Update on Pete's blog - more as of 2/15

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Comments

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #22
    pete43lost_at_sea said:

    picture of thrombosis on blog

    how can something so small kill you so fast? thats what the doctors say. 

    my tip is get an ultrasound after you get a port installed.

    http://petertrayhurn.blogspot.de/2014/02/in-poo-cea-200-and-eviction-threatens.html

    oh and cea 200, recurrence 3 is now a full blown cyclone

    this will be my finest hour, hopefully not my last. might as well test immunotherapies out on something aggressive.

    after all what choice to i have.

    thyroid markers with chemo

    Hypothyroidism in patients with colorectal carcinoma treated with fluoropyramadines

    We aim to keep my wife's fT3 above the lower limit value, TSH under 2, near 1.2, with desiccated thyroid.  Don't know what "optimum" fT3 is for mCRC. Doctors oriented toward natural medicine prefer fT3 value at/above the midrange for noncancer hypothyroid patients to feel best. There seems to be a surprising dearth of easy to find papers in the fT3-CRC area. 

    Actually T4 seems to be the big question mark.

    Effect of exogenous triiodothyronine [T3] on free thyroxine depletion and tumor response:  A compassionate care study.

    Also an interesting paper, Table 4 has some fT3 values.

     

  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #23
    Praying for great news!

    Praying things go well for you, Pete. I have so enjoyed reading your posts here!

     

    *hugs*

    Gail

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #24
    tanstaafl said:

    thyroid markers with chemo

    Hypothyroidism in patients with colorectal carcinoma treated with fluoropyramadines

    We aim to keep my wife's fT3 above the lower limit value, TSH under 2, near 1.2, with desiccated thyroid.  Don't know what "optimum" fT3 is for mCRC. Doctors oriented toward natural medicine prefer fT3 value at/above the midrange for noncancer hypothyroid patients to feel best. There seems to be a surprising dearth of easy to find papers in the fT3-CRC area. 

    Actually T4 seems to be the big question mark.

    Effect of exogenous triiodothyronine [T3] on free thyroxine depletion and tumor response:  A compassionate care study.

    Also an interesting paper, Table 4 has some fT3 values.

     

    Tans ..can you further

    Tans ..can you further explain the thyroid issue?  In easy to understand terms?  My husband has been on synthroid for many yrs.  I went back and forth with his doc after his hospital stay to determine if dose needed to be changed since he lost a good amount of weight.   In nov these were his numbers:

    T4. 11.2

    Tsh. 11.83

    T3 125

    Free thyroxine in dec was 1.43

    She increased his dose by 1 pill a week and wants to retest in a few weeks, but id like to better understand this before I talk to her.  The first link didnt work for me.

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #25
    thanks gail and friends

    http://www.australasianscience.com.au/article/issue-may-2010/matter-time.html

    this explains what i am trying in some detail, some very interesting and heavy papers , the round table conference on my blog is definitely worth reading.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3027086/

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #26
    jen2012 said:

    Tans ..can you further

    Tans ..can you further explain the thyroid issue?  In easy to understand terms?  My husband has been on synthroid for many yrs.  I went back and forth with his doc after his hospital stay to determine if dose needed to be changed since he lost a good amount of weight.   In nov these were his numbers:

    T4. 11.2

    Tsh. 11.83

    T3 125

    Free thyroxine in dec was 1.43

    She increased his dose by 1 pill a week and wants to retest in a few weeks, but id like to better understand this before I talk to her.  The first link didnt work for me.

    it gets complicated, and political, fast

    ...but hopefully you can find a doctor with a simple routine that resolves this well.   

     -------------------------------

    Hypothyroidism in patients with colorectal carcinoma treated with fluoropyrimidines.   (relinked)

     -------------------------------

     ...My husband has been on synthroid for many yrs. 

    With numbers like that TSH, and perhaps missing the very important fT3 reading, many formerly problematic thyroid patients might suggest that your doctor was stuck in the usual Synthroid (thyroxine, T4) orthodoxy rut.   A lot of unhappy thyroid patients languish for years on T4 pills and TSH readings.  Because different areas or facilities may use different units, it is important to include the units (e.g. Pmol vs ng, dL vs L) with each reading.

    A patient driven movement for other thyroid diagnostics and treatment has arisen. Their monitoring is based around basal body temperatures, free T3 (fT3) and lack of symptoms, with expanded lab  panels if not resolved quickly.  The patient movements' tx materials typically start from desiccated thyroid tablets with 2-3x per day dosing and therapeutic nutrition.  

    The T3-T4 cancer paper I linked earlier raises the question of T4 levels and cancer, with less T4 more T3 as a potential improvement, but the test patients did not include any CRC patients.

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #27
    tanstaafl said:

    it gets complicated, and political, fast

    ...but hopefully you can find a doctor with a simple routine that resolves this well.   

     -------------------------------

    Hypothyroidism in patients with colorectal carcinoma treated with fluoropyrimidines.   (relinked)

     -------------------------------

     ...My husband has been on synthroid for many yrs. 

    With numbers like that TSH, and perhaps missing the very important fT3 reading, many formerly problematic thyroid patients might suggest that your doctor was stuck in the usual Synthroid (thyroxine, T4) orthodoxy rut.   A lot of unhappy thyroid patients languish for years on T4 pills and TSH readings.  Because different areas or facilities may use different units, it is important to include the units (e.g. Pmol vs ng, dL vs L) with each reading.

    A patient driven movement for other thyroid diagnostics and treatment has arisen. Their monitoring is based around basal body temperatures, free T3 (fT3) and lack of symptoms, with expanded lab  panels if not resolved quickly.  The patient movements' tx materials typically start from desiccated thyroid tablets with 2-3x per day dosing and therapeutic nutrition.  

    The T3-T4 cancer paper I linked earlier raises the question of T4 levels and cancer, with less T4 more T3 as a potential improvement, but the test patients did not include any CRC patients.

    Thanks for the link and the

    Thanks for the link and the info Tans.

  • Phil64
    Phil64 Member Posts: 838 Member
    #28
    pete43lost_at_sea said:

    thanks gail and friends

    http://www.australasianscience.com.au/article/issue-may-2010/matter-time.html

    this explains what i am trying in some detail, some very interesting and heavy papers , the round table conference on my blog is definitely worth reading.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3027086/

    Pete, best wishes for you.

    Pete, best wishes for you. Sending you light and love. From Phil in Michigan.

  • marbleotis
    marbleotis Member Posts: 720 Member
    #29
    pete43lost_at_sea said:

    thanks gail and friends

    http://www.australasianscience.com.au/article/issue-may-2010/matter-time.html

    this explains what i am trying in some detail, some very interesting and heavy papers , the round table conference on my blog is definitely worth reading.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3027086/

    Pete

    Your journey is amazing.  Please take care of yourself.  You are always in my prayers. 

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #30
    marbleotis said:

    Pete

    Your journey is amazing.  Please take care of yourself.  You are always in my prayers. 

    god is smiling a very big smile

    Thanks Phil and marbleotis and friends

     

    Some great news tumours markers crashed fast.The pprayers are working .

  • karguy
    karguy Member Posts: 1,020 Member
    #31
    pete43lost_at_sea said:

    god is smiling a very big smile

    Thanks Phil and marbleotis and friends

     

    Some great news tumours markers crashed fast.The pprayers are working .

    Yes

    Yes,I'm glad the prayers are working.I will keep praying,and sending good vibes.Keep those markers crashing.

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #32
    pete43lost_at_sea said:

    god is smiling a very big smile

    Thanks Phil and marbleotis and friends

     

    Some great news tumours markers crashed fast.The pprayers are working .

    Hoping your numbers keep going down.

    I'm praying that you have a full recovery. Keep on fighting.

    Lin

  • Phil64
    Phil64 Member Posts: 838 Member
    #33
    pete43lost_at_sea said:

    god is smiling a very big smile

    Thanks Phil and marbleotis and friends

     

    Some great news tumours markers crashed fast.The pprayers are working .

    Praise be to God! Sending

    Praise be to God! Sending more prayers your way Pete. Love and light and big virtual Hug!

     

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #34
    Phil64 said:

    Praise be to God! Sending

    Praise be to God! Sending more prayers your way Pete. Love and light and big virtual Hug!

     

    Keep sending prayers and good vibes

    My cea now 29 ca 199 also crashing.

    10 days ago it was cea 204.

    The mix of therapies covered blog. For me I have

    Found a range of therapies free of systemic chemo disadvantages.

    So my therapy success has been proven on 3 separate recurrences over the

    Last 2 and quarter years.

    How long. Well who knows.

     

     

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