Off to Stanford 7/16 chemoemobilization

Nana b

Well it's 3 am and I can't sleep. The Stanford board declined me, not a good candidate (Stage 4) but they did make me an appointment with one of their had doctors, who had a cancellation, that sit's on the board. Wish me luck. I drive to Stanford in the a.m., ah, in several hours. 

 

You out would think they would want to see Stage 4's, to see if anything can be done, instead of sweeping us under the carpet. 

 

betina61

Hi nana b, its a long time

Hi nana b, its a long time for me that I don't come to this board, and the first message I see is your picture with your beatiful smile, I remember you very well, and be sure I will be praying that your visit at Stanford be a positive one for you.

Betina

 

Annabelle41415

Doctor

I'm hoping that this doctor can give you some good advice and a plan in a direction that will help you.  Prayers that you come away from the appointment with renewed hope.  All the best and let us know how it goes.

Kim

Yolllmbs

Stanford bound

Happy you get to see one of their staff doctors. Hopefully they will yave a plan. Prayers. 

 

Trubrit

Wishing you well

I am sorry that they have turned you down for a treatment plan, but hoping that maybe, this Dr. will reverse that and get you onto one. 

Safe travels. I hope you are driving with someone. It is not good to drive on such little sleep. 

Nana b

Trubrit said:

Wishing you well

I am sorry that they have turned you down for a treatment plan, but hoping that maybe, this Dr. will reverse that and get you onto one. 

Safe travels. I hope you are driving with someone. It is not good to drive on such little sleep. 

Thank you all. My husband,

Thank you all. My husband, Steve is driving me.  its terrible when you can't shut your brain off. You think you are going under and nada, then it's too late to take a sleeping pill.   I was working growing through ONC notes and doing a summary for Dr Kunz.   I want her to have the whole picture in front of her. 

 

Staying Strong! 

Betima,  great to see your face. Hope all is well

Lisa2012

Hope your day is going well

Nana,

so interesting to me the  difference of opinion that exists.   I am a stage IV patient too, and the doctors here (in Chicago) have never used that as a reason for non-treatment.

i hope that your day is going well and that you are getting some answers

 

lisa

Nana b

Lisa2012 said:

Hope your day is going well

Nana,

so interesting to me the  difference of opinion that exists.   I am a stage IV patient too, and the doctors here (in Chicago) have never used that as a reason for non-treatment.

i hope that your day is going well and that you are getting some answers

 

lisa

routime is that if you have

routime is that if you have active mets in more then one organ they won't do surgery. But if chemo knocks one out, you are good. However, if chemo stops working,we are on dep kimchi.  I heard kimchi is good for platelets   I have low platelets so haven't received chemo in a month. 

Lisa2012

Nana b said:

routime is that if you have

routime is that if you have active mets in more then one organ they won't do surgery. But if chemo knocks one out, you are good. However, if chemo stops working,we are on dep kimchi.  I heard kimchi is good for platelets   I have low platelets so haven't received chemo in a month. 

I didn't know that

Thanks, I hope your platelets respond well and then you can move forward in the future.

Nana b

Lisa2012 said:

I didn't know that

Thanks, I hope your platelets respond well and then you can move forward in the future.

Labs then done for today

Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

Cathleen Mary

Nana b said:

Labs then done for today

Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

What a difference 24 hours

What a difference 24 hours can make!   A plan with hope!  Blessings and good wishes as you move forward.  

Take a deep breath....

hugs,

CM

herdizziness

Nana b said:

Labs then done for today

Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

Whoop Whoop

A woman with a plan!  Just WONDERFUL!!!!!!!

Winter Marie

Trubrit

Nana b said:

Labs then done for today

Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

I can see your smile

This is good news. Scary maybe, but good. I think its great that they are getting right on it, no time to get too jittery. Thanks for keeping us updates so quickly. 

My prayers are with you. 

Yolllmbs

A plan!

I know it's a tough road but it sounds like a great plan!  Hope your recovery is swift!

Kathleen808

A plan!

Sounds like a good plan Nana! Thinking of you. 

 

Aloha,

Kathleen

lilacbrroller

Kathleen808 said:

A plan!

Sounds like a good plan Nana! Thinking of you. 

 

Aloha,

Kathleen

Good luck

Hope it all goes well. Good luck!

- Karin

traci43

Nana b said:

Labs then done for today

Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

Awesome news!

You've got a game plan, thats great.  I really hope things work out for you and you can get off the chemo bandwagon.  Traci

janderson1964

Definately a good plan. I

Definately a good plan. I looked extensively into cyberknife and got opinions at 3 hospitals. I will most likely be doing cyberknife on the chestwall mets after i get through y90.

kennyt

Nana b said:

Labs then done for today

Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

Who are you seeing at

Who are you seeing at stanford? I had Daniel Chang thought he was a great guy.  I'm getting sbrt on two lung spots now, 1 down three to go.

 

Good luck

Nana b

I'm seeing Dr Kunz. Very nice

I'm seeing Dr Kunz. Very nice lady. In charge of many trials, which she putb my name down for. I loved Stanford and all their hidden gardens.  I sat out in one of the gardens with Winter.   Great meeting her.

 

The Stanford staff are all driven in customer service, very impressed. 

 

Thank you all so much, I am excited about this. 

impactzone

Nothing but good wishes from

Nothing but good wishes from me. My onc there is Dr Fisher and he has been great but super busy. They all seem so swamped.

Chip