Mayo Clinic - Any updates Miss Cinnamonsmile?

Bumping this post.

tufi000 said:

Cinn posting on FB

She is home now, her son did the driving while she was thrilled to just take pictures!  Docs found the source of her Pneumonia and she is in remission and loves MAYO (not the egg/ oil type) and already planning next snowshoe adventure

Sounds like wonderful news!  Yay!!!!  Big (((hugs))) Cinn and hip, hip hooray!!!!

Nothing new really to report. Got the final  notes from doctor and there are so so many mistakes. I really am getting tired of so many insurance, clinic billing errors, and medical doctor/nurse/MA mistakes. 

I am trying to get the gumption to write the doctor a letter, but for some reason I just can't.

I was supposed to go from 30 mg prednisone to 20 mg per day, but I got it mixed up AGAIN. I went from 30 to 10 at some point and the withdrawal was horrible. I was pretty sick. I am starting to feel better, but have some residual side effects yet.

M breathing and hoarsness is still declining, but not rapidly.

I see my local pulmonoligist in a few weeks. I thought about getting a CT SCAN of my  lungs this month, but I think I will wait until late May or early June when I will have been off prednisone. My prednisone ends April 30. 

CT Scans are expenisve so I want to wait until I am off prednisone again and see if it grows.

This week I have to have some blood work done so I am calling my family doctor to test my lymphocytes and leukocytes since  they were high at MAyo.

Thanks for asking about me. It is very kind.