Just recently diagnosed with colon cancer

magikproductions said:

hello

Hey everyone everything is going ok, I have a blown hose on my car have to fix it I got the old one off but the new one is soo hard to get on I am so weak and cannot push the bottom part of the hose on the water pump. if you know anyone in the pasco county area in florida who can help. lol just kidding I will try again tomorrow I hurt my hand doin it gotta get a day of rest for it. how is everyone else doing?

 

if you have any questions for me or wanna say hi I am always on facebook

https://www.facebook.com/magikreaper

So glad to hear from you again. I've been thinking of you, and hoping things are starting to settle down. I hope you've gotten your medications, and that you treatmnets are going well. Not too many side effects. 

Don't be hurting yourself. No running with knives. We don't heal too well when we're on the chemo, you know. 

Hows the radiation? Its my worst fear now, as I get closer to getting it. 

I may very well friend you on FB if you post more about updates there. 

I have a soft spot for you young folk. My heart is always yearning for you and KayeKay. So young to be going through this trial of tears. 

I hope your lovely wife is thinking of quitting the smoking. Best for the both of you. 

magikproductions said:

hello

Hey everyone everything is going ok, I have a blown hose on my car have to fix it I got the old one off but the new one is soo hard to get on I am so weak and cannot push the bottom part of the hose on the water pump. if you know anyone in the pasco county area in florida who can help. lol just kidding I will try again tomorrow I hurt my hand doin it gotta get a day of rest for it. how is everyone else doing?

 

if you have any questions for me or wanna say hi I am always on facebook

https://www.facebook.com/magikreaper

Don't ever hesitate to ask for help (whether it is for your car or you personally). I'm glad to hear you are on your way. Grab a notebook and keep notes in it when you go to your oncologist. Also, treatments I see on here I jot down in my notebook, just in case my tx does not work.

Keep going, my friend!!!

Judy

magikproductions said:

well they messed up this week

well they messed up this week the chemo people pumped 96 hours of chemo into me in 46 their mistake, so I am not feeling that great they say its ok just drink lots n eat healthy.

That is quit the mistake. 

I hope the nurses have been reprimanded. 

I know mistakes are inevitable, but its hard going knowing that your regular dose of chemo is going to hit you hard, now you may get hit even harder. 

I wonder what I can do to not let this happen to me?  

I'm glad your back on here. You sound more upbeat (other than the chemo mistake), which I hope means that you are feeling better.

I know its hard for you to get onto the internet, but believe me, I am always looking out for your posts. 

magikproductions said:

they were short staffed that

they were short staffed that day, i remember very clearly cuz i heard them saying it so it was bound to happen. but i would have said something once i noticed it was pumping 2.00/ml instead of the useal 0.67, but the radiation did this BOOST thing so i figured the chemo was doing the same thing so in that case I feel like total trash hope I am not getting sick.sick. thats what it feels like ill let you guys and girls know more later

I hope that its just fatigue that you will suffer, and that, in my opinion is one of the worst side effects for me. 

How is the radiation? I am heading towards that now, and I've read so many bad things about it that I am now pretty darn scared. 

I know you probably don't have the energy to deal with this right now, but you really should tell someone higher up than the nurses what happened.  Being busy is no excuse.  They could make someone really sick making an error like that.  Hope you start to feel better soon~AA

wawaju04976 said:

I agree with Annalex

I am very thankful that the nurses at my cancer center always have two when doing any meds; one has the meds (IV meds), the other checks my bracelet, name, dob, numbers, then reads each med. The nurse with the meds checks each med while the other reads them off. I imagine most places do this. Now I appreciate it even more. But do let someone know about this, Justin. Keep us updated on how u r making out...

Judy

My hospital is the same way. They have 2 nurses confirm my name and DOB on my wrist band and then both read the prescription and IV BAG.

KayeKay said:

agreed. they are the same

agreed. they are the same with me. i would definitely let someone know. some one in admin. or something. someone needs reprimanded. that can really hurt someone.

How are things going? We'd all love to hear from ya!

Laurie

magikproductions said:

hey ladies and

hey ladies and gentlemen

Sorry have not been on latley trying to get all this dealt with, I finished chemo/Rad about a month ago. and I got a PET scan a week ago. Got my results today and not good 2 lymph nodes are glowing near my groin area. Doc said its either 2 things 1. It spread, 2. its just after effects of rad TX and its nothing. I go tommorrow to schedule my appointment to get the surgery. SCARED SHI*Tless.

 

Thanks for listening

Justin

I know how scary it is to get those kind of scan results, having had several recurrences myself.  But I've also had many things show up on PET scans that were not cancer.  The PET is super-sensitive, and picks up all kinds of inflammation.  Do you know what the SUV was for each spot?  That's the number that shows how active the cells are.  Even a fairly high number can still be something other than cancer.  I know it's virtually impossible, but try not to worry.  Especially with such recent radiation treatment, it's quite possible that it will end up being nothing to worry about.  And if it does end up being more cancer, well...that's not uncommon.  The latest thinking on cancer spread is that everything is there from the start, just too small to see.  So as it grows, stuff will become visible and you have to deal with it.  But that process can end with your cancer being in remission or even cured (I've been NED for 16 months, so even with recurrence you can get there), so try not to be too scared about that either.  You are going to get through this, and we'll be here to help you.  Keep us posted (and maybe start a new thread, so people can quickly see what's going on with you).  Big hugs~AA

PS  If you have any Ativan, or medical mj (or non-medical mj, for that matter...ahem), now would be a good time to break it out and give your nerves a break!