Survivorship. How long ago did you have your RCC?

13

Comments

  • Frank302
    Frank302 Member Posts: 71
    #42
    I was diagnosed in March 2011

    I was diagnosed in March 2011 with stage four RCC . My Urologist told me to get my affairs settled because I had a year and a half to go . Maybe I'm just dumb but I never did believe him .

    Fortunately he sent me to an excellent Oncologist who didn't believe that year and a half stuff either. I'm still here with no cancer anywhere in my bod . Positive thinking can never hurt even in the most dire circumstances .

  • saintmont
    saintmont Member Posts: 63
    #43
    I'm 2 and 1/2 year stage 4

    I'm 2 and 1/2 year stage 4 with a number of lung mets I still work full-time, play golf, walk and ride a push bike. I am on votrient and every thing is stable.

  • danbren2
    danbren2 Member Posts: 311
    #44
    2 year Survivior

    Originally diagnosed in July of 2011 with Stage 4 RCC, had right kidney and right adrenal gland removed in August of 2011. In March 2013 had lower 25% of right lung removed due to RCC mets, and in Nov. 2013 small tumor 1.1 centimeter on right side of brain removed.  I had cyber knife radiation treatment on brain after the tumor was removed and MRI for brain at this time shows no cancer.  On October 18, 2013 Cat Scan of lungs, pelvis, and stomach area were all clear of cancer, NED is a good thing!

  • parul
    parul Member Posts: 24
    #45
    danbren2 said:

    2 year Survivior

    Originally diagnosed in July of 2011 with Stage 4 RCC, had right kidney and right adrenal gland removed in August of 2011. In March 2013 had lower 25% of right lung removed due to RCC mets, and in Nov. 2013 small tumor 1.1 centimeter on right side of brain removed.  I had cyber knife radiation treatment on brain after the tumor was removed and MRI for brain at this time shows no cancer.  On October 18, 2013 Cat Scan of lungs, pelvis, and stomach area were all clear of cancer, NED is a good thing!

    Oh thts great to hear Danbern

    Oh thts great to hear Danbern ... Oct you are cancer free .. What is NED??.

    Glad ot hear your story .. Lucky you are not in India or else they would ask you leave hopes and stay home doing nothing ... You never did Chemotheory.. ??

  • NanoSecond
    NanoSecond Member Posts: 653
    #46
    parul said:

    Oh thts great to hear Danbern

    Oh thts great to hear Danbern ... Oct you are cancer free .. What is NED??.

    Glad ot hear your story .. Lucky you are not in India or else they would ask you leave hopes and stay home doing nothing ... You never did Chemotheory.. ??

    NED

    NED stands for No (visible) Evidence of Disease, Parul.

  • danbren2
    danbren2 Member Posts: 311
    #47
    parul said:

    Oh thts great to hear Danbern

    Oh thts great to hear Danbern ... Oct you are cancer free .. What is NED??.

    Glad ot hear your story .. Lucky you are not in India or else they would ask you leave hopes and stay home doing nothing ... You never did Chemotheory.. ??

    No Chemo!

    Parul,

         I have never had chemo, and only cyber knife radiation after tumor found in brain in Nov.  All of my RCC has been able to be surgically removed and unfortunately has been poping up in other places in the body.  But all has been removed and now at this time, this moment I am NED! (Thanks for the NED clarification Nano!)  I am very happy to be here and still fighting with all my being! This sight and all of these surviviors have become so imporatant to me, and they have made it very clear that life if what we make it, no matter what the circumstances are that we have to deal with.

         I am wishing you a Merry Christmas and a very Happy New Year!

                                                        Love and prayers for good health!

                                                         Brenda

  • parul
    parul Member Posts: 24
    #48
    danbren2 said:

    No Chemo!

    Parul,

         I have never had chemo, and only cyber knife radiation after tumor found in brain in Nov.  All of my RCC has been able to be surgically removed and unfortunately has been poping up in other places in the body.  But all has been removed and now at this time, this moment I am NED! (Thanks for the NED clarification Nano!)  I am very happy to be here and still fighting with all my being! This sight and all of these surviviors have become so imporatant to me, and they have made it very clear that life if what we make it, no matter what the circumstances are that we have to deal with.

         I am wishing you a Merry Christmas and a very Happy New Year!

                                                        Love and prayers for good health!

                                                         Brenda

    Thanks nano .. 
    thanks :

    Thanks nano .. 

    thanks :

  • rchalmer
    rchalmer Member Posts: 15
    #49
    2 years 3 months

    Since Diagnosis and 2 years and 2 months since I had a partial Nephrectomy on my right kidney. 

    Been having anxiety about going back in for my next CT scan. I'm glad I found this site!

     

    -Ross

  • mark_rich_hk
    mark_rich_hk Member Posts: 2
    #50
    Newbie

    Hi there

    I'm new to all this and still a bit shellshocked !!  However, the stories here are incredibly inspirational.

    Thank you very much.

    Mark

  • Kat23502
    Kat23502 Member Posts: 179 Member
    #51
    mark_rich_hk said:

    Newbie

    Hi there

    I'm new to all this and still a bit shellshocked !!  However, the stories here are incredibly inspirational.

    Thank you very much.

    Mark

    Hello Mark. This is a great

    Hello Mark. This is a great site for support and information! What is your story? Perhaps start a new thread and introduce yourself!

  • mark_rich_hk
    mark_rich_hk Member Posts: 2
    #52
    Kat23502 said:

    Hello Mark. This is a great

    Hello Mark. This is a great site for support and information! What is your story? Perhaps start a new thread and introduce yourself!

    Hello Kat, Recently an

    Hello Kat, Recently an unwanted guest was found on my left kidney of around 90mm.  I am advised RCC poss stage 4. Am awaiting news from hospital re surgery (scary!) and at same time am hitting nutrition big time, in the hope it will help - as I need to get through this and continue to look after my daughter for many years to come.  Will consider the new thread idea, thanks.

    The stories here are great and incredibly reassuring and inspirational.

  • Qt34167
    Qt34167 Member Posts: 41
    #53
    2 years

    survival is a function of stage.  I am stage 4 and feel lucky to be here.  I have had some hiccups but am hoping to break the elusive 5 year thresold for stage 4 RCC patients.  If not, I am ready at anytime.   I am 58 and had a wonderful life.  I have been living more these last two years tan the prior ten

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #54
    Qt34167 said:

    2 years

    survival is a function of stage.  I am stage 4 and feel lucky to be here.  I have had some hiccups but am hoping to break the elusive 5 year thresold for stage 4 RCC patients.  If not, I am ready at anytime.   I am 58 and had a wonderful life.  I have been living more these last two years tan the prior ten

    How long, baby how long.

    3 years and 9 months. Aint planning on dying any day soon.

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    edited March 2017 #55
    Almost 15 years

    Now that this post is almost 6 years old, just add those 6 years to my earlier answer.

     

     

    Icemantoo

  • Ree_Maryland
    Ree_Maryland Member Posts: 161 Member
    edited March 2017 #56
    MandyBear said:

    long term survivor
    I had a huge renal cell carcinoma and am alive 30 years now! I never thought it was possible but I do believe miracles happen everyday. Good luck. Watch your protein intake, take Vitamin C and reduce your stress.

    GOOD FOR YOU , BUT WHY VIT C?

    GOOD FOR YOU , BUT WHY VIT C? It will be 3years in April since i had RCC, I do not think about it that much . I try to keep a positive attitude ,but I still drink coffee and that bad?

  • Hd67xlch
    Hd67xlch Member Posts: 151 Member
    #57
    Not long enough yet...............

    Going on 6 years now,  3 surgeries and no meds and feel great.

  • Dutch1
    Dutch1 Member Posts: 152
    edited March 2017 #58
    Four for four

    Four years at stage 4.  A blessing.  Still going good.

  • CRashster
    CRashster Member Posts: 241 Member
    #59
    9 months.

    New guy. My very first post. In May they discovered a signicant tumor on my left kidney and immedately removed it. No chemo, no mets, the surgery was bad enough. SO, it's 9 months for me, I'm 52. Now, I have fun every day. Got no time for anything else. Glad to have found this group it's exactly what I needed. I'll post more about me later. Just wanted to say hi.

  • shaval123
    shaval123 Member Posts: 9
    #60
    Over 2 years and counting!

    December was 2 years after my surgery and all is great. I live a very busy and happy lifestyle.

  • Ree_Maryland
    Ree_Maryland Member Posts: 161 Member
    #61
    3 YRS Since my RCC doing

    3 YRS Since my RCC doing great ,my creatine is creeping up though. other than that ok , have to upgrade the dose on my Levathronzine for thyroid. 

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