Survivorship. How long ago did you have your RCC?

24

Comments

  • rjallmon
    rjallmon Member Posts: 4
    #22
    RCC
    I was diagnosed in June 2011 and had the nephrectomy on 8/16/11. It still feels too new to say I am a survivor.
  • Sara123
    Sara123 Member Posts: 6
    #23
    rjallmon said:

    RCC
    I was diagnosed in June 2011 and had the nephrectomy on 8/16/11. It still feels too new to say I am a survivor.

    Had a partial nephrectomy on
    Had a partial nephrectomy on 8/18/2011. Confident (most times) that this will not be an ongoing battle but will be completed now.
  • skipnonu
    skipnonu Member Posts: 2
    #24
    Survivor
    Funny when you say survivor, sometimes I think I am a fighter. But anyways I was Dx in 2008, I had a recurrence but I tend to lean on the thought that it was something missed in the first Dx and surgery ( to Small to identify). I could be wrong though. So the reccurence was 2010. And this year (with 3 CT scans already) I have a clear scan but bad blood work so I am waiting to see what happens, this is the fighter part I was talking about. Keep positive keep reading post here, this is a great group of people. And live every day with long term goals. I try to, even though I get really worried.
  • jona187
    jona187 Member Posts: 71
    #25
    skipnonu said:

    Survivor
    Funny when you say survivor, sometimes I think I am a fighter. But anyways I was Dx in 2008, I had a recurrence but I tend to lean on the thought that it was something missed in the first Dx and surgery ( to Small to identify). I could be wrong though. So the reccurence was 2010. And this year (with 3 CT scans already) I have a clear scan but bad blood work so I am waiting to see what happens, this is the fighter part I was talking about. Keep positive keep reading post here, this is a great group of people. And live every day with long term goals. I try to, even though I get really worried.

    My wife of 29 is a 7 month
    My wife of 29 is a 7 month post surgery survivor.

    Now, 61+ years of life left to go :)

    To all the people out there keep a positive outlook and keep battling
  • King08
    King08 Member Posts: 8
    #26
    Peggyz said:

    survival
    Just to let you know that I am a seven year survivor, after being diagnosed with Stage IV cancer, with lungs filled with tiny mets. Thanks to surgery and HD IL2, I am alive and well, and happy to help how I can, esp as to info re HD IL2.

    Hey there

    I am new to this page all because I was hoping to be able to ask you a few questions about who, where, what you did for treatment. My dad has just found out his rcc has mastitized to his lungs, 7 spots bilateral largest 1.2cm. thanks!

  • anmazon
    anmazon Member Posts: 144
    #27
    survivorship

    I was diagnosed May 20, 2013, radical nephrectomy June 5.

    Annie

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #28
    anmazon said:

    survivorship

    I was diagnosed May 20, 2013, radical nephrectomy June 5.

    Annie

    Me again

    Original surgery, 2006.  Recurrences in single nodes in 2007 and 2008.  So it's 7 plus years since Dx, and 5 years NED.

    Donna

  • I am alive
    I am alive Member Posts: 315
    #29
    9 years and counting!

    I was diagnosed with chromophobe RCC - an 11 cm tumor contained within the right kidney - in 2004. Following a nephrectomy I was cancer free until 2008 when a tumor was noted between the vena cava and aorta. An LPND surgery removed it and againI was cancer free until the end of 2011. Since July, 2012 my small handful of mets have been stable, one even disappeared, thanks to a clinical trial of Avastin & Afinitor specifically for non clear cell RCC.

  • Phoenix Rising
    Phoenix Rising Member Posts: 170
    #30
    Who knows?

    I refuse to calculate from the time of diagnosis.  Even though I was diagnosed in 2009 as stage 4-- which says to me I'd been living with it for quite some time-- I had kidney pain on and off since 1986 or so. After surgery in '09 and a brief NED, lung mets popped up.  The lung and lymph mets and I co-exist right now, but I'm looking forward to evicting them. They're not paying rent, so they need to get out.

  • Galrim
    Galrim Member Posts: 315 Member
    #31
    3 years and 2 months so far...

    NT

  • garym
    garym Member Posts: 1,647
    #32
    Tomorrow (10/25)...

    Is the fourth anniversary of the accident that led to my diagnosis

  • adman
    adman Member Posts: 336
    #33
    Diagnosed 06/ 2012

     

    I was diagnosed 06/ 2012 and had surgery 07/ 2012 = Stage 1 / Grade 1 - 5.0cm RCC tumor. Originally diagnosed at 6-6.5cm.

    People that I meet, where my disease comes up in conversation, always want to know, more than anything else, how long was this growing before they caught it?  I guess it's everywhere's deep fear and they secretly wonder when something is growing inside of them and they don't know it. I was kinda that way WAY before I found out.

    Good questions - I wish I could get a good answer for this. I've heard anywhere from 5 years on the very low end to 15 years on the high end.

  • Darron
    Darron Member Posts: 310 Member
    #34
    10-9-12

    Stage IV diagnosed on 10-9-12.

    radical right and right  adrenal removed 10-16-13

    2 lung mets gone

    3.8 cm Left adrenal tumor now reduced to "swollen"

    just had my 1 year!!

  • I am alive
    I am alive Member Posts: 315
    #35
    How long?

    My doc thinks the original tumor was growing for 10 years before discovery.

  • rae_rae
    rae_rae Member Posts: 300 Member
    #36
    I am alive said:

    How long?

    My doc thinks the original tumor was growing for 10 years before discovery.

    3 years

    Diagnosed in July 2010, open nephrectomy of left kidney October 8, 2010, 9cm clear cell, stage 2, grade 3/4. So far, so good.Cool

  • Djinnie
    Djinnie Member Posts: 945 Member
    #37
    rae_rae said:

    3 years

    Diagnosed in July 2010, open nephrectomy of left kidney October 8, 2010, 9cm clear cell, stage 2, grade 3/4. So far, so good.Cool

    10 Years

    I was first diagnosed in April 2003, I had Radio Frequency Ablation treatment.No further problems until a reoccurence was discovered at the original site in December 2013, this time I had a partial nephrectomy.

     

    Djinnie.

  • cubsfan9
    cubsfan9 Member Posts: 69 Member
    #38
    Djinnie said:

    10 Years

    I was first diagnosed in April 2003, I had Radio Frequency Ablation treatment.No further problems until a reoccurence was discovered at the original site in December 2013, this time I had a partial nephrectomy.

     

    Djinnie.

    Since 2004

    My husband's original diagnosis was 10/2004.  Left kidney, adrenal,and 11.5 cm tumor removed 11/2004.  He continued to receive scans/xrays and everything was clear until 12/2012. A large tumor was found on the pancreas that was determined to be RCC.  He started on Sutent 1/2013, currently on round 7!!  Tumor has shrunk significantly.

  • mean56
    mean56 Member Posts: 11 Member
    #39
    LTS

    I am a 58 year survivor - born with wilms - radiation treated.

  • a.oakley
    a.oakley Member Posts: 32
    #40
    mean56 said:

    LTS

    I am a 58 year survivor - born with wilms - radiation treated.

    February 2012

    My husband was diagnosed February 2012, stage 4, mets to bones.  Nephrectomy was done January 2013.  

  • dme59
    dme59 Member Posts: 62
    #41
    check up coming

    A week from tomorrow I have my first post surgery checkup/ CT scan. Diagnosis was in April/May of this year and surgery was June 5.

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