Paralyzed by Fear - NO MORE = NED - UPDATED

NJShore

So, So, So Happy for you!!

Joe,

Great news! Boy I was getting nervous there for you! So glad it was the jitters and very happy everything "is OK!".

Hope you two are celebrating tonight!

Many, many more good years of the same for you!

Kari (and Dan!)

donfoo

Xcellent!

Glad you got the great news and put this behind you. Enjoy. don

fishmanpa

NED!

J,

That's what I like to see! Congrats on the NED report! Now... celebrate!

"T"

Skiffin16

OK...Here It Is... Club NED

I knew you had it in you...., now you don't.

Now keep it that way brother...

Welcome to Club NED...

JG

jcortney

Thanks guys

Feeling pretty good today.  Just ate two small slices pepperoni pizza (except the crust).  It was a challenge but got it down.

The other thing I liked hearing from the doc was my new schedule.  I'll have 3 CT's (head to pelvis) at three month intervals then one more PET.  After that it's CT's at six month intervals and no PET's.  Office visits cut from every week to every other week until I gain some weight and the swelling goes down on my tongue and epiglottis.  Won't see the Doc very often (every couple of visits or so.  His NP and nutritionist are pretty amazing)  He told me he has sick people to treat.

If it's alright with you guys I'm going to hang around here and see if I can help people as much as you all helped me.

Thanks,

J.

HobbsDoggy

Support Counts

Having a great support team at home and in the medical communty means so much.  The scans and check ups are gut turning and for clear reasons.  It should be a good thing in some ways.  It gives us a feeliing that we are now free again to go forward to do normal things.  I pray for clear scans for all.  We deserve some for all we have goine though. 

D Lewis

jcortney said:

Thanks guys

Feeling pretty good today.  Just ate two small slices pepperoni pizza (except the crust).  It was a challenge but got it down.

The other thing I liked hearing from the doc was my new schedule.  I'll have 3 CT's (head to pelvis) at three month intervals then one more PET.  After that it's CT's at six month intervals and no PET's.  Office visits cut from every week to every other week until I gain some weight and the swelling goes down on my tongue and epiglottis.  Won't see the Doc very often (every couple of visits or so.  His NP and nutritionist are pretty amazing)  He told me he has sick people to treat.

If it's alright with you guys I'm going to hang around here and see if I can help people as much as you all helped me.

Thanks,

J.

NED! Great to see you again!

Great news! Thanks for sharing!

Deb

peggylulu

Congratulations !!!!

On NED !! I am so happy to hear your great news !

Peggy

Tim6003

peggylulu said:

Congratulations !!!!

On NED !! I am so happy to hear your great news !

Peggy

Now that is GOOD news ...

Very happy for you ....ahhh, the grass is sooo green and the sky sooo blue today after that news wasn't it? 

 

Tim

Skiffin16

jcortney said:

Thanks guys

Feeling pretty good today.  Just ate two small slices pepperoni pizza (except the crust).  It was a challenge but got it down.

The other thing I liked hearing from the doc was my new schedule.  I'll have 3 CT's (head to pelvis) at three month intervals then one more PET.  After that it's CT's at six month intervals and no PET's.  Office visits cut from every week to every other week until I gain some weight and the swelling goes down on my tongue and epiglottis.  Won't see the Doc very often (every couple of visits or so.  His NP and nutritionist are pretty amazing)  He told me he has sick people to treat.

If it's alright with you guys I'm going to hang around here and see if I can help people as much as you all helped me.

Thanks,

J.

Hang Out...

I for one would be delighted to have you hang around for as long as like offering support and sharing your experiences...

JG