Game on!

CypressCynthia
CypressCynthia Member Posts: 4,014 Member

Spoke with oncologist today. We are changing to aromasin and afinitor immediately. Liver biopsy is ordered. I see onc on Tuesday. Putting on my boxing gloves and preparing to fight!!!  Will let everyone know what onc says Tuesday. I'm at work tonight and typing on my phone. Big pain... Lol. 

Comments

  • New Flower
    New Flower Member Posts: 4,294
    Plan in place

    I am glad to see you in a good spirit. Target therapy like Afinitor sounds very promissing .  Good luck with discussion on Tuesday. Please keep an open mind if your oncologist will propose a cytotoxic chemo. because I failed on anti-estrogen therapy and my progression was very agressive like explosion, my oncologist decided to put me cytotoxic chemo (Xeloda) as a first line of treatment.   It did work for me.

    As far as biopcy, please make sure it will be tested for Her2 positive mutation. I think for Afinitor they recommend to do base line Glucose (blood and urine) and enzymes.

    Good luck and please know that we are here for you and with you athrough all the steps in this fight. Your journey complete victory has been started!!!!

    New Flower 

  • camul
    camul Member Posts: 2,537
    Glad to hear you are already fighting,

    or still.  Just saw the first post.  Your onco is on top of it all.  Will wait patiently with you til Tuesday.  Always wishing you the best.

    Hugs and prayers,

    Carol

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member

    Plan in place

    I am glad to see you in a good spirit. Target therapy like Afinitor sounds very promissing .  Good luck with discussion on Tuesday. Please keep an open mind if your oncologist will propose a cytotoxic chemo. because I failed on anti-estrogen therapy and my progression was very agressive like explosion, my oncologist decided to put me cytotoxic chemo (Xeloda) as a first line of treatment.   It did work for me.

    As far as biopcy, please make sure it will be tested for Her2 positive mutation. I think for Afinitor they recommend to do base line Glucose (blood and urine) and enzymes.

    Good luck and please know that we are here for you and with you athrough all the steps in this fight. Your journey complete victory has been started!!!!

    New Flower 

    Thanks New Flower.  It has

    Thanks New Flower.  It has not escaped my attention that you have a wealth of knowledge!  And thank you so much for saying something positive about chemo as I have been absolutely dreading it.  It is too early to say if he will recommend chemo, but I have had a feeling that he might.  It is as if you read my mind and gave me kind words to hold on to.  Bless you!

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    camul said:

    Glad to hear you are already fighting,

    or still.  Just saw the first post.  Your onco is on top of it all.  Will wait patiently with you til Tuesday.  Always wishing you the best.

    Hugs and prayers,

    Carol

    Thanks Carol.  I gave myself

    Thanks Carol.  I gave myself a night of bawling like a baby, but now I am po'd and ready to fight.  I so hate this disease.

  • Josie21
    Josie21 Member Posts: 382 Member
    Game on

    I just wanted to let you know that I am so amazed by your strength.  I have no  doubt that you are going to fight.  If I were any one of those 231 I would be scared already!!   You can do this!!!

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Thinking of you..
     
    Denise

    Thinking of you..

     

    Denise

  • camul
    camul Member Posts: 2,537

    Thanks Carol.  I gave myself

    Thanks Carol.  I gave myself a night of bawling like a baby, but now I am po'd and ready to fight.  I so hate this disease.

    I know the feeling.

    I became complacent for a while when I was just trucking along, then everything changed and the beast was staring me down again.  It brought the reality and the severity of this disease home again.   I was so angry that none of the chemos put me to ned or even stable, then, knowing herceptin was what we all believe has worked the best at slowing the progression was no longer an option because my 'insurance said so', was a huge blow that I cried for 2 days, then had a puffy face and headache from crying.  So enough of that, now it is listening to my body, sleeping when I need to, eating healthier and live, live, live.... (as soon as I get the energy to get up!  Chemo is kicking my but!) lol

  • missrenee
    missrenee Member Posts: 2,136 Member

    Thinking of you..
     
    Denise

    Thinking of you..

     

    Denise

    Positive energy and prayers

    coming your way, Eileen.  Let's hope whatever this new treatment is, it kicks the butt of that cancer right back into submission and stability.  We're with you all the way.  Keep those gloves on.

     

    Hugs, Renee

  • lynn1950
    lynn1950 Member Posts: 2,570
    You are on tough cookie, CC.

    You are one tough cookie, CC. xoxoxo Lynn

  • McMarty
    McMarty Member Posts: 212 Member
    That Affinitor did a real

    That Affinitor did a real good job for me! I hope it does for you as well! I had been on Faslodex and had a rapid progression but the Afiinitor/Exemestane combo put a halt to that!

    It did spike my blood sugar and that was a mess but my CA15-3 numbers went from doubling every month to almost stable.

     

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    McMarty said:

    That Affinitor did a real

    That Affinitor did a real good job for me! I hope it does for you as well! I had been on Faslodex and had a rapid progression but the Afiinitor/Exemestane combo put a halt to that!

    It did spike my blood sugar and that was a mess but my CA15-3 numbers went from doubling every month to almost stable.

     

    CC

    I so admire your Strength, and Attitude - Continue the fight, dear Sister.

     

    Vicki Sam