Drove 4 hours to Mayo Clinic today

My son and I drove to Rochester, MN today for my Mayo Clinic Pulmonology appointment to see if there is anything else to do to save my lungs from that agressive form of hypersensitivity pnuemonitis that I have been battling for over a year now. So far we can only slow the progression. My CT scan last month showed more progression again, but the lymph nodes went down in size. So not the worst news, but not the best.

The drive was great. I got to take scenery pics while my son drove! First road trip ever while my son drives and I loved it!!

We are loving the area, thought of VickiSam and her Trader Joe's!! They have one here in Rochester. Never in my life did I think I would see one!!

Son and I were talking that it does seem surreal that I have an illness so bad that it requires a trip to Mayo, though.

I am having some anxiety here and there,not too bad though. No matter what they find out it's stressful. It seems it will be stressful if they find more out about and can stop the progression better, and it will be stressful to find out there is nothing they can do.

Local pulmonologist has been reducing my amount of prednisone per day. I have been on it since December 2013. I am down to 35 mg of Prednisone a day and I can tell my lungs are a tad worse....

We will see what they say...

Meanwhile...I blew my eating plan at Old Country Buffet with my son. If we aren't in a food coma in a little while, we are going to explore the area and see if I can get my son into this neat looking Jazz Place later...I am thinking food coma will win out with me...I had the best bread pudding with this most yummy melted frosting....and I had this chocolate brownie bite with gooey warm chocolater under it....bring on the sugar coma...yum  yum yum

Thanks for letting me share!