AML Leukemia

naome1104 said:

AML Survivor without BMT?
Hi Everyone,



I was just recently diagnosed with AML and had gone through 3 chemo cycles already. I'm currently in remission right n ow and my doctors advised is to have a BMT. But, it is very expensive. My doctor says it cost 4Million (I'm in the Philippines by the way). There is no way in this world we can find that money becuase I'm one of the people who work for a leaving type. So, I'm wondering if anyone o you here survived AML without going through BMT?

Your thought is very much appreaciated.

Thank you,
Naome

What did you decide?
I had a BMT. Would like to talk to you about it.

xuelan said:

What did you decide?
I had a BMT. Would like to talk to you about it.

I had a BMT after being diagnosed with AML M2
Hi there,

I would love to talk to you about the BMT. I would not have survived if I had not had a BMT, as my AML was quite advanced and my cytogenetics were not good. It is an expensive and painful process, and may or may not be for everyone. I will not do any other procedures, and if the AML comes back (I am in remission), then that's it. Hospice and leaving this earth. Between the chemo and the bmt, I have had too much trauma to my body.

Please let me know if there is anything I can do to help.

overland_traveler said:

I had a BMT after being diagnosed with AML M2
Hi there,

I would love to talk to you about the BMT. I would not have survived if I had not had a BMT, as my AML was quite advanced and my cytogenetics were not good. It is an expensive and painful process, and may or may not be for everyone. I will not do any other procedures, and if the AML comes back (I am in remission), then that's it. Hospice and leaving this earth. Between the chemo and the bmt, I have had too much trauma to my body.

Please let me know if there is anything I can do to help.

AML M2 BMT SURVIVOR
my husband 55 had bmt allogenic from his sister after being detected with AML M2 in august 2009. after almost a failure he managed to survive by the grace of GOD. he just had his re-immunisation . he is now doing good.touch wood.

AMLBMTSURVIVORSWIFE said:

AML M2 BMT SURVIVOR
my husband 55 had bmt allogenic from his sister after being detected with AML M2 in august 2009. after almost a failure he managed to survive by the grace of GOD. he just had his re-immunisation . he is now doing good.touch wood.

your husband's BMT
And he will continue to do well. I am approaching my first year anniversary, so he is ahead of me. The process is horrible, but the further one gets away from it, the more normal one feels. I am grateful.

marcdeman said:

AML Leukemia t 8-21 marker 4 year survivor in remission
Hi All,

No one could be nearer or dearer to my heart than a fellow AML patient either undergoing treatment or years out in remission. I am not one who is short winded, but I will have to keep this message short because now after four years out and feeling pretty good like nothing ever happened after having received 7 rounds of chemo ( fludurabine,cyterbine, and mylotarg )enough to take you to the edge of death ---- currently I am experiencing pain in the joints of my hand and my feet. So much so lately than I am walking like a very old man and I recently turned 53. I just got back from a visit with my oncologist and he said everything looked ok and he would see me in another year. He said no cancer, but something is very wrong with me, I have been having drenching night sweats for the last three weeks and my joints are really hurting. My toes on my left foot feel as if they were broken. My knee hurts and my hands are swelling and hurting too. Not sure what is going on, but I sure do wish all this joint pain would end. Thank you and God Bless you all.

Joint pain and night sweats
Hi,
I am 50 year old female and was diagnosed with AML in end of May of this year. I am on my 3rd round of chemo (consolidation). Will be receiving stem cell transplant of March next year. I am experiencing hot flashes and joint pain as well. But the hot flashes (night sweat) is probably due to menopause (I am guessing as I am going through menopause). As for joint pain, I am unable to find the reason that is causing the sore/pain, the doctors have said maybe that is due to other underlying health problems. Perhaps hereditary artheritis. The doctor is prescribing muscle relaxer and ointment for the soreness and pain.

mary1977 said:

AML - remission
Hi, my name is Mary and I was diagnosed with AML M5 last Aug. 2009. I went thru extensive chemo, the induction, got all the side affects and then some, and was in the hospital for a month and 1/2. I did go thru consolidation chemo and it was just as bad as the first; if not worse. I developed three infections, one was on my face that turned into a staff infection and spread to my lungs. I had surgery on my face, and was in the hospital for 3 weeks. they almost lost me during that time because the infection spread and my pulse rate went up to 138 and fever was 103. They got me stabalized, not having to send me to ICU.
In my mind, all full doses of chemo give you the "bad" side affects.
I told my doctor that I was going to refuse any more chemo because I didn't want to get so sick anymore, I couldn't go thru that again. I had a 3rd treatment, but only 1/2.
A week ago I had another BMB and this time it came back clear. My doctor said I am now in remission; but I really don't know how long remission lasts. I have heard that a person in remission still has a 50/50% chance to relaps. If this happens to me, I will accept it. Have you heard of the percentages of this disease? Or if anyone out there knows, please inform us.
thanks
mary

aml - sick w flu

Hi, my name is Maria.  I was diagnosed with AML in Aprill 2011 and had transplant in Aug 2011.  It sounds like you had a rough time.  I cannot say it was fun. Chemo sucks. However, I made it thru that and the 100 days.  I can't believe I was actually able to come back to work after 8 mos.  I have since developed some mild GVHD symptoms, i.e. dry eyes, skin rashes.  However, since October I got some flu virus and was back in the hospital for three months.  Recently, I got another flu (which I had the shot for) and was hospitalized again.  I am on sick leave now and hopefully, will be able to return to work AGAIN in a couple weeks.  I work in health care and my doctor says I should consider early retirement or disability because of the exposure I get.  I have a lot of stuff to think about.  All these meds I am on (hopefully) temporarilly, are effecting my vision and brain (forgive my rattling).  I don't know if they consider me in remission.  All I know is that after 5 yrs and clean biopsy, the likelyhood of the disease returning is much less.  We have to stay positive and embrace the time that we feel healthy.  I have all of you in my thoughts and prayers.

 

suzykg said:

Hey Bobby,
My name is Suzy. I don't live in San Antonio, but I was diagnosed with AML back in January of 2000. I also had 3 chemo treatments and am currently in remmission. I hope you are feeling well, and have a positive frame of mind. That's what kept me going....PMA, as I like to call it. Positive Mental Atitude! If you have any questions for me, ask and I'll try to answer. I had M3, Acute Promyelocetic Leukemia. I took ATRA along with the chemos ARA C and Idorubisin. I stayed on the ATRA for 1 year and have been cancer free since March of 2000. I have been volunteering to speak with other AML people at my hospital when they are newly diagnosed, that's what helped me out in the beginning. I hope that we can become e-friends!
Let me know how you're feeling and doing!
God Bless
Suzy

Hi my dad was recently

Hi my dad was recently diagnosed with AML, after having CLL for nearly 6 years   He went through one roLDL of chemo, which was very tough on his body   After the first trtm, they did a bone marrow biopsy and found that the chemo had no positive effect what so ever.   he is so down and sad about this news and finds it very hard to feel any hope for the future   Is there anyone in the LA area who has been through AML, who can give him a pep talk to boost his morale.   He needs to continue fighting!  We need him around.   We love h so much!  Thank you

bananaport12 said:

hello

I am doing a reasearch paper, and was wondering if i could interview you. I wont ask anything too personal, but i do need some help.

if you can please email me back at bananaport12@hotmail.com

Just looking for someone to talk to

Ive never Done anything like this But I would like to talk to someone about AML . I dont know what type I have . But I was diagnosed in September 2012 and am currently still going through the treatment process . Im just need someone to talk to . Its been really straining on the family , The only family who has stuck by me through this is My kids and wife but I dont want them to get in a tizzy worrying like I am about some questions I have about it .. Mabe someone could help me out and guide me through the rest of this process !! thank you my email address is bad4good13662@hotmail.com or you can reply here I think !! Thank you for your time as always god bless all you survivors !

Learning Day to Day

Hi All

My Mum was diagnosed 3 weeks ago and went straight into intensive Chemo.  She has neutropenia so is in a solitary room.  She has finished her week of chemo and now we wait out the 3 weeks following which I believe are the most difficult?

 

She has had ulcers in her mouth, a really bad throat, pains in her chest and now suspected gall bladder problems.  Through all of this I feel we fumble along as we are not sure what each of these complications means and the medical staff do not give you a basic understanding...  maybe this is all normal, but we may be experiencing fear and apprehension needlessly.

 

My Mum is 71 and does not have the option of a bone marrow transplant.  Initially she was given 3-6 months to live but offered chemo should she wish to try for remission.

 

I guess I want someone who can just be straight up with me and anyone who has been over 70 who has met this challenge without the option of a BMT and if chemo, blood transfusions and platelets were enough to get them into remission?

 

Each day we continue blindly...

 

Thank you.

 

savanna said:

Learning Day to Day

Hi All

My Mum was diagnosed 3 weeks ago and went straight into intensive Chemo.  She has neutropenia so is in a solitary room.  She has finished her week of chemo and now we wait out the 3 weeks following which I believe are the most difficult?

 

She has had ulcers in her mouth, a really bad throat, pains in her chest and now suspected gall bladder problems.  Through all of this I feel we fumble along as we are not sure what each of these complications means and the medical staff do not give you a basic understanding...  maybe this is all normal, but we may be experiencing fear and apprehension needlessly.

 

My Mum is 71 and does not have the option of a bone marrow transplant.  Initially she was given 3-6 months to live but offered chemo should she wish to try for remission.

 

I guess I want someone who can just be straight up with me and anyone who has been over 70 who has met this challenge without the option of a BMT and if chemo, blood transfusions and platelets were enough to get them into remission?

 

Each day we continue blindly...

 

Thank you.

 

My pop

I am with you savanna my father was just diagnosed 1 month ago with AML he was admitted to the hospital ASAP and they started doing an aggressive chemo right away.  He is 70 so a BMT is not an option.  He is receiving treatment at penn medicine in philadelphia.  no blasts in the first bone marrow test After the treatment He does have pneumonia and heart racing.  I am unsure if all of this is normal.  he is very weak . i am scared and the nurses are kind but not full of information