Skiffin ~ 05JUN2014

Skiffin16
Skiffin16 Member Posts: 8,305 Member
edited June 2014 in Head and Neck Cancer #1

Well..., I'm still here..., LOL

Not a lot has changed concerning eating and appitite..., surviving mainly on Ensures and cereal.

I did have all drains removed last week, but both holes the one from the week before and the latest are still spewing out nasty smelly gunk..., but I presume that's better than being inside me.

I do think that occasionally I see a tiny bit of improvement. I'm starting to have a few more better days and nights (not good, but better).

Energy is still very low, but only taking in 1000 calories or so a day is the cause of that I'm sure...

Speaking of which, I'm down 54# now since 22Apr2014...., but I'm alive.

I'm so anxious for this to be in the past and start doing my normal routine of working, yardwork, recreational..., and spending some quality time with my wife and dogs.

 

I have no words for the support that you all have shown me..., and a few that have gone above and beyond keeping me informed and giving me a little special love between texting me and FaceBook...

 

You all are truely family...

John

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Comments

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #2
    Thank you

    Thank you for posting.  I have been wondering about your recovery.  Slow and steady wins the race.  Take it easy, this too shall pass.  Hopefully you will be able to get more calories, we know how important that is.  Smelly stuff leaking, I have an outer ear infection.  Drainage got me to the doctor, no pain for me (but I have no feeling on that side of my head anyway).

  • phrannie51
    phrannie51 Member Posts: 4,716
    #3
    Holy Moly....

    54 lbs!  That is a hell of a lot of weight to lose.....and we thought tonsil cancer was the ultimate weight loss diet.  I'm sorry this recovery is being such a slow one.  I'll bet you itching to get out and do some fishin'......Hoping you see more better days between the crappy ones.....and the distance between the crappy ones getting longer.

    Sending you a shot of energy......and lots of positive thoughts.

    p

  • Laralyn
    Laralyn Member Posts: 532
    #4
    Glad to hear from you!

    Glad to hear from you! :-)

    Also glad to hear about improvements, however minor. Hopefully you'll be past this in time for cooler fall weather and some fishing!

  • hwt
    hwt Member Posts: 2,328 Member
    #5
    Laralyn said:

    Glad to hear from you!

    Glad to hear from you! :-)

    Also glad to hear about improvements, however minor. Hopefully you'll be past this in time for cooler fall weather and some fishing!

    John

    Continued thoughts and prayers for you. Hopefully the huge weight loss has stabilized. Think of you often and waiting to hear that you have turned the big corner with nothing but steady improvement.

    Stay strong! 

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #6
    better

    John,

    As a wise old sage once told me “it just takes time”.

    Enjoy your skinny jeans and let’s see (more) better days ahead.

    Matt

  • MarineE5
    MarineE5 Member Posts: 1,034 Member
    #7
    Thank You John for the update

    John, you know that a steady pace is best when we do anything. Go to fast and a person gets burnt out quickly, steady pace, get to the finish line or goal. You know the routine, one step forward, two back for awhile. Then it will switch to two forward, one back. Keep going Marine.

    My Best to You, Your Family and Everyone Here

  • katenorwood
    katenorwood Member Posts: 1,912
    #8
    Moving forward

    John,

    You went through a rough surgery, similar to what my Dad had quite a few years ago.  It does take time to come back from this, but you will soon.  Watch those calories, try to keep them up as much as possible so that you heal properly.  We consider you and your wife, family also.  And we are very lucky to have you in our corner.  Be well soon my friend !  Hugs sent !  Katie  

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #9
    john, recovery is sure taking

    john, recovery is sure taking its sweet time and I'm sorry to hear that.  glad you're a little better and praying you will be "GOOD" very soon.  i hope you are able to eat soon without any problems and that you're able to put some weight back on.  it is a slow progress but i'm sure it will get easier, hang in there and know that we are all here for you.

    hugs and prayers,

    dj

  • donfoo
    donfoo Member Posts: 1,773 Member
    #10
    Thanks

    Glad you posted, all that weight loss still allows you to 'puter sometimes. Disappointing to hear about the slow recovery. Hang in there and find a couple wine corks for them holes. :-) Don

  • cureitall66
    cureitall66 Member Posts: 913
    #11
    My Buddy.....

    Been wondering how my Buddy has been doing.  Didn't want to bug you too much with emails, figuring you'd let us know when you were up to conversation.  In spite of the weight loss and the "gunk" still coming out, it sounds like you're doing your best to eat and take care of yourself. You'll be fishin' in no time!!

    ~C

     

  • Guzzle
    Guzzle Member Posts: 710
    #12
    donfoo said:

    Thanks

    Glad you posted, all that weight loss still allows you to 'puter sometimes. Disappointing to hear about the slow recovery. Hang in there and find a couple wine corks for them holes. :-) Don

    Routine

    John I have no doubt whatsoever you will get back there mate. The yard will get cleared. The dogs will get walked. The fish will get scared! Thinking of you both, G.

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #13
    You are a

    Warrior! 

    so good to hear there is some going on, always good to hear one step forward and baby steps is progress. 

    prayers being shouted for you and all the family. 

    so looking forward to your first fishing post!

    john 

  • wolfen
    wolfen Member Posts: 1,324 Member
    #14
    fisrpotpe said:

    You are a

    Warrior! 

    so good to hear there is some going on, always good to hear one step forward and baby steps is progress. 

    prayers being shouted for you and all the family. 

    so looking forward to your first fishing post!

    john 

    John

    So glad to see you are sittin' up and takin' nourishment(even though it's only liquid right now). I know just how tough these abdominal surgeries are. My poor baby's abdomen looks like a road map, true battle scars.

    Hoping your recovery will be swift and as painless as possible.

    Welcome back!

    Luv,

    Wolfen

  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    #15
    Just checking in on everyone

    Just checking in on everyone and am glad to hear that things might be going a little better for you. Hope each day gets better and better! Those fish are waiting for you!

  • catfish_58
    catfish_58 Member Posts: 138 Member
    #16
    update

    Hang in there it won't be long before it's time for some fishing action,hoping your well soon.later 

       Chris

  • tommyodavey
    tommyodavey Member Posts: 728 Member
    #17
    catfish_58 said:

    update

    Hang in there it won't be long before it's time for some fishing action,hoping your well soon.later 

       Chris

    Keep on keepin' on

    You just keep those spirits high and recovery will come slowly but surely.  It hurts to even read your posts and what you have been through so far.  And with all that you still keep a hearty attitude with humor running down the middle.

     

    We are all thinking about you and your recovery,

     

    Tom

  • Jan Trinks
    Jan Trinks Member Posts: 477
    #18
    So good to you post

    Hi John:

     

    I was so happy to see where you had posted.  So sorry the recovery is longer than expected but it is recovery!  Have you tried adding ice cream to your ensures.  When Charlie was in hospital from side effects of first chemo and mouth and throat looked like a carton of cottage cheese, a nurse make him ensure milkshakes.  He like that pretty good.  Of course this is assuming you can eat ice cream if you so desire.  Anyway so good to hear from you, y'all are in my prayers and I do light a candle for y'all in church on Sundays at prayer time!  Hope you go from better to good real soon.  God Bless!

     

    Jan (Basketcase)

  • Hondo
    Hondo Member Posts: 6,636 Member
    #19
    Hi John

    Baby steps one at a time, and little by little you will start to get better. The main part is you survived the surgery now it’s getting your body back into shape and you know that will take its time. Like many others here we all miss you and continue to keep you in our prayers

     

    Tim Hondo

  • ahollie
    ahollie Member Posts: 84
    #20
    slow and steady!!

    As my mama says..slow and steady wins the race...at least you aren'tgoing backwards! prayers for you daily! and at least theres no petscan at the end of this to see if the surgery was worth it! healing will be complete healing!  

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #21
    So glad for the update!

    Slowly but surely....you will get there.  Hardest thing to hear, isn't it?  I know you're ready to get out on that water and catch some fish.  You'll be proud to know that my hubby has be addicted to fishing now.  I've caught a few (small) ones....catfish, bass, bream, crappie and sunfish.  It's SO fun.  I think of you and your fishing pics everytime we take the ol' boat out.  Rest, gain some weight back, and feel better!!

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