Introducing myself

So sorry to hear that you have so much on your plate right now.  There are many caregivers here, and this is a great place to come and vent and gain knowledge and support.

Deb

miriam12,

Welcome to the H&N forum, the diabetes forum and the prostate forum, come in , take your shoes off and relax.  Caregivers are a special breed.

Don’t forget to check out the Superthread for must haves, we H&N patients can be picky.

Lots of luck,

Matt

Welcome, it seems your plate is more that full it's overflowing. This is a great bunch of people for suport, knowledge and especially great for venting. I shure understand COPD, stage 3 myself. The caregiver never gets the time or rest they need. Please always remember to take care of yourself. 

Bill

hi Miriam and welcome to our family.  you're plate is definitely over full right now!  in the mist of taking care of them you MUST remember to take care of you, also.  i also had larynx cancer but i had surgery to remover the larynx and no chemo.  i'm so glad she doesn't have to have surgery.  the rads are rough.  in fact, the whole journey is rough, but she will make it thru and we'll be here to help you thru it also.  come here with all your questions and concerns or if you just need to vernt.  doesn't matter, we'll be here for you.  take care and keep of posted of everyone's progress.

God bless you.

dj

miriam12 said:

my house

I live in Indiana.  But I am sorry my motel 6 light is now out.  .    It can just get very overwhelming here when I come home from work.  Some days I do not even get my coat off and people are asking me to do things.  I try and keep my attitude postivie.  But somedays like this evening is really hard.

Well like mentioned..., make sure to take some time for yourself also... You can't continue to constantly give without some restoration for yourself also...

Best,

John

Mom of 3 said:

Hi

Hi Miriam, my husband was dx'd with throat cancer, is done with treatment. But we have a child going through treatment for a brain tumor, so I can relate to your 'life' and how busy it can be. My husband never had to have a feeding tube, but our daughter does, along with a port. They are both pretty simple and easy to maintain. Welcome and PRAYERS for you and your family. 

Miriam, you're in the right place for support and encouragement. I too am new to this forum and I was a care giver for my father who had terminal esophagual cancer and he passed away this past  Dec. 21st after almost two years of being diagnosed. Three days later my husband was diagnosed with throat cancer and we started all over again.

My dad had Home health and then Hospice come aboard and they helped tremdously with meds and any questions we had, that may be one thing to check into. They can help give you support and much needed time to yourself. I learned real quick to ask other family members to come and sit with my dad and help out. I just couldn't do it by myself, it took a team rotating 24/7 and my daddy was my world. I will never regret being his caregiver and making great memories with him through the end.

Now I find myself taking care of my husband, coaching him through this journey that will have a happy ending! God is good and we know he will overcome. I also have a full time job and four boys, luckily two are grown and gone and the other two are too smart to move out lol. Hang in there and strive to find the best in everything and don't hesitate to ask for help. Prayers going your way!

Duggie88 said:

Miriam

WOW...........Working many full time jobs can be exhausting. Glad you found us and we can help break up the day. Caregivers are royalty and you my lady should wear a crown. With all the hustle and bustle don't forget yourself, sometimes you just need some down time for Miriam. I know what your thinking, there is only 24 hours in a day but occasionly you need to take 2 for you.

We are here for you.

      Jeff

Hang on to that day job, it sounds like the easiest part of your day. Make time for yourself or there won't be any.