STAGE 1 INVASIVE LOBULAR CANCER

Doe1504 said:

My ILC was stage 2a

I was diagnosed on April 12 2013. After an MRI I was told I had 3 tumors. A Mastectomy was advised and done on May 15, 2013, at which time there were 4 tumors and cells scattered all therough the tissue, tumors totaled over 5cm in size. The largest was 2cm. I was told I did need chemo, 4 rounds of A/C and 12 weekly taxol treatments. I had no lymph node involvement and was ER+, PR+ and HER2-. ILC is a "sneaky" cancer. I was advised to have radation, which I refused since I had a mast, but more than likely will have to take tamoxifen.  I was never offered a lumpectomy due to the size and # of tumors, but, with the cancer being "sneaky", not sure I would have trustd that. I have 4 treatments to go then I will be done with chemo. Good luck in whatever you decide. 

Dolores

It is very sneaky and usually not detected by Mamo . MRI is more accurate for this type. It is also rare to achieve clear margin for lobular invasive 

I had mastectomy and Chemo and radiation and tamoxifen 

good luck with a second opinion

I had stage 3 ILC, ER/PR pos and opted to do it all-mastectomy, axilary lymph node removal, chemo and radiation and am on femarra for 5 years. My oncologist calls ILC "a different animal" and from my own research it's very unpredictible so I chose to do what I felt was best for my own peace of mind. Good luck!

mopar said:

THANK YOU ALL!

I truly appreciate your feedback.  It has been helpful, and so was the 'second opinion' conference I attended yesterday.  That group of surgeons, oncologists, etc. agree with the first assessment - caught early, small, manageable.  Of course, no one can predict what lies ahead for certain.  But as it stands, I will have a lumpectomy, several lymph nodes removed, radiation, and a aromatase inhibitor will be taken for 5 years.  If the lymph nodes are affected, they recommend chemotherapy.  However, if they do the oncotype testing, it will help me to better decide on chemo or not.  The number of lymph nodes involved and the extent will also be a determining factor.

In the meantime, I am hopeful, comfortable with my decision, and just want to get this over with.  After having gone through OVCA twice, I never expected to be facing breast cancer.  But, as always. I know there is a reason.  I will try to face it head on with grace, dignity and strength, all of which will be drawn upon through faith in Our Lord, and my dear, supportive family and friends.

In the meantime, my thoughts and prayers to all of you.  We are all in this together, and it is also your testimonies and strength that gives me hope and courage as well.  I will post again as the results come in.

Thank you so much!

(((HUGS)))!

Monika

 

I am happy to hear that you are comfortable with your decision - 2nd opinions do make things a little clearer.  Our hope, strength, positive thougths, and prayers are with you.

Do post an update when possible.

Strength, Courage, and HOPE for a Cure.

Vicki Sam