treatments postponed till August 4.. i think im ready :)

CivilMatt said:

get ready

Goyca,

The further you travel this road the more you drift from normalcy.  Not to fear, your emotional side will only get stronger (mine did).

Be tough and get rid of cancer!

Matt

Goyca, good luck mate, Gary

Not fun but doable.  You might look at the Superthread for things that you might want to have handy before radiation starts.  Hair loss is usually in the area of radiation and exit site.  I lost about 1 inch in the back of my head but it grew back.  Eyebrows have been slower to return.  You might check with your team and see if you can use a sinus rinse.  You will be tired, your taste may go, you might get sores in your mouth.  Keep an eye on the skin burn, you need to go to radiation with clean skin, no cream, but you will want to cream up after, like as soon as you get home.  Techs will probably give you some cream, I liked Aquaphor, it is greasy but worked for me.  Phrannie used Calendula cream (in baby section for diaper area).  If the burn gets bad there is a prescription that you can ask for, Silvadine, works miracles.  Eat what you want now, you will probably loose weight during treatment.  Ask questions as you go along, new things arise daily.  We are here to help.

goyca, i'm glad the plan is finally in place and you know what to expect.  you will be so busy with appointments that the time will go quickly and you will be ringing the bell before you know it.  we will be on the sidelines cheering you on!  if you listen closely, you will hear us yelling...lol.  praying for smooth sailing thru tx and look forward to doing the happy dance when you are done!!

God bless you,

dj

I am NPC so all my treatment was in the sinus area like anything it has its problems but you will like all the rest of us make it through just keep focus and keep positive. I worked through all my treatment but the people I work for understood my needs and sometimes I would come in and do nothing but sleep on my desk and someone would wake me up when it was time to go home. It kept my mind active and gave me something to look forward to rather than going home to think about my problems.

Just remember we are all here for you anytime and will cheer you through the finish line.

Tim Hondo    

Goyca said:

bJohn ... glad u read my post

i hope ur husband stays healthy and strong. I have low grade olfactory Neuroblastoma. I appreciate u sharing some info with me. Was the treatment painful? And could ur husband go to work during treatment ?

Hello

My husband was able to do a little work from home. Fatique was the bigest factor. the treatments are painless but the mouth can get sore. Keeping the skin lubricated when at home is very important. I don't think he lost any hair from the rads and he had some of it to his skull area also. Hope all goes well and very quickly!

you mentioned hair loss due to rads. You only lose the hair in the line of the rads. I lost the back hair at the base line to the bottom of the ear. My hair is cut in a shotrt bob so it covered it, I didn't think it would ever grow back but one day running my hand under my hair I could feel fluff growing now it's grown back dark and curly, that might sound fine but I'm silver haired and straight. I'm two toned at the back straight silver with almost black curls underneath. My family joke I should have had my head shaved then I'd have a dark and curly hairstyle. Not that I want dark and curly it's taken me many years to grow silver hair. Funny thing is for years I'd dye my hair blonde and when I stopped dying it, it was silver and didn't look any different to when I dyed it. 

jackflash22 said:

Hair loss

you mentioned hair loss due to rads. You only lose the hair in the line of the rads. I lost the back hair at the base line to the bottom of the ear. My hair is cut in a shotrt bob so it covered it, I didn't think it would ever grow back but one day running my hand under my hair I could feel fluff growing now it's grown back dark and curly, that might sound fine but I'm silver haired and straight. I'm two toned at the back straight silver with almost black curls underneath. My family joke I should have had my head shaved then I'd have a dark and curly hairstyle. Not that I want dark and curly it's taken me many years to grow silver hair. Funny thing is for years I'd dye my hair blonde and when I stopped dying it, it was silver and didn't look any different to when I dyed it. 

Hey JF, I had my hair come back after rads curly also.  Have never had curly hair before.  That was in 2007.

Now, after this new cancer - which I didn't have rads or chemo - I have curly hair again. I usually keep it short, but I'm enjoying the curls too much.  However, this last cancer did a whooper to my body - and I have so much more gray than I did before. 

Lorna

2007 & 2014

Goyca said:

morning or evening?

guys which is better taking the rad sessions in the mornings or evenings ??

 

thanks.

Goyca.

I've done this stuff 4 times, always in the a.m.  Cyberknife was at 11:45 a.m.  By the time I got home I was ready to nap, I don't know if I would be able to make it to late radiation treatments.  Oh, I did have one late radiation because chemo took so long when I had a substitute nurse.  Just my opinion.