Paralyzed by Fear - NO MORE = NED - UPDATED

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Comments

  • NJShore
    NJShore Member Posts: 429 Member
    #22
    So, So, So Happy for you!!

    Joe,

    Great news! Boy I was getting nervous there for you! So glad it was the jitters and very happy everything "is OK!".

    Hope you two are celebrating tonight!

    Many, many more good years of the same for you!

    Kari (and Dan!)

  • donfoo
    donfoo Member Posts: 1,773 Member
    #23
    Xcellent!

    Glad you got the great news and put this behind you. Enjoy. don

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    #24
    NED!

    J,

    That's what I like to see! Congrats on the NED report! Now... celebrate!

    "T"

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #25
    OK...Here It Is... Club NED

    I knew you had it in you...., now you don't.

    Now keep it that way brother...

    Welcome to Club NED...

    JG

  • jcortney
    jcortney Member Posts: 503
    #26
    Thanks guys

    Feeling pretty good today.  Just ate two small slices pepperoni pizza (except the crust).  It was a challenge but got it down.

    The other thing I liked hearing from the doc was my new schedule.  I'll have 3 CT's (head to pelvis) at three month intervals then one more PET.  After that it's CT's at six month intervals and no PET's.  Office visits cut from every week to every other week until I gain some weight and the swelling goes down on my tongue and epiglottis.  Won't see the Doc very often (every couple of visits or so.  His NP and nutritionist are pretty amazing)  He told me he has sick people to treat.

    If it's alright with you guys I'm going to hang around here and see if I can help people as much as you all helped me.

    Thanks,

    J.

  • HobbsDoggy
    HobbsDoggy Member Posts: 276
    #27
    Support Counts

    Having a great support team at home and in the medical communty means so much.  The scans and check ups are gut turning and for clear reasons.  It should be a good thing in some ways.  It gives us a feeliing that we are now free again to go forward to do normal things.  I pray for clear scans for all.  We deserve some for all we have goine though. 

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #28
    jcortney said:

    Thanks guys

    Feeling pretty good today.  Just ate two small slices pepperoni pizza (except the crust).  It was a challenge but got it down.

    The other thing I liked hearing from the doc was my new schedule.  I'll have 3 CT's (head to pelvis) at three month intervals then one more PET.  After that it's CT's at six month intervals and no PET's.  Office visits cut from every week to every other week until I gain some weight and the swelling goes down on my tongue and epiglottis.  Won't see the Doc very often (every couple of visits or so.  His NP and nutritionist are pretty amazing)  He told me he has sick people to treat.

    If it's alright with you guys I'm going to hang around here and see if I can help people as much as you all helped me.

    Thanks,

    J.

    NED! Great to see you again!

    Great news! Thanks for sharing!

    Deb

  • peggylulu
    peggylulu Member Posts: 375
    #29
    Congratulations !!!!

    On NED !! I am so happy to hear your great news !

    Peggy

  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #30
    peggylulu said:

    Congratulations !!!!

    On NED !! I am so happy to hear your great news !

    Peggy

    Now that is GOOD news ...

    Very happy for you ....ahhh, the grass is sooo green and the sky sooo blue today after that news wasn't it?  :)

     

    Tim

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #31
    jcortney said:

    Thanks guys

    Feeling pretty good today.  Just ate two small slices pepperoni pizza (except the crust).  It was a challenge but got it down.

    The other thing I liked hearing from the doc was my new schedule.  I'll have 3 CT's (head to pelvis) at three month intervals then one more PET.  After that it's CT's at six month intervals and no PET's.  Office visits cut from every week to every other week until I gain some weight and the swelling goes down on my tongue and epiglottis.  Won't see the Doc very often (every couple of visits or so.  His NP and nutritionist are pretty amazing)  He told me he has sick people to treat.

    If it's alright with you guys I'm going to hang around here and see if I can help people as much as you all helped me.

    Thanks,

    J.

    Hang Out...

    I for one would be delighted to have you hang around for as long as like offering support and sharing your experiences...

    JG

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