no longer in limbo

qv62 said:

to all

Thanks you all for the geat advice, I am so greatful to have all of your responses and wisdom from your experiences, going to CVS today to stock up on supplies, had a long overdue mani-pedi Thursday after work, Friday got a few inches taken off my shoulder lengnth hair, figured it would be less tramatic when it starts to fall out, went yesterday to check out the wig store that accepts my insurance, picked something out but the experience was extremely  unpleasant and so was the 20 something year old bitchy snotty clerk, the owner was no  great shakes either, I left feeling very frustrated with the fact that I even left my script there with them but I'll find out Tuesday if the insurance covers it, they are closed today and tomorrow but if they weren't I think I would go back and get my script and move on, oh well lesson learned but I don't understand why it is not a pre-requisite to have some compassion in this sort of job ???? Still fighting with the insurance for the drugs, 900 and 3,000 dollars out of pocket for 2 of the meds if I don't fill through the mail order which is in general a nightmare to deal with, it's almost like there should be a coordinator to help you with these little things that can be so frustrating when you are already dealing with so much else. I spent two of my lunch times on the phone with this nonsense this wekk and still don't know if it is straightened out. I have a super busy week coming up and took a personal day as well so hopefully I will get my head above water, enjoy the graduation trip and then start treatment with a clear head, I can only hope lol and pray , thnaks to all.

The wig-shopping experience sounds like a nightmare.  You would think that people who deal with cancer patients could show some compassion.  I did not get a wig and just wore ballcaps, so I avoided any such rudeness.  I'm sorry you had to go through that.  I hope you can get the issues with the prescriptions straightened out.  Are these drugs that will be given during your chemo infusion?  I got Emend to take just prior to my infusions and I know it was very expensive.  It did help to keep me from being so nauseous though.  I agree that some kind of health navigator would be great--someone who knows the ins and outs of dealing with all of this.  You will get it all worked out.  As always, I wish you the very best!