Necrosis how to stop it

Thank you for posting and thank your daughter for her research.  I guess I had better start the oil pulling, we've talked enough about it!

Tim,

The funniest things can sometimes help.

Good luck,

Matt  

I am very much watching and following any ideas on how to slow down or stop the ugly necrosis. 

last july they found active ORN on the lower right hand jaw bone, since then it has either stopped or slowed down very slow. doc's can not explain it and certainly thrilled. 

last month it was noticed during a visit to dentist what appears to be start of ORN on the lower left side jaw bone. again we are watching closely. this also is progressing slow.

Tim, for sure praying what ever you do to stop the progression helps. thanks for keeping us up to date.

john  

Hope your doctor can find a way to fix the problem. God will be still with you. I have your concern put into my prayer. Please keep updates.

CajunEagle said:

Dr. Anna Pou

Tim, wish you could have been connected with Anna much earlier during this journey.  She is the greatest, and literally saved my life during a period of time of many legal battles that she was going through.  Might want to Google her name and read up on an amazing person.  I've been seeing her from the onset of my treatment five years ago.  It's now every six months, and never mind having her doing the exams.  I'm sure she will help you in some capacity, and tell her Larry L. says "Hi".

Can you please tell me a bit more about Coconut Oil Pulling and Raw Honey?

Best wishes for a permanent resolution for you.

Hey Tim:

Not sure where you're having problems with necrosis - usually relates to a breakdown in bone due to a compromised blood supply. Radiation treatment is usually the cause. Infections can certainly cause problems because of that compromised blood supply. You may be able to stop the infection - but I think the necrosis can be an ongoing problem and needs to be stopped.

Hyperbaric Oxygen (HBO) Treatment is highly recommended. I went thru it myself for necrosis of my basal skull where the tumor was located. Basically you're placed in a chamber and then pure oxygen is fed in under pressure. Treatments are about 90 minutes at time and depending on the nature of the necrosis, usually 40 treatments are the standard.

HBO is highly successful at stopping tissue breakdown since you are getting much needed nutrients to the affected area. There is some possibility of regrowth and even rebuilding of the blood supply.

This is an approved therapy and most likely covered by insurance.

Look into it as a possibility and also speak to your physician about it.

Hope this helps.

- Jeff

CajunEagle said:

Dr. Anna Pou

Tim, wish you could have been connected with Anna much earlier during this journey.  She is the greatest, and literally saved my life during a period of time of many legal battles that she was going through.  Might want to Google her name and read up on an amazing person.  I've been seeing her from the onset of my treatment five years ago.  It's now every six months, and never mind having her doing the exams.  I'm sure she will help you in some capacity, and tell her Larry L. says "Hi".

My husband, too sees Dr. Pou and we absolutely love her.  She is an angel on Earth.  CajunEagle, do you see her in Baton Rouge?  We see her at Mary Bird every three months.  She treats all her patients like they're one of her family.

Hondo said:

Hi John

After seeing the hole growing and growing and my doctors at a standstill on what to do I knew I had to try something to stop it. I go to see the new ENT in Baton Rouge this morning and see what she is going to say, I am gust glad it stopped.

PS: I found an old post here on CSN that might also give some help with the ORN problem.

 

http://csn.cancer.org/node/162367

 

If nothing else try the raw honey and coconut oil, I am also using it to brush my teeth with at night. My daughter made me some toothpaste and so far it is not too bad at all. If you do the Oil Pulling at night remember do not rinse your mouth after to spit it all out, leave the oil in there and go to bed.

 

I hope you get some help and relief from it

Tim Hondo

If nothing else try the raw honey and coconut oil, I am also using it to brush my teeth with at night. My daughter made me some toothpaste and so far it is not too bad at all. If you do the Oil Pulling at night remember do not rinse your mouth after to spit it all out, leave the oil in there and go to bed.

I wonder about leaving honey in the mouth all night. Honey is basically sugar and we sure would not suck on candy or eat a candy bar and go to sleep. Did a short dive to get the science take and it seems you may want to reconsider using the honey. Jury still out on the coconut oil.-))

Mayo

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