Off to Stanford 7/16 chemoemobilization

13»

Comments

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #42
    Nana b said:

    Stanford link.

    http://stanfordhospital.org/clinicsmedServices/medicalServices/interventionalRadiology/forms/1ChemoembolizationPrep.docx

    I hope you get some sort of

    I hope you get some sort of resolution tomorrow that you are comfortable with. You seem to be in such a similar situation as I am. Every treatment decision at this point is so critical yet the doctors cant agree because they are not sure. Its a crap shoot. I say that to my wife all of the time now. Every decision is like placing a bet in Vegas except we are gambling with our lives instead of money. To make matters worse i have never been a gambler. Ive been to Vegas a couple of times for business and hated it.

    Sorry to get off subject. I will pray that you get a more clear picture tomorrow.

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #43
    CXB

    Nana, have you thought about some flavor of ADAPT (like adding celecoxib to maintenance chemo) or at least getting evaluated for follow on?  

     

  • Nana b
    Nana b Member Posts: 3,030 Member
    #44
    tanstaafl said:

    CXB

    Nana, have you thought about some flavor of ADAPT (like adding celecoxib to maintenance chemo) or at least getting evaluated for follow on?  

     

    All is good.

    Getting discharged. Very mild pain.   may come back in 4 weeks to do again if still there.  They will need to see scans 

     

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #45
    Nana b said:

    All is good.

    Getting discharged. Very mild pain.   may come back in 4 weeks to do again if still there.  They will need to see scans 

     

     

    That is great. I am glad you

    That is great. I am glad you were able to get the treatment done.

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #46
    Nana b said:

    All is good.

    Getting discharged. Very mild pain.   may come back in 4 weeks to do again if still there.  They will need to see scans 

     

     

    Mild pain

    I'm so glad it's just minor pain. Keeping you in my prayers. 

  • Helen321
    Helen321 Member Posts: 1,460 Member
    #47
    Nana b said:

    All is good.

    Getting discharged. Very mild pain.   may come back in 4 weeks to do again if still there.  They will need to see scans 

     

     

    Hi Nana, Glad the pain is

    Hi Nana, Glad the pain is mild.  I hope it's gone by today already.  Let's just pray that there is no need to come back in 4 weeks!   

  • Nana b
    Nana b Member Posts: 3,030 Member
    #48
    Helen321 said:

    Hi Nana, Glad the pain is

    Hi Nana, Glad the pain is mild.  I hope it's gone by today already.  Let's just pray that there is no need to come back in 4 weeks!   

    Thank you.   Im on pain

     

     

    I'm on pain pills, anti nausea pills and Decolax to prevent constipation.  I feel good. Will go back in 5 weeks to follow up and see if it worked or get another Procedure. 

     

    Found  out that the cyber knife team wants my lesions in my lungs to grow a bit more before they do that procedure as right now they are stagnant. Good but, wanted them out. 

     

    So no chemo, or they may get smaller  The chemo would also keep them from finding out if chemoemobilization is working on my liver. 

     

    The two lesions on my lymph nodes are also not growing , but they are the hiway to my other organs.  I have to keep in mind that my chemo wasn't working either. 

     

    Prayers for Winter who is in a lot of pain, and JBG who is near the end, and me who is preparing for procedures to come.  God bless us all.  

     

     

  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #49
    Nana b said:

    Thank you.   Im on pain

     

     

    I'm on pain pills, anti nausea pills and Decolax to prevent constipation.  I feel good. Will go back in 5 weeks to follow up and see if it worked or get another Procedure. 

     

    Found  out that the cyber knife team wants my lesions in my lungs to grow a bit more before they do that procedure as right now they are stagnant. Good but, wanted them out. 

     

    So no chemo, or they may get smaller  The chemo would also keep them from finding out if chemoemobilization is working on my liver. 

     

    The two lesions on my lymph nodes are also not growing , but they are the hiway to my other organs.  I have to keep in mind that my chemo wasn't working either. 

     

    Prayers for Winter who is in a lot of pain, and JBG who is near the end, and me who is preparing for procedures to come.  God bless us all.  

     

     

    You, winter use, and JBG are in my Prayers

    Nana 

    so happy you were able to have treatments. Prayers for our CC friends who need our prayers.

    NB

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #50
    Nana b said:

    Thank you.   Im on pain

     

     

    I'm on pain pills, anti nausea pills and Decolax to prevent constipation.  I feel good. Will go back in 5 weeks to follow up and see if it worked or get another Procedure. 

     

    Found  out that the cyber knife team wants my lesions in my lungs to grow a bit more before they do that procedure as right now they are stagnant. Good but, wanted them out. 

     

    So no chemo, or they may get smaller  The chemo would also keep them from finding out if chemoemobilization is working on my liver. 

     

    The two lesions on my lymph nodes are also not growing , but they are the hiway to my other organs.  I have to keep in mind that my chemo wasn't working either. 

     

    Prayers for Winter who is in a lot of pain, and JBG who is near the end, and me who is preparing for procedures to come.  God bless us all.  

     

     

    God Bless You

    My thoughts and prayers are with you.  Wishing you could get those out as well so you could be done with it but just know you are being thought of and prayed for. JBG is always in my thoughts and prayers as well as all of us.  I'm so sorry she is where she is at though.  My heart breaks for all who is going through this fight.

    Kim

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #51
    Nana b said:

    Thank you.   Im on pain

     

     

    I'm on pain pills, anti nausea pills and Decolax to prevent constipation.  I feel good. Will go back in 5 weeks to follow up and see if it worked or get another Procedure. 

     

    Found  out that the cyber knife team wants my lesions in my lungs to grow a bit more before they do that procedure as right now they are stagnant. Good but, wanted them out. 

     

    So no chemo, or they may get smaller  The chemo would also keep them from finding out if chemoemobilization is working on my liver. 

     

    The two lesions on my lymph nodes are also not growing , but they are the hiway to my other organs.  I have to keep in mind that my chemo wasn't working either. 

     

    Prayers for Winter who is in a lot of pain, and JBG who is near the end, and me who is preparing for procedures to come.  God bless us all.  

     

     

    I am in the same boat as you

    I am in the same boat as you are when it comes to cyberknife. A few months ago i got opinions from 4 different radiologist abou my chestwall lesions. They all said they were too small at that point. My last scan showed 3 were gone one stable and one shrunk. So like you i have to live with them for now but at least they are not growing or spreading at this time. The main focus again like you is my liver.

  • Nana b
    Nana b Member Posts: 3,030 Member
    #52
    janderson1964 said:

    I am in the same boat as you

    I am in the same boat as you are when it comes to cyberknife. A few months ago i got opinions from 4 different radiologist abou my chestwall lesions. They all said they were too small at that point. My last scan showed 3 were gone one stable and one shrunk. So like you i have to live with them for now but at least they are not growing or spreading at this time. The main focus again like you is my liver.

    Janderson so you are in chemo

    Janderson so you are in chemo now? 

Discussion Boards