Update first IDC now SCC

DianeBC said:

Glad you're home now Patti. 

Glad you're home now Patti.  I can't imagine what you have been through.  Take it easy and keep ahead of the pain.

Thinking of you,

Diane

Lots of hugs and good thoughts for you!

Leeza

Patti1967 said:

Thanks all, it really means a

Thanks all, it really means a lot to me knowing you are all there!

Hugs to you all,

Patti

I saw you posted and wanted to know how are you feeling today?  In a lot of pain still?  I imagine you are.  Please take it easy if you can, take your pain pills, if you have some, and just relax.

Praying for you Patti,

Angie

Patti1967 said:

Thanks Angie, yep in some

Thanks Angie, yep in some pain but have a pretty strong bottle of liquid pain med.  I'm not as bad as yesterday so thats a plus:)

Hugs!

Patti

Good news that you're feeling better.  Just so sorry Patti for this.  You've got all of us pink sisters in your corner!

Hugs,

Debby

Ritzy said:

Take that liquid pain

Take that liquid pain medicine, so, you aren't hurting.  Praying, Praying and more Praying for you!

Sue

How are you feeling today Patti?  I pray better.

Hugs, Kylez

Patti1967 said:

Yeah I'm feeling better,

Yeah I'm feeling better, still can't eat or talk but the swelling is definitely going down and I haven't had to use any pain meds today:)  Thank you for asking!:)

Patti

Happy to read that you're feeling better.  Not happy that you can't eat or talk.  Are you just sipping liquids through a straw then Patti?  Will that be enough to sustain you?  When do you see the doctor again?

Lots of cyber hugs,

Lex

Patti1967 said:

Yeah I'm feeling better,

Yeah I'm feeling better, still can't eat or talk but the swelling is definitely going down and I haven't had to use any pain meds today:)  Thank you for asking!:)

Patti

Hi Patti,

I haven't been on the site much because I am in NY for my 6 month check-up.  I drove here from Florida last week with my husband and two crazy West Highland Terriers.  OMG, never again!!  I just wanted to see how you were doing.  I hope you continue to feel better each day.  You are in my thoughts and prayers.

Many, many hugs to you,

Ginny

Patti1967 said:

Ugh well not so great news

Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

Patti 

Hi Patti,

I am still hoping with all my heart that the lung nodule is not cancer.  I think you have been through quite enough now!! No matter what, you will survive whatever life throws at you.  You are clearly an amazing, positive person who will fight this.  I am sorry you have to deal with so much.  It is just not fair.  I hope you get to eat as much as humanly possible when those stitches come out.  I think you should try and gain those 6 pounds back in one day!! You deserve it.

As for me, I moved to Florida 6 months after being diagnosed, but I loved and trusted my oncologist so much that I travel back and forth every 6 months to see her.  I see her tomorrow.  

Please keep us posted.  You are in my thoughts and prayers.

Hugs,

Ginny

Patti1967 said:

Ugh well not so great news

Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

Patti 

So sorry Patti.  One good thing is it sounds like you have a great team of doctors that are helping you.  Continuing to pray for you and keep posting updates for us.

Huge hugs,

Angie