Off to Stanford 7/16 chemoemobilization

Nana b
Nana b Member Posts: 3,030 Member
edited July 2014 in Colorectal Cancer #1

Well it's 3 am and I can't sleep. The Stanford board declined me, not a good candidate (Stage 4) but they did make me an appointment with one of their had doctors, who had a cancellation, that sit's on the board. Wish me luck. I drive to Stanford in the a.m., ah, in several hours. 

 

You out would think they would want to see Stage 4's, to see if anything can be done, instead of sweeping us under the carpet. 

 

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Comments

  • betina61
    betina61 Member Posts: 642 Member
    #2
    Hi nana b, its a long time

    Hi nana b, its a long time for me that I don't come to this board, and the first message I see is your picture with your beatiful smile, I remember you very well, and be sure I will be praying that your visit at Stanford be a positive one for you.

    Betina

     

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #3
    Doctor

    I'm hoping that this doctor can give you some good advice and a plan in a direction that will help you.  Prayers that you come away from the appointment with renewed hope.  All the best and let us know how it goes.

    Kim

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #4
    Stanford bound

    Happy you get to see one of their staff doctors. Hopefully they will yave a plan. Prayers. 

     

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #5
    Wishing you well

    I am sorry that they have turned you down for a treatment plan, but hoping that maybe, this Dr. will reverse that and get you onto one. 

    Safe travels. I hope you are driving with someone. It is not good to drive on such little sleep. 

  • Nana b
    Nana b Member Posts: 3,030 Member
    #6
    Trubrit said:

    Wishing you well

    I am sorry that they have turned you down for a treatment plan, but hoping that maybe, this Dr. will reverse that and get you onto one. 

    Safe travels. I hope you are driving with someone. It is not good to drive on such little sleep. 

    Thank you all. My husband,

    Thank you all. My husband, Steve is driving me.  its terrible when you can't shut your brain off. You think you are going under and nada, then it's too late to take a sleeping pill.   I was working growing through ONC notes and doing a summary for Dr Kunz.   I want her to have the whole picture in front of her. 

     

    Staying Strong! 

    Betima,  great to see your face. Hope all is well

  • Lisa2012
    Lisa2012 Member Posts: 142
    #7
    Hope your day is going well

    Nana,

    so interesting to me the  difference of opinion that exists.   I am a stage IV patient too, and the doctors here (in Chicago) have never used that as a reason for non-treatment.

    i hope that your day is going well and that you are getting some answers

     

    lisa

  • Nana b
    Nana b Member Posts: 3,030 Member
    #8
    Lisa2012 said:

    Hope your day is going well

    Nana,

    so interesting to me the  difference of opinion that exists.   I am a stage IV patient too, and the doctors here (in Chicago) have never used that as a reason for non-treatment.

    i hope that your day is going well and that you are getting some answers

     

    lisa

    routime is that if you have

    routime is that if you have active mets in more then one organ they won't do surgery. But if chemo knocks one out, you are good. However, if chemo stops working,we are on dep kimchi.  I heard kimchi is good for platelets  :) I have low platelets so haven't received chemo in a month. 

  • Lisa2012
    Lisa2012 Member Posts: 142
    #9
    Nana b said:

    routime is that if you have

    routime is that if you have active mets in more then one organ they won't do surgery. But if chemo knocks one out, you are good. However, if chemo stops working,we are on dep kimchi.  I heard kimchi is good for platelets  :) I have low platelets so haven't received chemo in a month. 

    I didn't know that

    Thanks, I hope your platelets respond well and then you can move forward in the future.

  • Nana b
    Nana b Member Posts: 3,030 Member
    #10
    Lisa2012 said:

    I didn't know that

    Thanks, I hope your platelets respond well and then you can move forward in the future.

    Labs then done for today

    Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #11
    Nana b said:

    Labs then done for today

    Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

    What a difference 24 hours

    What a difference 24 hours can make!   A plan with hope!  Blessings and good wishes as you move forward.  

    Take a deep breath....

    hugs,

    CM

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #12
    Nana b said:

    Labs then done for today

    Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

    Whoop Whoop

    A woman with a plan!  Just WONDERFUL!!!!!!!

    Winter Marie

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #13
    Nana b said:

    Labs then done for today

    Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

    I can see your smile

    This is good news. Scary maybe, but good. I think its great that they are getting right on it, no time to get too jittery. Thanks for keeping us updates so quickly. 

    My prayers are with you. 

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #14
    A plan!

    I know it's a tough road but it sounds like a great plan!  Hope your recovery is swift!

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #15
    A plan!

    Sounds like a good plan Nana! Thinking of you.  <3

     

    Aloha,

    Kathleen

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #16
    Kathleen808 said:

    A plan!

    Sounds like a good plan Nana! Thinking of you.  <3

     

    Aloha,

    Kathleen

    Good luck

    Hope it all goes well. Good luck!

    - Karin

  • traci43
    traci43 Member Posts: 773 Member
    #17
    Nana b said:

    Labs then done for today

    Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

    Awesome news!

    You've got a game plan, thats great.  I really hope things work out for you and you can get off the chemo bandwagon.  Traci

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #18
    Definately a good plan. I

    Definately a good plan. I looked extensively into cyberknife and got opinions at 3 hospitals. I will most likely be doing cyberknife on the chestwall mets after i get through y90.

  • kennyt
    kennyt Member Posts: 110
    #19
    Nana b said:

    Labs then done for today

    Doing radiation and cyber knife up here at Stanford in the next week or two. Getting the mets out and take a break from chemo.  Cyber knife for lungs will take 3 days so I will stay up here and one day to zap liver.   They will call and schedule as soon as she talks to radiologist.   Looking up. 

    Who are you seeing at

    Who are you seeing at stanford? I had Daniel Chang thought he was a great guy.  I'm getting sbrt on two lung spots now, 1 down three to go.

     

    Good luck

  • Nana b
    Nana b Member Posts: 3,030 Member
    #20
    I'm seeing Dr Kunz. Very nice

    I'm seeing Dr Kunz. Very nice lady. In charge of many trials, which she putb my name down for. I loved Stanford and all their hidden gardens.  I sat out in one of the gardens with Winter.   Great meeting her.

     

    The Stanford staff are all driven in customer service, very impressed. 

     

    Thank you all so much, I am excited about this. 

  • impactzone
    impactzone Member Posts: 555 Member
    #21
    Nothing but good wishes from

    Nothing but good wishes from me. My onc there is Dr Fisher and he has been great but super busy. They all seem so swamped.

    Chip

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