News from my Dr appt Monday

MandaJarvis11
MandaJarvis11 Member Posts: 37
edited March 2013 in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hey everyone! So my Doctor ended up finding another lump in my lymph nodes on the right side of my neck! :(

So now he chose to go the next step up and get me an MRI, I had a CT scan on the 15 of Feb but it didn't come out the best because I am allergic to the dye in the contrast they give you. So I wasn't able to use that. So I am praying that my MRI tomorrow will give me some answers. If he does not choose to give me a biopsy, I am going to go to a specialist 30 minutes out of town that specializes in head/necks and try and "demand" one. I just want the peace of mind at this point. 5 months is way to long dealing with this and I am getting fed up! And I whole heartedly believe that this is not an infection, if it is it has been going on 5 months with multiple antibiotics fighting it and still is there? I don't know.... I am kind of nervous for the MRI though! I am not a fan of confind spaces. I barely got through the CT scan. This is 5 x worse! Haha...but my boyfriend is going to make a playlist and have them play it through the headphones for me! I appreciate all the lovely thoughts/prayers/opinions you all have been giving me. So had my boyfriend! It's nice getting real stories and ideas from people who have generally went through the same thing! I will keep you posted on the results I am not sure when they will be back!

xo-Manda

Comments

  • Machir
    Machir Member Posts: 32
    #2
    Scan

    Hi Manda.  Sorry to hear that you have been this long in finding out what you are dealing with.  I pray you'll get good news.  If you are worried about the confined space of the MRI your doctor can give you a perscription for a single tranquilizer.  I did my first PET scan without because of some misguided macho belief that taking a tranquilizer was giving in.  I got cured of that and have used them when I felt the need.  A CT is quick and fairly open...no need.  For MRI and PET scans I have sometimes asked for one.  I realize it's short notice for the idea.  You can do it without.  The music will help.  I hope all goes well.  God bless  Mac

  • jimwins
    jimwins Member Posts: 2,107
    #3
    Machir said:

    Scan

    Hi Manda.  Sorry to hear that you have been this long in finding out what you are dealing with.  I pray you'll get good news.  If you are worried about the confined space of the MRI your doctor can give you a perscription for a single tranquilizer.  I did my first PET scan without because of some misguided macho belief that taking a tranquilizer was giving in.  I got cured of that and have used them when I felt the need.  A CT is quick and fairly open...no need.  For MRI and PET scans I have sometimes asked for one.  I realize it's short notice for the idea.  You can do it without.  The music will help.  I hope all goes well.  God bless  Mac

    Welcome Mac

    Hi Mac.  Just wanted to welcome you to the site - great supportive folks here.

    Manda, hopefully you'll get some answers soon and I'm keeping my fingers, toes and eyes crossed for you :).  Please keep us posted and hang in there!

    Hugs to you both,

    Jim

     

  • Machir
    Machir Member Posts: 32
    #4
    jimwins said:

    Welcome Mac

    Hi Mac.  Just wanted to welcome you to the site - great supportive folks here.

    Manda, hopefully you'll get some answers soon and I'm keeping my fingers, toes and eyes crossed for you :).  Please keep us posted and hang in there!

    Hugs to you both,

    Jim

     

    Thanks

    Jim, thanks for the welcome.  I can see that you have made an effort to support a lot of people here.  I'm impressed and you should be proud.  

  • cathyp
    cathyp Member Posts: 376 Member
    #5
    Machir said:

    Thanks

    Jim, thanks for the welcome.  I can see that you have made an effort to support a lot of people here.  I'm impressed and you should be proud.  

    Good Luck with your MRI!  I

    Good Luck with your MRI!  I have had many and what helps me is to keep my eyes closed, no peaking!  I haven't had any problems with this method and have avoided meds.

    All the best,

    Cathy

  • anliperez915
    anliperez915 Member Posts: 770
    #6
    cathyp said:

    Good Luck with your MRI!  I

    Good Luck with your MRI!  I have had many and what helps me is to keep my eyes closed, no peaking!  I haven't had any problems with this method and have avoided meds.

    All the best,

    Cathy

    Lol Cathy

    Lol Cathy, 

    I do the same thing, close my eyes (difinetly) no peaking! (((Hugs)))

    Sincerely,

    Liz

  • Cole74
    Cole74 Member Posts: 23
    #7
    Hi Manda

    Hi Manda,

     

    I am so sorry you are going through this. I agree 5 months is way to long, waiting for answers.  I hope that all goes well with your MRI, please do keep us informed and I will be thinking of you and praying for you. Take care.!

     

    Nicole

    HD 1987

    Follicular carcinoma of thyroid 1999

    Currently waiting for DX 

  • jimwins
    jimwins Member Posts: 2,107
    #8
    anliperez915 said:

    Lol Cathy

    Lol Cathy, 

    I do the same thing, close my eyes (difinetly) no peaking! (((Hugs)))

    Sincerely,

    Liz

    Love the butterflies (mariposas)

    Hey Liz - love the mariposas but I loved the ten toes smiling too ;). I don't close my eyes during the scans which is unusal I suppose.  I don't like feeling confined and generally don't like small spaces.  I have been tempted to stick out my tongue and make faces at the video camera inside the machine but I don't want to give the technicians grief. I sometimes ask if I can get some salt and lime to go with the tequila like warm feeling from the dye.  

    Hugs everybody.

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