Postcard from Duderstadt Germany Goodnews CEA down to 2.9 ca199 down to 24 ITS SPRING AND ITS BEAUTI

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900
edited April 2013 in Colorectal Cancer #1

Dear Friends, 

I really do miss your company, and do lurk occaisionally, but am enjoying to chance to focus on my health 100% my way free of debate and challenge and with full support of my many doctors and close friends who share my beleifs with regard to experimental holistic therapies. To me that means protecting my positive focus and holistic beliefs from attack and dispute. I also spare many of you from my passionate belief in experimental and holistic therapies and my negative view of most conventional medicine.

So my withdrawal from here was really essential to my survival. I simply dont have the energy or the desire to defend myself from attacks. The ketogenic diet is going really well, a thoroughly enjoyable challenge. I feel and look better than I ever have. So I have gained 12 Kilograms , mostly muscle since starting german therapies 6 october 2012.

I have been eagerly awaiting these results with optimistic expectations and i was nt disappointed. Back in mid february I had (10+20+20) 50 micrograms of removab infused over 24 hours over a 3 week period. It caused the expected cea spike, tumour die ( which though expected was the first rise in 4 months ).

Now today I have my second fall in a fortnight down to comletely normal. the threshold here is 4.4. This is my lowest CEA since the recurence started 9th nvember 2011.

So my immune system is still eating tumour cells, I pray it continues. I have thanked God, my Doctors, myself and my friends. I have had so much support, its really made a difference.

SPRING has arrived, the town square here has come to life. this morning I woke up refreshed and prayed, to all my supplements and medications, did my daily urine and bloods tests. did my coffee enema and qigong and exercises. For me at least the holistic way to health. At breakfast I weighed every gram of food I will consume. Yes its a touch demanding , but strangely rewarding to be incontrol of every aspect of my nutrition and health. And to see the results reflected in my tumour markers and all the other tests ( far to many to mention here ) brings me enormous satisfaction that I might live to see another day or two or three. I have no guarantees, who does, but I have faith in my German miracle. Its still continuing and with the grace of God it will continue. I ask him everyday to keep it continuing.

The immunotherapy revolution is happening before my eyes. I am speaking at a conference in Frankfurt on GCMAF as an examaple of a successful patient. I got a free entry.

I got another top international conference in Mainz re immunotherapy and how to capitalise on it and the worlds leading scientists.

I am helping a few who contact me re these therapies, I think they just want reassurance that the results are real, at least that I am real.

My family arrives in a day for a months holiday, the same day my chemo port comes out due to a possible infection. Might get thhe hernia fied as well.

We might be flying to turkey for a week for Anzac day.

My life still consists of exercise, saunas, diet and lots of tests and supplements. I have this illness on the run and health firmly in my grasp. With Gods help I will not drop the ball at this point.

If you are interested in German holistic and experimental therapies that have one proven result, PM me anytime. I will get back to you when I can ( away from the net alot, which is really good )

I wish you all well.

Hugs,

Pete

PS The longer I live, the more extreme I get in a sense, so I can never really come back when I see the same suffering being done by "conventional therapies" when I have been blessed to have had such a more positive experience. It reminds me of my own suffering at the beginning of my healing journey. I am also clearly aware that we all need an authentic environment where our therapy choices match our beliefs. So I get  full support for my diet, for my lifestyle interventions and therapies from a few close friends. I appreciate all the kind thoughts and prayers over the years and I will send another postcard when I have some extrodinary news, likely in a month wen I have my final vogel chemo embolisation and mri and ct scan as a little 6 month preventitivee insurace policy.

http://petertrayhurn.blogspot.de/2013/04/postcard-from-duderstadt-germany.html my blog for therapy details, for a summary search for the media release.

 

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Comments

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Good to hear from you pete!
    Good to hear from you pete! Glad the tests are good too.
    enjoy your visit from the family and the spring weather! Its been beautiful here too....love spring.
  • Vancouver
    Vancouver Member Posts: 15
    Nice to hear good news

    Hi there,

    I'm glad you updated...been wondering...and so glad to hear that the news was good!  I plan on PM'ing you one of these days soon.  Very interested in immunotherapy as an option later down the road for my mom and would like to learn everything I can.  She is Stage IV with mets to the liver, but has had a dramatic response to xeloda (in our belief, this is also due to the complimentary alternative medicine she has been doing since diagnosis).  We will get the results from her CT next week--first CT since diagnosis and surgery in late September 2012.  Her CEA has dropped to 1.3 though, so we are hoping for good results!

    Very happy for you and wishing for your continued recovery,

    CT

     

  • thingy45
    thingy45 Member Posts: 632
    Vancouver said:

    Nice to hear good news

    Hi there,

    I'm glad you updated...been wondering...and so glad to hear that the news was good!  I plan on PM'ing you one of these days soon.  Very interested in immunotherapy as an option later down the road for my mom and would like to learn everything I can.  She is Stage IV with mets to the liver, but has had a dramatic response to xeloda (in our belief, this is also due to the complimentary alternative medicine she has been doing since diagnosis).  We will get the results from her CT next week--first CT since diagnosis and surgery in late September 2012.  Her CEA has dropped to 1.3 though, so we are hoping for good results!

    Very happy for you and wishing for your continued recovery,

    CT

     

    SUper GREAT

    Hello Pete,

    So glad to hear all is going so well for you. We all  have choices and you decided that this was the best choice for you and you have the means to persue it also.

    I am lurking, being still Ned and not of much help to others. Looking after daughter and family because she had brain surgery. My yearly CT scan is due always a nervous and stressfull time.

    Keep us posted,

    hugs, Marjan

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    jen2012 said:

    Good to hear from you pete!
    Good to hear from you pete! Glad the tests are good too.
    enjoy your visit from the family and the spring weather! Its been beautiful here too....love spring.

    thanks jen

    ah another spring. what a glorious life! the trending down, i pray means I such little residual disease, i pray my immune system keeps on working.

    hugs,

    Pete

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    Vancouver said:

    Nice to hear good news

    Hi there,

    I'm glad you updated...been wondering...and so glad to hear that the news was good!  I plan on PM'ing you one of these days soon.  Very interested in immunotherapy as an option later down the road for my mom and would like to learn everything I can.  She is Stage IV with mets to the liver, but has had a dramatic response to xeloda (in our belief, this is also due to the complimentary alternative medicine she has been doing since diagnosis).  We will get the results from her CT next week--first CT since diagnosis and surgery in late September 2012.  Her CEA has dropped to 1.3 though, so we are hoping for good results!

    Very happy for you and wishing for your continued recovery,

    CT

     

    thanks ct

    thats real kind. for what its worth, every hit of xeloda, is doing damage, if your keen on immunotherapy, email doctor nesslehut for an opinion asap before the tumour becomes resistant to xeloda.

    i know what he will say, but its better coming from one of the worlds leading immunotherapists. my doctor is presenting at "asco" where all the onc go to learn.

    hugs,

    pete

  • tachilders
    tachilders Member Posts: 313

    thanks ct

    thats real kind. for what its worth, every hit of xeloda, is doing damage, if your keen on immunotherapy, email doctor nesslehut for an opinion asap before the tumour becomes resistant to xeloda.

    i know what he will say, but its better coming from one of the worlds leading immunotherapists. my doctor is presenting at "asco" where all the onc go to learn.

    hugs,

    pete

    See you on Tuesday march 16

    See you on Tuesday march 16 if you are in the clinic that day. 

    Tedd

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    thingy45 said:

    SUper GREAT

    Hello Pete,

    So glad to hear all is going so well for you. We all  have choices and you decided that this was the best choice for you and you have the means to persue it also.

    I am lurking, being still Ned and not of much help to others. Looking after daughter and family because she had brain surgery. My yearly CT scan is due always a nervous and stressfull time.

    Keep us posted,

    hugs, Marjan

    thanks Marjan

    A few nice comments, yours is precious, we go back such a long way, when we were just doing a few walks together.

    when you say "the means to pursue it " , well i guess yes the money and time for the german treatments.

    but diet, rest, exercise. well most on this board, have a bed, can control what they eat, can control how they move.

    its not about the money, its about the education cancer patients recieve, of course my opinions are in the minority here.

    but so was john the baptist and look how well he did. have a bit of a read on the ketogenic diet for brain function and recovery, you might be surprised.

    I just purchased every ketogenic book on amazon kindle, amazing reading.

    one sure fire way to get your mind off the yearly CT is start the ketogenic diet with me, just joking. I hope your scan resuts are clear as a bell.

    hugs,

    Pete

     

     

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    See you on Tuesday march 16

    See you on Tuesday march 16 if you are in the clinic that day. 

    Tedd

    I'll go back in time to meet you mate!

    hi tedd,

    what time are you arriving ? I will have my family with me. Safe travels and welcome to the magic of the black forest! 

    I am sure i did not use it all up, if you game do a few enema's if your keen, and some magic mushrooms won't go astray.

    the level of NK cells is a clear prognostic indicator. mine have been boosted by ahcc, but corolius and rieshi is good also.

    bring your gym clothes if you want to do a few workouts at the local gym, for the sauna you just need your birthday suit.

    hugs,

    Pete

     

     

  • PhillieG
    PhillieG Member Posts: 4,866

    thanks Marjan

    A few nice comments, yours is precious, we go back such a long way, when we were just doing a few walks together.

    when you say "the means to pursue it " , well i guess yes the money and time for the german treatments.

    but diet, rest, exercise. well most on this board, have a bed, can control what they eat, can control how they move.

    its not about the money, its about the education cancer patients recieve, of course my opinions are in the minority here.

    but so was john the baptist and look how well he did. have a bit of a read on the ketogenic diet for brain function and recovery, you might be surprised.

    I just purchased every ketogenic book on amazon kindle, amazing reading.

    one sure fire way to get your mind off the yearly CT is start the ketogenic diet with me, just joking. I hope your scan resuts are clear as a bell.

    hugs,

    Pete

     

     

    You Crack Me Up Pete...

    "...so was john the baptist and look how well he did..."

    Didn't he wind up with his head on a platter?*

    Tongue Out

    Glad your enjoying yourself and that your family will soon be with you. Best of luck with your journey...

    *In the Gospel accounts of John's death, Herod has John imprisoned for denouncing his incestuous marriage, and later executes John by beheading.

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    PhillieG said:

    You Crack Me Up Pete...

    "...so was john the baptist and look how well he did..."

    Didn't he wind up with his head on a platter?*

    Tongue Out

    Glad your enjoying yourself and that your family will soon be with you. Best of luck with your journey...

    *In the Gospel accounts of John's death, Herod has John imprisoned for denouncing his incestuous marriage, and later executes John by beheading.

    and i was not even trying

    thanks phil,

    we cannot take this illness or life to seriously. I hope I have a better fate than john ( not 23 ) although I have some notion of what its like being beheaded,

    at least in cyber space.

    john was a bit of a troublemaker in some ways.

    hugs,

    Pete

  • tanstaafl
    tanstaafl Member Posts: 1,302 Member
    Vancouver said:

    Nice to hear good news

    Hi there,

    I'm glad you updated...been wondering...and so glad to hear that the news was good!  I plan on PM'ing you one of these days soon.  Very interested in immunotherapy as an option later down the road for my mom and would like to learn everything I can.  She is Stage IV with mets to the liver, but has had a dramatic response to xeloda (in our belief, this is also due to the complimentary alternative medicine she has been doing since diagnosis).  We will get the results from her CT next week--first CT since diagnosis and surgery in late September 2012.  Her CEA has dropped to 1.3 though, so we are hoping for good results!

    Very happy for you and wishing for your continued recovery,

    CT

     

    CAM adjuncts

    Vancouver, some of us are always interested to hear what CAM adjuncts were added over the months and may be able to comment helpfully.

  • Nana b
    Nana b Member Posts: 3,030
    tanstaafl said:

    CAM adjuncts

    Vancouver, some of us are always interested to hear what CAM adjuncts were added over the months and may be able to comment helpfully.

    My CEA jumped 35 Adding

    My CEA jumped 35 xeloda not working now 

     

    Adding avastin next week. Bummer. Scans were clear in dec. 

     

    Im thinking of getting off chemo My hands and feet are purple.  The only thing that keeps me on chemo the soreness I feel over my liver 

     

     

    You go guy!  

     

     

     

     

     

     

  • Nana b
    Nana b Member Posts: 3,030
    tanstaafl said:

    CAM adjuncts

    Vancouver, some of us are always interested to hear what CAM adjuncts were added over the months and may be able to comment helpfully.

    My CEA jumped 35 Adding

    "

     

     

     

     

     

     

  • Dxed
    Dxed Member Posts: 79
    Hey Pete, happy for your results

     

     

    It has been a while since you posted. I am happy for you that you are getting good results. Enjoy your time in Turkey and enjoy the spring.

     

    I am seriously considering a visit to these German clinics. Their work seems promising, and the docs seem to be on top of things.

     

    What is the best/shortest way to initiate a correspondce with them. I am still trying to figure out what "PM" is and how to do that. Explanation of this issue is much appreciated.

     

    Thanks Pete for your updates and your interesting epic

     

    Sander

  • Maxiecat
    Maxiecat Member Posts: 544
    Glad to hear that you are

    Glad to hear that you are doing well...enjoy your month's holiday with the family!

    alex

  • Nana b
    Nana b Member Posts: 3,030
    Dxed said:

    Hey Pete, happy for your results

     

     

    It has been a while since you posted. I am happy for you that you are getting good results. Enjoy your time in Turkey and enjoy the spring.

     

    I am seriously considering a visit to these German clinics. Their work seems promising, and the docs seem to be on top of things.

     

    What is the best/shortest way to initiate a correspondce with them. I am still trying to figure out what "PM" is and how to do that. Explanation of this issue is much appreciated.

     

    Thanks Pete for your updates and your interesting epic

     

    Sander

    Easy way to pm is click in

    Easy way to pm is click in his nampict utricle pic. Go to bottom and send him a message by clicking on send participant a message. 

     

     

  • Nana b
    Nana b Member Posts: 3,030
    Maxiecat said:

    Glad to hear that you are

    Glad to hear that you are doing well...enjoy your month's holiday with the family!

    alex

    http://www.cbn.com/cbnnews/healthscience/2012/december/starving-

    Try the link. Pete is on this diet. you can fin

    D info on this clinic on line. 

  • KathiM
    KathiM Member Posts: 8,028
    Sorry we missed a meet,

    but wonderful to hear from you!!!  (We are not back until early July to The Netherlands)

     

    I am so happy that you are well, dearheart!!!  And that things are going well!!

     

    Hugs, Kathi

  • PhillieG
    PhillieG Member Posts: 4,866
    Dxed said:

    Hey Pete, happy for your results

     

     

    It has been a while since you posted. I am happy for you that you are getting good results. Enjoy your time in Turkey and enjoy the spring.

     

    I am seriously considering a visit to these German clinics. Their work seems promising, and the docs seem to be on top of things.

     

    What is the best/shortest way to initiate a correspondce with them. I am still trying to figure out what "PM" is and how to do that. Explanation of this issue is much appreciated.

     

    Thanks Pete for your updates and your interesting epic

     

    Sander

    Let Me Translate

    The spellcheck stinks and the browsers don't pick up on it either.
    Plus I think many people are using iPads which makes it even trickier!

    Look at User Profile where the comments are then click on the user's Name (or photo if provided)

     profile

    At the bottom of their profile page is a link that says "Send this user a message"
    Click on that and the message box pops up and you can write to that user...
    -p
    I hope you don't mind Nana B. You did say the same thing...

  • Dxed
    Dxed Member Posts: 79
    PhillieG said:

    Let Me Translate

    The spellcheck stinks and the browsers don't pick up on it either.
    Plus I think many people are using iPads which makes it even trickier!

    Look at User Profile where the comments are then click on the user's Name (or photo if provided)

     profile

    At the bottom of their profile page is a link that says "Send this user a message"
    Click on that and the message box pops up and you can write to that user...
    -p
    I hope you don't mind Nana B. You did say the same thing...

    thanks PhillieG

     

     

    It is so easy; I am so ignorant when it comes to technology and communications. Thanks PHillieG and thanks also to Nana B.