie51 said:

    There are several folks here

    who got Cetuximab (Erbitux).....I said the other day that it always surprises me that it's a "clinical trial" chemo, since so many have had it.  I wasn't one, tho.....I had Cisplatin. Cetuximab is easier on the body, and aside from an acne like rash, people generally feel better than when on Cisplatin.

    You'll be hearing from those who got the Cetuximab.

    p

    A little funny

     

    I think I remember the Clinical trial nurse telling me that is was a successful treatment for Colo-rectal cancer and there was a lot of good results with Oral cancer.  It is still in the Clinical trial phase for Oral.  Does anyone else find it a little funny that the same drug is having success with Rectal and Oral Cancers?

    Thank you P, I look forward to hearing from people.   You are so supportive and helpful, it means much.  Its a beautiful autumn day here,  off the technology and onward to enjoying the day!  Happy Thursday!  

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #4
    Erbitux

    Sonja,

    I am an Erbitux recipient………… so far so good.

    2y6m post, stage IVa, scc, bot, 1 lymph node, hpv+ (surgery, rads, Erbitux).

    Erbitux is included in a number of drugs for a number of cancers.

    Matt

  • Sonja.K
    Sonja.K Member Posts: 80 Member
    #5
    CivilMatt said:

    Erbitux

    Sonja,

    I am an Erbitux recipient………… so far so good.

    2y6m post, stage IVa, scc, bot, 1 lymph node, hpv+ (surgery, rads, Erbitux).

    Erbitux is included in a number of drugs for a number of cancers.

    Matt

    Thank you Matt.  I think I am

    Thank you Matt.  I think I am going to go ahead and try it.  

  • donfoo
    donfoo Member Posts: 1,773 Member
    #6
    fine print...

    Hi,

    Please read the fine print. Erbitux is past phase III trials as it is regularly deployed as a chemo for SCC oral cancer treatment. There are many. many trails that are testing for different things. It might be a deescalation trial and one needs to ask themselves if they want to be a test pilot.

    Make absolutely certain you fully understand the entire scope of the trail and what you are subjecting yourself too. Some are OK with being used in experiments, others are more comfortable sticking with proven accepted therapies.

  • Sonja.K
    Sonja.K Member Posts: 80 Member
    #7
    donfoo said:

    fine print...

    Hi,

    Please read the fine print. Erbitux is past phase III trials as it is regularly deployed as a chemo for SCC oral cancer treatment. There are many. many trails that are testing for different things. It might be a deescalation trial and one needs to ask themselves if they want to be a test pilot.

    Make absolutely certain you fully understand the entire scope of the trail and what you are subjecting yourself too. Some are OK with being used in experiments, others are more comfortable sticking with proven accepted therapies.

    fine print...

    Thank you Donfoo.  I copied your advice and information and sent it to my doc, I shall see what he states on Monday.  I appreciate your help, I do not even know what questions to ask most of the time and there is so much information I do not know what to believe. 

  • yensid683
    yensid683 Member Posts: 349
    #8
    I had

    7 weeks of erbitus/cituximab and had no real problems with it beyond the acne like rash.  Kind of embarassing for a 58 year old man.

    I also had my eyelashes grow out to an incredible length!  My wife and daughters were jealous!

    All in all, it was so much easier to deal with compared with the Taxotere, Cisplatin and 5FU!

    Hope all goes well for you

  • txpipeliner
    txpipeliner Member Posts: 33
    #9
    yensid683 said:

    I had

    7 weeks of erbitus/cituximab and had no real problems with it beyond the acne like rash.  Kind of embarassing for a 58 year old man.

    I also had my eyelashes grow out to an incredible length!  My wife and daughters were jealous!

    All in all, it was so much easier to deal with compared with the Taxotere, Cisplatin and 5FU!

    Hope all goes well for you

    erbitux(cituximab)

    i have had 3 treatments so far,no side efects that ican tell.i am supposed to have 2 more then see dr.'s.

  • hope3210
    hope3210 Member Posts: 27
    #10
    Hi ,
     
    Myfather had BIOMAB

    Hi ,

     

    Myfather had BIOMAB its a similar type of Monoconal anti body.These antibodies are easier than usual platinums.I had read that with Radiation Cetuximab gives good result.

     

    Thanks

  • hwt
    hwt Member Posts: 2,328 Member
    #11
    hope3210 said:

    Hi ,
     
    Myfather had BIOMAB

    Hi ,

     

    Myfather had BIOMAB its a similar type of Monoconal anti body.These antibodies are easier than usual platinums.I had read that with Radiation Cetuximab gives good result.

     

    Thanks

    Erbium

    I did Cisplatin in 2012. Two recurrences then erbitux and taxol. Last two PETS clean? Side effects much easier with erbitux. Light rash and lost hair.

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