STAGE 1 INVASIVE LOBULAR CANCER

mopar

Going for a second opinion this week, but would appreciate some feedback.

Clinical Stage 1.  HER2 negative.  Estrogen Receptive.  Choosing lumpectomy.  Depending on the lymph node involvement determination, they are suggestion possible chemo, but definite radiation.  Anyone just get the lumpectomy and lymph node removal but decided against chemo and/or radiation?  They are also recommending Tamoxifen.  Not keen on that either.  Would just like to get some thoughts on all of this.

Thank you all!

Prayers for all of you.

Monika

Doe1504

My ILC was stage 2a

I was diagnosed on April 12 2013. After an MRI I was told I had 3 tumors. A Mastectomy was advised and done on May 15, 2013, at which time there were 4 tumors and cells scattered all therough the tissue, tumors totaled over 5cm in size. The largest was 2cm. I was told I did need chemo, 4 rounds of A/C and 12 weekly taxol treatments. I had no lymph node involvement and was ER+, PR+ and HER2-. ILC is a "sneaky" cancer. I was advised to have radation, which I refused since I had a mast, but more than likely will have to take tamoxifen.  I was never offered a lumpectomy due to the size and # of tumors, but, with the cancer being "sneaky", not sure I would have trustd that. I have 4 treatments to go then I will be done with chemo. Good luck in whatever you decide. 

Dolores

New Flower

Doe1504 said:

My ILC was stage 2a

I was diagnosed on April 12 2013. After an MRI I was told I had 3 tumors. A Mastectomy was advised and done on May 15, 2013, at which time there were 4 tumors and cells scattered all therough the tissue, tumors totaled over 5cm in size. The largest was 2cm. I was told I did need chemo, 4 rounds of A/C and 12 weekly taxol treatments. I had no lymph node involvement and was ER+, PR+ and HER2-. ILC is a "sneaky" cancer. I was advised to have radation, which I refused since I had a mast, but more than likely will have to take tamoxifen.  I was never offered a lumpectomy due to the size and # of tumors, but, with the cancer being "sneaky", not sure I would have trustd that. I have 4 treatments to go then I will be done with chemo. Good luck in whatever you decide. 

Dolores

Hi most people with lobular had mastectomy

It is very sneaky and usually not detected by Mamo . MRI is more accurate for this type. It is also rare to achieve clear margin for lobular invasive 

I had mastectomy and Chemo and radiation and tamoxifen 

good luck with a second opinion

 

jlharris

My decision

I was diagnosed in March with Stage 2B and had a lumpectomy (2 surgies to get clear margins), three lymph nodes removed (one with small amount of cancer) 33 radiation treatment and I am on Armidex instead of Tamoxifen. My onc recommended 4 chemo treatments but I chose not to do the chemo. I based my decision on my Oncotype score of a 7 out of 100. This means that I would have a 7% chance of cancer recurring if I were not to do any kind of treatment. This is a pretty low score.

I hope that for yourself that you make the right decision.

Good Luck

 

smbrand158

I had stage 3 ILC, ER/PR pos

I had stage 3 ILC, ER/PR pos and opted to do it all-mastectomy, axilary lymph node removal, chemo and radiation and am on femarra for 5 years. My oncologist calls ILC "a different animal" and from my own research it's very unpredictible so I chose to do what I felt was best for my own peace of mind. Good luck!

mopar

smbrand158 said:

I had stage 3 ILC, ER/PR pos

I had stage 3 ILC, ER/PR pos and opted to do it all-mastectomy, axilary lymph node removal, chemo and radiation and am on femarra for 5 years. My oncologist calls ILC "a different animal" and from my own research it's very unpredictible so I chose to do what I felt was best for my own peace of mind. Good luck!

THANK YOU ALL!

I truly appreciate your feedback.  It has been helpful, and so was the 'second opinion' conference I attended yesterday.  That group of surgeons, oncologists, etc. agree with the first assessment - caught early, small, manageable.  Of course, no one can predict what lies ahead for certain.  But as it stands, I will have a lumpectomy, several lymph nodes removed, radiation, and a aromatase inhibitor will be taken for 5 years.  If the lymph nodes are affected, they recommend chemotherapy.  However, if they do the oncotype testing, it will help me to better decide on chemo or not.  The number of lymph nodes involved and the extent will also be a determining factor.

In the meantime, I am hopeful, comfortable with my decision, and just want to get this over with.  After having gone through OVCA twice, I never expected to be facing breast cancer.  But, as always. I know there is a reason.  I will try to face it head on with grace, dignity and strength, all of which will be drawn upon through faith in Our Lord, and my dear, supportive family and friends.

In the meantime, my thoughts and prayers to all of you.  We are all in this together, and it is also your testimonies and strength that gives me hope and courage as well.  I will post again as the results come in.

Thank you so much!

(((HUGS)))!

Monika

 

VickiSam

mopar said:

THANK YOU ALL!

I truly appreciate your feedback.  It has been helpful, and so was the 'second opinion' conference I attended yesterday.  That group of surgeons, oncologists, etc. agree with the first assessment - caught early, small, manageable.  Of course, no one can predict what lies ahead for certain.  But as it stands, I will have a lumpectomy, several lymph nodes removed, radiation, and a aromatase inhibitor will be taken for 5 years.  If the lymph nodes are affected, they recommend chemotherapy.  However, if they do the oncotype testing, it will help me to better decide on chemo or not.  The number of lymph nodes involved and the extent will also be a determining factor.

In the meantime, I am hopeful, comfortable with my decision, and just want to get this over with.  After having gone through OVCA twice, I never expected to be facing breast cancer.  But, as always. I know there is a reason.  I will try to face it head on with grace, dignity and strength, all of which will be drawn upon through faith in Our Lord, and my dear, supportive family and friends.

In the meantime, my thoughts and prayers to all of you.  We are all in this together, and it is also your testimonies and strength that gives me hope and courage as well.  I will post again as the results come in.

Thank you so much!

(((HUGS)))!

Monika

 

Monika ...

I am happy to hear that you are comfortable with your decision - 2nd opinions do make things a little clearer.  Our hope, strength, positive thougths, and prayers are with you.

Do post an update when possible.

 

Strength, Courage, and HOPE for a Cure.

Vicki Sam

 

 

New Flower

VickiSam said:

Monika ...

I am happy to hear that you are comfortable with your decision - 2nd opinions do make things a little clearer.  Our hope, strength, positive thougths, and prayers are with you.

Do post an update when possible.

 

Strength, Courage, and HOPE for a Cure.

Vicki Sam

 

 

Have you done genetic testing

Probably I missed it 

have you gone through genetic testing?

Usually helps with decision as well

mopar

New Flower said:

Have you done genetic testing

Probably I missed it 

have you gone through genetic testing?

Usually helps with decision as well

YES

Had BRCA1 & 2 in 2006 and was negative.  Just had BART testing done this week - waiting for results, a long wait from what I hear.