Probably just wishful thinking, BUT.....

Once when George had a liver biopsy it did come back negative, necrotic (dead) tissue.  Unfortuntely, the onc then ordered another liver biopsy from a different area and it was positive.  George had a drastic spike in CEA so we knew something was definitely going on so it was off the mainenance chemo which he had been on for more than a year and back to the hard stuff.

One never knows until you get the results. 

Take care - Tina

It's not fair and cancer does suck!!   I'm sorry Kris - no idea about the tumors, but I'll say a prayer that they will be benign!

but prayers, love and support, yes. 

This is where you can comer to vent. You deserve to vent, we all do. 

This isn't not a fun journey, all of us at different place (I was going to say stages, but I didn't mean the stages of cancer, some of us doing well, others fighting hard. 

My prayers are with Jason and yourself. Live with the dream of the turn our being benign, and then reality when the results are in. 

God bless!

gizzyluv said:

The biopsy results are in.....

Jason went for chemo today, which didn't happen because he is running a fever (probably from the liver biopsy), so they put him on antibiotics & postponed his chemo for 2 weeks. The doctor said the biopsy results showed that the tumor(s) in his liver ARE from the primary tumor in his colon, & also he is negative for the KRAS gene, which apparently is good because there are more treatment options available. So.....so much for the tumors being benign. Just gotta keep praying that the new chemo regimen he is on will do the trick, & if not, hopefully they can do some other kind of treatment. ((((HUGS)))) to you all! Kris

there are folks out there who have had good success with chemo, even with extensive spread.  The fact that he has more tx options is great, and you never know when something else is going to come up.  There is still hope for Jason, and you've always got us to "talk" to when you need it.  Who understands better than us what you're going through?  I lost my mom in November (although not to cancer, and she was pretty elderly, but still a hard loss), and my sister to cancer eight years ago.  I totally agree with you...cancer sucks.  Hugs to you both~AA

Have been thinking of you both since I've read this post and I'm just hoping that his new treatment will help.  My thoughts are with you both as your journey through this new path.  I'm glad that he doesn't have the bad gene and this will give me more options.  Hope your doctor gives you some great options.

Kim

gizzyluv said:

"Tumor Fever" IS a real thing!

I had asked a while back if anyone had heard of "tumor fever" because Jason had fevers off & on...? I posted that he had his liver biopsy Tuesday, woke up w/ a fever Wednesday, so no chemo & was sent home on antibiotics.....now for the REST of the story.....his fever had gone away but then around 8:00 in the evening he asked me to take his temp. again because he wasn't feeling well....101.7. He took Tylenol but his fever just kept climbing, so I called his doctor & he said just to go ahead & take him to the hospital, thank god he called the ER ahead of time & told them that he was being admitted which meant we didn't have to spend the better part of the night & morning 'waiting', so he got to his room & apparently the Tylenol hadn't done anything, his fever was 102.8, then went up to 103.1....THAT was scary. Doc gave him some kind of steroid & believe it or not it brought his fever right down.  Anyway, they did blood cultures, urine test, more blood tests, another CT Scan & a chest x-ray, & according to the oncologist all of the tests they did was negative for any kind of infection, & no change in his CT Scan & x-ray from the last one, so it was concluded that when they did the liver biopsy some toxin/bacteria must have strayed & that was what was causing the fever. Dod said in other words he had "Tumor Fever".....So, apparently that's a real affliction. We also learned that his WBC count was low, which he had never had a problem with while he was on the Oxaliplatin, but he got his first round of Irinotecan a couple of weeks ago so now he is gonna have to get the "Neulasta" shot to keep his WBC counts up. Has anyone had the same problem w/ Irinotecan? He has a follow-up appointment Wednesday to get the shot & also to see if he will be getting chemo that day or if they are still gonna wait another week. (btw, they gave him 2 hard hitting antibiotics while he was in the hospital, so unless the fever comes back he no longer has to take the ones his doctor gave him earlier on Wednesday.) So, if he tolerates the Irinotecan well he will probably have to get the neulasta shot after each chemo treatment. Sorry this is so lengthy. (((HUGS))) Kris

I have had a fever every late afternoon till early morning for the last 6 months. Its somehow caused by the tumours themselves in my case anyway. It ranges from 37.5 to 39 Celsius. Nothing much that I can do about it and has become the new normal. 

gizzyluv said:

"Tumor Fever" IS a real thing!

I had asked a while back if anyone had heard of "tumor fever" because Jason had fevers off & on...? I posted that he had his liver biopsy Tuesday, woke up w/ a fever Wednesday, so no chemo & was sent home on antibiotics.....now for the REST of the story.....his fever had gone away but then around 8:00 in the evening he asked me to take his temp. again because he wasn't feeling well....101.7. He took Tylenol but his fever just kept climbing, so I called his doctor & he said just to go ahead & take him to the hospital, thank god he called the ER ahead of time & told them that he was being admitted which meant we didn't have to spend the better part of the night & morning 'waiting', so he got to his room & apparently the Tylenol hadn't done anything, his fever was 102.8, then went up to 103.1....THAT was scary. Doc gave him some kind of steroid & believe it or not it brought his fever right down.  Anyway, they did blood cultures, urine test, more blood tests, another CT Scan & a chest x-ray, & according to the oncologist all of the tests they did was negative for any kind of infection, & no change in his CT Scan & x-ray from the last one, so it was concluded that when they did the liver biopsy some toxin/bacteria must have strayed & that was what was causing the fever. Dod said in other words he had "Tumor Fever".....So, apparently that's a real affliction. We also learned that his WBC count was low, which he had never had a problem with while he was on the Oxaliplatin, but he got his first round of Irinotecan a couple of weeks ago so now he is gonna have to get the "Neulasta" shot to keep his WBC counts up. Has anyone had the same problem w/ Irinotecan? He has a follow-up appointment Wednesday to get the shot & also to see if he will be getting chemo that day or if they are still gonna wait another week. (btw, they gave him 2 hard hitting antibiotics while he was in the hospital, so unless the fever comes back he no longer has to take the ones his doctor gave him earlier on Wednesday.) So, if he tolerates the Irinotecan well he will probably have to get the neulasta shot after each chemo treatment. Sorry this is so lengthy. (((HUGS))) Kris

gizzyluv said:

The biopsy results are in.....

Jason went for chemo today, which didn't happen because he is running a fever (probably from the liver biopsy), so they put him on antibiotics & postponed his chemo for 2 weeks. The doctor said the biopsy results showed that the tumor(s) in his liver ARE from the primary tumor in his colon, & also he is negative for the KRAS gene, which apparently is good because there are more treatment options available. So.....so much for the tumors being benign. Just gotta keep praying that the new chemo regimen he is on will do the trick, & if not, hopefully they can do some other kind of treatment. ((((HUGS)))) to you all! Kris

Sorry that it is a tumor.  At least you have many options, and being KRAS negative is good, at least in terms of drugs to go after the cancer.  Your posts are sounding better so I hope you are doing better dealing with your husband's diagnosis.  I always find the waiting for test results the hardest.  Once I know the score and can formulate a game plan I'm much better.  Hope the FOLFIRI knocks the tumors down.  I never had the Neutropena problem with Irinotecan but that could be because I could not tolerate a whole dose due to uncontrolled diarreha, or could be because I had xeloda instead of 5-FU.  I did have to take neulasta shots when on FOLFOX after 12 rounds.  Hope things go well, keep us posted.  Traci

gizzyluv said:

"Tumor Fever" IS a real thing!

I had asked a while back if anyone had heard of "tumor fever" because Jason had fevers off & on...? I posted that he had his liver biopsy Tuesday, woke up w/ a fever Wednesday, so no chemo & was sent home on antibiotics.....now for the REST of the story.....his fever had gone away but then around 8:00 in the evening he asked me to take his temp. again because he wasn't feeling well....101.7. He took Tylenol but his fever just kept climbing, so I called his doctor & he said just to go ahead & take him to the hospital, thank god he called the ER ahead of time & told them that he was being admitted which meant we didn't have to spend the better part of the night & morning 'waiting', so he got to his room & apparently the Tylenol hadn't done anything, his fever was 102.8, then went up to 103.1....THAT was scary. Doc gave him some kind of steroid & believe it or not it brought his fever right down.  Anyway, they did blood cultures, urine test, more blood tests, another CT Scan & a chest x-ray, & according to the oncologist all of the tests they did was negative for any kind of infection, & no change in his CT Scan & x-ray from the last one, so it was concluded that when they did the liver biopsy some toxin/bacteria must have strayed & that was what was causing the fever. Dod said in other words he had "Tumor Fever".....So, apparently that's a real affliction. We also learned that his WBC count was low, which he had never had a problem with while he was on the Oxaliplatin, but he got his first round of Irinotecan a couple of weeks ago so now he is gonna have to get the "Neulasta" shot to keep his WBC counts up. Has anyone had the same problem w/ Irinotecan? He has a follow-up appointment Wednesday to get the shot & also to see if he will be getting chemo that day or if they are still gonna wait another week. (btw, they gave him 2 hard hitting antibiotics while he was in the hospital, so unless the fever comes back he no longer has to take the ones his doctor gave him earlier on Wednesday.) So, if he tolerates the Irinotecan well he will probably have to get the neulasta shot after each chemo treatment. Sorry this is so lengthy. (((HUGS))) Kris

I have been trying to get on CSN all week.  Poor Jason all I can say is we will keep him and everyone on the site in our thoughts & prayers.  

My husband did ok on the  Irinotecan just some nausea and he lost his hair, I think he did 5 treatments .   I know all of this stuff is so overwhelming especially when you both are not getting a break.   Hang in there,

Hugs George & Dyan

Chelsea71 said:

It seems to me that anyone
It seems to me that anyone having significant liver metastasis seems to experience tumor fever. Comes on late aft, early evening, gradually climbs and breaks in the night. For Steve, this started two weeks after his last Folfiri session. It was one sign (out of several) that suggested to me that his cancer was progressing. Fatigue set in, as well. The nurses on the cancer ward say they see a lot of it. Tumor fever is very common in blood cancers and lymphomas. It is also seen frequently with cancer that has metastasized to the liver.

in the six months before I was dx'ed, i ran a daily fever. For several months, just a degree or two, and then as I got sicker, I started spiking fevers of 102-103 (but I think those were due to the fact that I had peritonitis, from my tumor eating its way through my colon).

After I had surgery, the fevers went away and didn't return until I had a recurrence the next year.

So I do think these fevers can just be part of the body's response to the cancer. It's too bad that it's not always enough to do in the SOB.