Scans moved up 4 hours.
So instead of being at 2:45pm tomorrow, I get to start drinking that yummy stuff at 8:45am for the scans at 10:45am. I'm a little apprehensive about these, but hopefully they will turn out clear. If you can, please cross your fingers for me.
Comments
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Scanxiously awaiting results
You got this, Tillie! I'm sure by now the tests are done and you are scanxiously awaiting the results. I'm crossing my fingers for you and lifting you in prayer! Everything's gonna be just fine, you'll see!
Sindy
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Not yet, Sindy. They aretwinthings said:Scanxiously awaiting results
You got this, Tillie! I'm sure by now the tests are done and you are scanxiously awaiting the results. I'm crossing my fingers for you and lifting you in prayer! Everything's gonna be just fine, you'll see!
Sindy
Not yet, Sindy. They are tomorrow morning.
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oops!TillieSOK said:Not yet, Sindy. They are
Not yet, Sindy. They are tomorrow morning.
I clearly need to pay closer attention, huh?! Today's the day and I'll be thinking about ya!!
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Drinking my "banana smoothie"twinthings said:oops!
I clearly need to pay closer attention, huh?! Today's the day and I'll be thinking about ya!!
Drinking my "banana smoothie" as I type. Yummy.....NOT! LOL. Saving the "mixed berry smoothie" for last. Hurk!
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Saw the dr today
And am scheduled for a PET on Friday. "Several" nodules in my right lung and a hyper-dense? mass on my thyroid. On the brighter side, the spot on my liver and the 8mm spot in my left kidney haven't grown in the past three months. The place on the liver is tender to the touch, though, so maybe it's just a cyst or a bruised place. I'm not anemic anymore! Yay! And my GFR is 37 now! That's up 3 points From the last bloodwork. My creatinine is down from the last labs, and that is good. My bloodwork is looking better than it has in a long time. Go, me!
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GFRTillieSOK said:Saw the dr today
And am scheduled for a PET on Friday. "Several" nodules in my right lung and a hyper-dense? mass on my thyroid. On the brighter side, the spot on my liver and the 8mm spot in my left kidney haven't grown in the past three months. The place on the liver is tender to the touch, though, so maybe it's just a cyst or a bruised place. I'm not anemic anymore! Yay! And my GFR is 37 now! That's up 3 points From the last bloodwork. My creatinine is down from the last labs, and that is good. My bloodwork is looking better than it has in a long time. Go, me!
Tillie.
Glad to see your GFR is going up although 37 is still way too low. Lets see the mid 40's at least. Mine had hit a low of 41 and is now up to 47. W e both still have age aganst us and that wiil effect us negatively as we age.
Icemantoo
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Will be thinking of you onTillieSOK said:Saw the dr today
And am scheduled for a PET on Friday. "Several" nodules in my right lung and a hyper-dense? mass on my thyroid. On the brighter side, the spot on my liver and the 8mm spot in my left kidney haven't grown in the past three months. The place on the liver is tender to the touch, though, so maybe it's just a cyst or a bruised place. I'm not anemic anymore! Yay! And my GFR is 37 now! That's up 3 points From the last bloodwork. My creatinine is down from the last labs, and that is good. My bloodwork is looking better than it has in a long time. Go, me!
Will be thinking of you on Friday Tillie. Keep that terrific attitude of yours!
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Go you!!TillieSOK said:Saw the dr today
And am scheduled for a PET on Friday. "Several" nodules in my right lung and a hyper-dense? mass on my thyroid. On the brighter side, the spot on my liver and the 8mm spot in my left kidney haven't grown in the past three months. The place on the liver is tender to the touch, though, so maybe it's just a cyst or a bruised place. I'm not anemic anymore! Yay! And my GFR is 37 now! That's up 3 points From the last bloodwork. My creatinine is down from the last labs, and that is good. My bloodwork is looking better than it has in a long time. Go, me!
Oh how I admire your strength, Tillie!! It all sounds so scary, yet you remain positive and upbeat. I am glad you're not having to wait too long for the PET scan, and, hopefully you won't have to wait long on results. I'll keep my fingers crossed for the best possible outcome.
Now, could someone please tell me what GFR is and where I might find mine? I have my pathology report as well as all lab/blood work, but I don't recall seeing that.
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The eGFR or GFR is thetwinthings said:Go you!!
Oh how I admire your strength, Tillie!! It all sounds so scary, yet you remain positive and upbeat. I am glad you're not having to wait too long for the PET scan, and, hopefully you won't have to wait long on results. I'll keep my fingers crossed for the best possible outcome.
Now, could someone please tell me what GFR is and where I might find mine? I have my pathology report as well as all lab/blood work, but I don't recall seeing that.
The eGFR or GFR is the glomolar filtration rate. Tells how well your kidney is filtering all the toxins out of your system. (I had no idea what it was 2 months ago, now listen to me! LOL) the normal rate is 60+. Mine was 34, then 37, so it's going in the right direction. I'm also NOT anemic anymore! WoooHoooo! I'll never see 60 on a GFR again, but I can get into the 40's.
It'll be on your lab work.
somebody correct me if I was wrong on my explanation.
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GFR
Sidny,
If you serch for tittles on the first page under Kidney Cancer and insert GFR you should find a few posts titled GFR which measures Kidney function. Having a neph lowers your GFR. Having high blood pressure lowers your GFR. Having Diabetes lowers your GFR. Getting older lowers your GFR. Once your GFR goes below 15 you go on dialysis. Very very few of us will get that low even with a neph and getting older. That is why having a normal BP is so important for us.
Addtionally a low GFR leads to heart issues. If your GFR remains too low you are much more likely to have a heart issue from decreased Kinbey function than any kind of Kidney failure. The long and the short of it is that a neph can contribute to heart issues over years that have no relation to a recurrance of RCC.
When I first saw a Nephrologist 2 years ago my GFR was 41 or 43. It is now up to 47 with more BP medication, I asked my Urologist and GP for a referrral to a Nephrologist and both said I did not need one. At the time I had a flare up of gout which is Kidney related. As I was on medicare I did not need a referral. My Nephrologist saidl I did the right thing and my GP accepts the fact that as far BP my Nephrologist is in charge. My Urologist acknowledges I did what I did without comment.
I personally think from my own experience that any club member should see a Nephroogist with a Gout or other Kidney issue and/or a GFR under 50.
Icemantoo
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GFRTillieSOK said:The eGFR or GFR is the
The eGFR or GFR is the glomolar filtration rate. Tells how well your kidney is filtering all the toxins out of your system. (I had no idea what it was 2 months ago, now listen to me! LOL) the normal rate is 60+. Mine was 34, then 37, so it's going in the right direction. I'm also NOT anemic anymore! WoooHoooo! I'll never see 60 on a GFR again, but I can get into the 40's.
It'll be on your lab work.
somebody correct me if I was wrong on my explanation.
Thank you, Tillie and Iceman! I appreciate your wisdom. I have so much to learn but, thanks to this site and the kindness of you guys, I AM learning. Tillie, as I poured thru my lab reports for the umpteenth time, looking for GFR or Glomolar Filtration Rate, it occured to me that all I have are records from my neph. It probably wasn't measured then. I had blood drawn at my 6 week post-op appointment so surely it was measured at that time, I just didn't know to ask about it. I hate to sound naive by saying, if my GFR were too low, the doctor would have told me, but, that's really all I can do. I have my first post-op scan (a chest x-ray), late November. I will also have blood drawn for a CBC and CMP (?). I will find out at that time, what my GFR is because now, I know to ask. Knowledge is most definitely power!! You guys ROCK!
I'll be thinking about you tomorrow, Tillie. Sending good vibes your way and lifting you in prayer!
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Thanks for the good thoughts,twinthings said:GFR
Thank you, Tillie and Iceman! I appreciate your wisdom. I have so much to learn but, thanks to this site and the kindness of you guys, I AM learning. Tillie, as I poured thru my lab reports for the umpteenth time, looking for GFR or Glomolar Filtration Rate, it occured to me that all I have are records from my neph. It probably wasn't measured then. I had blood drawn at my 6 week post-op appointment so surely it was measured at that time, I just didn't know to ask about it. I hate to sound naive by saying, if my GFR were too low, the doctor would have told me, but, that's really all I can do. I have my first post-op scan (a chest x-ray), late November. I will also have blood drawn for a CBC and CMP (?). I will find out at that time, what my GFR is because now, I know to ask. Knowledge is most definitely power!! You guys ROCK!
I'll be thinking about you tomorrow, Tillie. Sending good vibes your way and lifting you in prayer!
Thanks for the good thoughts, twinnie. And that should be GLOMULAR...stupid fat fingers. LOL. I'll be fine no matter what the PET shows. I had a "hinky" feeling about these last CT's and was kind of suspecting there would be something show up. Maybe I'm psycho! Oh wait....that should say PSYCHIC! (or maybe not!
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Pet Scan!TillieSOK said:The eGFR or GFR is the
The eGFR or GFR is the glomolar filtration rate. Tells how well your kidney is filtering all the toxins out of your system. (I had no idea what it was 2 months ago, now listen to me! LOL) the normal rate is 60+. Mine was 34, then 37, so it's going in the right direction. I'm also NOT anemic anymore! WoooHoooo! I'll never see 60 on a GFR again, but I can get into the 40's.
It'll be on your lab work.
somebody correct me if I was wrong on my explanation.
Hey Tillie, I am still waiting on that glass of red! I will be thinking of you tomorrow:) To try to improve your filtration, look up the benefits of Nettle Leaf Tea. I drink Nettle an Chamomile every day, they make a nice cuppa too!
Djinnie x
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You're in my thoughts todayTillieSOK said:Thanks for the good thoughts,
Thanks for the good thoughts, twinnie. And that should be GLOMULAR...stupid fat fingers. LOL. I'll be fine no matter what the PET shows. I had a "hinky" feeling about these last CT's and was kind of suspecting there would be something show up. Maybe I'm psycho! Oh wait....that should say PSYCHIC! (or maybe not!
Sending good, positive energy your way today, Tillie!! I have a "hinky" feeling everything's gonna be OK
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Sure hope you're right. Itwinthings said:You're in my thoughts today
Sending good, positive energy your way today, Tillie!! I have a "hinky" feeling everything's gonna be OK
Sure hope you're right. I won't know anything until Tuesday, unless they mess up and it's on my patient portal file on Monday.
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Best Wishes
Tillie, you are in my thoughts and prayers: "May the sun bring you new energy by day. May the moon softly restore you by night. May the rain wash away your worries. May the breeze
blow new strength into your being. May you walk gently through the world and know its beauty all the days of your life." I'm just across the river if you ever want to talk. Hope all went well Friday. '0
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