SuperThread Updates...

Skiffin16
Skiffin16 Member Posts: 8,305 Member
in Head and Neck Cancer #1

It's not gone..., LOL, just misplaced...

You all don't think I wouldn't have a copy do you... Cool

I just have to fix a few of the links on the one I have and do a little updating, but I have it.

I spoke with Greta, and she's aware that it's MIA...

Once I get the few things fixed I'll post it again and she can pin it.

But while I'm fixing it I wanna take the opportunity to solicite any new information or sites that you think should be included.

John

Comments

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #2
    The one thing

    I always looked for was a picture of the PEG.  I wanted to see what I was getting :)  There was one posted but when I clicked on it, it was so tiny I couldn't really tell what it was.  Also, that the 3 little "button-like feet" that sits under the plastic disc are removed.  Those were honestly the only two things that I looked for that I couldn't find on there. (I did a lot of reading on that thread!!) 

     

    And maybe some suggestions for dealing with "tape rash".  I posted about it and some of the people on here had some INCREDIBLE ideas!!

  • Hondo
    Hondo Member Posts: 6,636 Member
    #3
    Superthread

    Hi John

    On Superthread how can we get NPC added to the list of acronyms under

    Definitions of commonly used abbreviations and terms

    NPC Nasopharyngeal Carcinoma

    Is it something you can do or can you greta to do it.

    Hondo

     

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #4
    TracyLynn72 said:

    The one thing

    I always looked for was a picture of the PEG.  I wanted to see what I was getting :)  There was one posted but when I clicked on it, it was so tiny I couldn't really tell what it was.  Also, that the 3 little "button-like feet" that sits under the plastic disc are removed.  Those were honestly the only two things that I looked for that I couldn't find on there. (I did a lot of reading on that thread!!) 

     

    And maybe some suggestions for dealing with "tape rash".  I posted about it and some of the people on here had some INCREDIBLE ideas!!

    Old Photos...

    Yes, some of the old photos some how became thumb nails... I'll see if I can find the originals from Dawn's threads, or see if she still has them...

    Do you happen to know which thread on the tape rash?

    Thanks,

    John

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #5
    Hondo said:

    Superthread

    Hi John

    On Superthread how can we get NPC added to the list of acronyms under

    Definitions of commonly used abbreviations and terms

    NPC Nasopharyngeal Carcinoma

    Is it something you can do or can you greta to do it.

    Hondo

     

    NPC

    I can do that...

    Greta found the old thread, but when she posted it, she didn't pin it to the top But it also won't allow me to make edits...

    I'm going to work on the one I have. do some updates and repost.

    She'll make it read only and pin it to the top again.

    That way I can make edits whenevr I want, or someone asks me to put something on it.

    JG

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #6
    Skiffin16 said:

    Old Photos...

    Yes, some of the old photos some how became thumb nails... I'll see if I can find the originals from Dawn's threads, or see if she still has them...

    Do you happen to know which thread on the tape rash?

    Thanks,

    John

    I think it was mine

    called the PEG tube question or something like that.  There were some great ideas on how to avoid tape rash.  

     

    I have some pics of my PEG that I'm fine with sharing, but don't know how to post them.  I could send them to you if you need any? 

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #7
    TracyLynn72 said:

    I think it was mine

    called the PEG tube question or something like that.  There were some great ideas on how to avoid tape rash.  

     

    I have some pics of my PEG that I'm fine with sharing, but don't know how to post them.  I could send them to you if you need any? 

    PEG

    I'll get with you...

    I think all of the one's Dawn had are on her expressions page, just not sure if they went to thumb nails.

    Thanks,

    John

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