Update on Pete's blog - more as of 2/15

it worries me that he says he's at home doing stuff for Valentine's Day.

Sorry to hear the sad news.I wil send good vibes,and keep praying for him.

God does work in mysterious ways. And I hope that we will all be oh so happy with his next moves. You have my prayers buddy. To overcome the immediate challenges and to have fun along the way.

Love and light to you.

Sincerely, Philip

Whoa, that fin de siecle anti-supplement line was a surprise. How did that slip past?  Guess he wanted you to go cold turkey on supplements and anything that they don't administer.  What did that (Swiss?) clinic say to pre-qualify their integrative medicine and CAM expertise?  We can assume a vena cava thrombosis is probably port catheter related? 

Pete, so what're their recommendations?  Fragmin/Lovenox/etc  mg od/bid  monitored with PT/INR, APTT, fibrinogen, d-dimer, TAT etc frequently? Mixing heavy supplements and clot dissolving doses of heparins means somebody should do their homework or use real clinical experience to have a bullet-resistant dosing and monitoring plan. 

Comparative assessment of low-molecular-weight heparins in cancer from the perspective of patient outcomes and survival

Time to seriously air the different clinics' advice and bases of recommendation.  

pete43lost_at_sea said:

thanks for the kind comments and prayers

dear marie,

thanks for the kind thoughts and prayers.

i have had a relaxing weekend with a wonderful family. I am still alive and well and my blood is really thin from daily claxehan which was the advice from prof ruggerio at the gcmaf clinic , he found the port induce thrombosis. this is the 4th port.

tomorrow i pickup rental car and drive 3 hours relaxed up to dr nesslehut to start my most important dc vaccine, this one has to take out recurrence 3 2 new spot on the surface of the liver and old slowly growing lung mets. it also will be targeting the new diagnosed potential thyroid cancer.

Of course I will ask about the thrombosis, but its enough to kill me any second, but not bad enough to operate.

I am seeing prof vogel for tace and cryo procedure on tuesday, his radiological expertese should be illuminating. I have some gcmaf and be added to my tace cocktail and a gcmaf suppository . all aimed at stimulating an immune response when the tumours are all specifically targetted.

I am still taking my supplements and off labels and smoothies and doing enemas but reduced.

All these doctors are great AND GIFTED BUT GETTING THEN to work together is tricky. Thery all know about the thrombosis and for what its worth the tace is going ahead despite its existence.

The nature of this journey is constant challenges, but each is illuminating.

I have lung surgery booked in 2 weeks at doctor rolle. given the challenges i figure get whatever i can get removed removed.

So this is targetted treatment, tace and surgery and immunotherapies.

the immunotherapies are systemic and targeted, but i will know more tomorrow after talking strategy with doctor nesslehut.

the beauty of p2x7 vaccine is its not cancer specific, so the dendtritic cells will go for colorectal and thyroid cancer cells. if it works.

The thrombosis treatment is daily heparin injections.

 

 

I'll be honest. I worry about you, Pete. I wish you were with your family. Somehow that would sound a relief to me. Knowing that you are with your loved ones, and that your loved ones at least see you on a daily basis. But whatever, I am not here to tell you what to do. I will be in the background wishing you strengh, and the very best!

Please take care!

pete43lost_at_sea said:

The good vibes are appreciated

Still alive and well. When the going gets tough the support is extra precious.

Had 11th tace and gcmaf direct inject right liver lobe this morning. 

My glucose is 240 which is liver stress from tace.  15 in insulin just inject here I go tumbling down.

The irenotecan.  Mytomycin and maybe even avastin as well as b17 dca do so are killing tumor cells and providing food and antigens for activated macrophages.

No guarantees and don't try this at home.

I love you all and if I live and get back into remission I will be very very happy.

I have ruffled a few feathers here and there and time is a great teacher.

Of course I still think these therapies have enormous potential and benefits.

Even today prof Vogel said most get here to late. Which rings true to me.

I do wish us all the best health whatever we choose.

It's the right choice. Because we made it.

My fate hangs on a billion decisions to be made by my white bloods cells.

The ball is there court. At the moment my dc are on holidays being trained to share the secret of finding any cancer cells using p2x7.

They will share that antigen info with other antigen presenting cells in the 3 days they live. See if I am immune suppressed no effect from vaccine. 

Enough rambling. If I do die it's not for want of trying and the thrombosis may stop my immunotherapy success but not the millions that will be saved.

Of course it would be nice if we make it somehow.

Hugs.

Pete

 

 

 

 

Sending my very best to you Pete .. keeping you in my thoughts and prayers!!

pete43lost_at_sea said:

picture of thrombosis on blog

how can something so small kill you so fast? thats what the doctors say. 

my tip is get an ultrasound after you get a port installed.

http://petertrayhurn.blogspot.de/2014/02/in-poo-cea-200-and-eviction-threatens.html

oh and cea 200, recurrence 3 is now a full blown cyclone

this will be my finest hour, hopefully not my last. might as well test immunotherapies out on something aggressive.

after all what choice to i have.

Good luck with everything you try. I hope it keeps you around a whole lot longer.