Please post some supportive words for Wolfen's daughter JBG!

Wolfen and jbg,

Continued love and prayers are still being given to you. 

With love and aloha,

Kathleen

I just wanted to say that you and JBG and all of your family are in my prayers. You have both made a giant impression and have been giant blessings to me. Please take care, barb

JBG is an amazing woman and I can see who she gets it from.  Thank you for sharing those difficult details.  You both stay on my mind all day.  I send you love and pray for peace.

Aloha,

Kathleen

wolfen said:

Update on Johnnybegood

My precious girl is still in the fight, but her strength is failing. We did receive the hoped for, but brief miracle that enabled her to enjoy a tiny bit of her birthday celebration. Sunday thru Tuesday were not good days. Her pain meds were increased & she was put on continous oxygen. She again had a 24 hr, prognosis. She had trouble breathing & oxygen machine is now at max. She is no longer removed from her favorite chair as it is too painful & she refuses a hospital bed. As she remains a litle bit coherent, she refuses an increase in her continuous med dosage as I know she fears she will not awaken which is likely the case. Someone must remain awake with her 24/7 to administer the bolus dose every 20 min. Her husband, his mother & I share this responsibility. She consumes only jello, water, & gatorade by the half teaspoonful as that is all she can swallow.

As we old timers know, we are not stamped with an expiration date, so a prognosis means nothing. We simply go from hour to hour. I hope this is not TMI, but thought you all would want to know. I have told her that all of you are sending love & prayers.

She is very frightened as anyone would be, & I am once again helpless & in awe of her strength & determination.

Luv,

Wolfen

<<HUGS>> to all of you. I can't imagine how difficult this is on you, as a mom. Please send her our love. I keep praying for a miracle!

Lin

wolfen said:

Update on Johnnybegood

My precious girl is still in the fight, but her strength is failing. We did receive the hoped for, but brief miracle that enabled her to enjoy a tiny bit of her birthday celebration. Sunday thru Tuesday were not good days. Her pain meds were increased & she was put on continous oxygen. She again had a 24 hr, prognosis. She had trouble breathing & oxygen machine is now at max. She is no longer removed from her favorite chair as it is too painful & she refuses a hospital bed. As she remains a litle bit coherent, she refuses an increase in her continuous med dosage as I know she fears she will not awaken which is likely the case. Someone must remain awake with her 24/7 to administer the bolus dose every 20 min. Her husband, his mother & I share this responsibility. She consumes only jello, water, & gatorade by the half teaspoonful as that is all she can swallow.

As we old timers know, we are not stamped with an expiration date, so a prognosis means nothing. We simply go from hour to hour. I hope this is not TMI, but thought you all would want to know. I have told her that all of you are sending love & prayers.

She is very frightened as anyone would be, & I am once again helpless & in awe of her strength & determination.

Luv,

Wolfen

I am amazed at her strength, and also yours! 

I am wrapping my arms around all of you!

Hugs, Kathi

wolfen said:

Update on Johnnybegood

My precious girl is still in the fight, but her strength is failing. We did receive the hoped for, but brief miracle that enabled her to enjoy a tiny bit of her birthday celebration. Sunday thru Tuesday were not good days. Her pain meds were increased & she was put on continous oxygen. She again had a 24 hr, prognosis. She had trouble breathing & oxygen machine is now at max. She is no longer removed from her favorite chair as it is too painful & she refuses a hospital bed. As she remains a litle bit coherent, she refuses an increase in her continuous med dosage as I know she fears she will not awaken which is likely the case. Someone must remain awake with her 24/7 to administer the bolus dose every 20 min. Her husband, his mother & I share this responsibility. She consumes only jello, water, & gatorade by the half teaspoonful as that is all she can swallow.

As we old timers know, we are not stamped with an expiration date, so a prognosis means nothing. We simply go from hour to hour. I hope this is not TMI, but thought you all would want to know. I have told her that all of you are sending love & prayers.

She is very frightened as anyone would be, & I am once again helpless & in awe of her strength & determination.

Luv,

Wolfen

Wolfen,

At a time like this words cannot express enough our thoughts and feelings.  Just know that you are all in my thoughts and prayers.

God Bless,

J

I would like to echo Marie's hope that JBG can find a peace of heart and mind to replace her fear.  Is there a spiritual presence with the care team?  

You and your family are remarkable and a model for the support I would like.

Peace, comfort, and strength as you tend to JBG.

Art

alexinlv said:

Much love to JBG! Prayers and

Much love to JBG! Prayers and sending good thoughts and energy to her and her family! 

My heart hurts for all of you. So much love among you, it is palpable even in cyberspace.  Prayers for peace and strength.

Hugs,

CM

wolfen said:

Update on Johnnybegood

My precious girl is still in the fight, but her strength is failing. We did receive the hoped for, but brief miracle that enabled her to enjoy a tiny bit of her birthday celebration. Sunday thru Tuesday were not good days. Her pain meds were increased & she was put on continous oxygen. She again had a 24 hr, prognosis. She had trouble breathing & oxygen machine is now at max. She is no longer removed from her favorite chair as it is too painful & she refuses a hospital bed. As she remains a litle bit coherent, she refuses an increase in her continuous med dosage as I know she fears she will not awaken which is likely the case. Someone must remain awake with her 24/7 to administer the bolus dose every 20 min. Her husband, his mother & I share this responsibility. She consumes only jello, water, & gatorade by the half teaspoonful as that is all she can swallow.

As we old timers know, we are not stamped with an expiration date, so a prognosis means nothing. We simply go from hour to hour. I hope this is not TMI, but thought you all would want to know. I have told her that all of you are sending love & prayers.

She is very frightened as anyone would be, & I am once again helpless & in awe of her strength & determination.

Luv,

Wolfen

These last few days I have been thinking of JBG, I know this is such a dreadful sickness that many on this board face and knowing that we all at some point die of many causes even old age, if we are lucky enough to get to grow old that is. Even still many grow old and alone , not all do , but many.YOU HAVE SO MANY PEOPLE WHO LOVE YOU AND THAT IS A BLESSING! I have read so many post on how JBG has touched so many people and gave them courage to continue on despite their  on personal fear is just so amazing to me. No doubt she has been in many prayers , I know she has mine. I hope you fine rest and peace, JBG . Asking God to wrap his arms around you and carry you home little one!!! GOD BLESS

Kathleen808 said:

Wolfen

JBG is an amazing woman and I can see who she gets it from.  Thank you for sharing those difficult details.  You both stay on my mind all day.  I send you love and pray for peace.

Aloha,

Kathleen

The last words my Mom spoke was that her Dad was in the room.  He passed when she was 16.  I hope this gives her comfort that she is not alone. Her spirit will live forever. 

Praying.