Recurrent Sweets Syndrome in Left Arm Lymphaedema Post Mastectomy

emamei
emamei Member Posts: 146 Member
in Breast Cancer #1

Hello.

It has been a while since I've posted anything here.  I'm nearly two years out, post treatment for Triple Negative Invasive Ductal Carcinoma - Stage 2 - Grade 3.

After all the surgeries (I had three in total) and the removal of 18 Axillary Lymph Nodes, I have Lymphedema in my left arm and hand.  I use compression garments and a pump to manage swelling.

I am presently experiencing my third recurrence of Sweets Syndrome in my affected arm and once again on serious antibiotics.  I see my oncologist later this morning.

For those of you who may not have heard of Sweets Syndrome here is some info from the Mayo Clinic...http://www.mayoclinic.com/health/sweets-syndrome/DS00752

This current bout of Sweets is the 2nd since the beginning of June and I'm really getting scared that it could mean the cancer is making a comeback Cry

Have any of you experienced Sweets Syndrome/Lymphaedema ??  If yes, I'd like to hear from you.  I'm so scared right now.

Comments

  • coco2008
    coco2008 Member Posts: 418
    #2
    i have no experience with

    i have no experience with this, but read about it on the website you provided. With the symptoms they stated where in the world did they get such a cute name.

    I pray that this goes away and never returns.

    Hugs, Sandy

  • New Flower
    New Flower Member Posts: 4,294
    #3
    coco2008 said:

    i have no experience with

    i have no experience with this, but read about it on the website you provided. With the symptoms they stated where in the world did they get such a cute name.

    I pray that this goes away and never returns.

    Hugs, Sandy

    Hi Maria

    I looked at the pictures and wondered if I have had it. It was diagnosed as allergy and it did happended to me 2 years ago. The treatment was the same steroids- prednisolone.I ahve picture at my page backin 2011 *second or third) page

  • Pink Rose
    Pink Rose Member Posts: 493
    #4
    I have never heard of this

    I have never heard of this and I am so sorry you have it.  I hope you get rid of it and it never returns.

    Hugs, Rose

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #5
    Pink Rose said:

    I have never heard of this

    I have never heard of this and I am so sorry you have it.  I hope you get rid of it and it never returns.

    Hugs, Rose

    Like so many Sisters in PINK 00

    this is the first time I've heard of 'Sweets Syndrome' ..  Thank you for posting and bringing this forward.   Many of our Sisters in PINK suffer from Lymphadema .. hoping your link will bring relief to those suffering.

     

    Strength, Courage and HOPE for a Cure.

    Vicki Sam

     

     

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