mouth sores post radiation

phrannie51 said:

At the top of the main page....

on the left side just under the "Search" thingee, you see "Post New Forum Topic"....click that and you will have your own thread going.  You'll get a lot of responses.

I used L-glutamine when my mouth sores got really bad from the 5FU chemo....during the radiation part of treatments I used MuGard, which is basically a preventative (it really worked for me)....Mouth sores were absolutely the MOST miserable part of treatment....I cried on here for days on end.  I could at least put L-glutamine and water into my mouth without the stinging, which also kept me hydrated.  I also got thrush at the same time....Diflucon cured it fast.

p

I tried...

Not sure why but I  have looked and there is no search line and there is no where that says "post new forum topic"...I swear I have looked and paged thru from the main page and have looked everywhere. But I am happy that people can at least see me and read my stuff. I will keep looking thru the pages tho. Thanks for the response tho

My boyfriend is going through preconditioning for a stem cell transplant in a few days. He was chosen for a clinical trial at Sloan Kettering of a drug called palifermin, that is known to greatly reduce/eliminate mouth sores during radiation. They administered it to him 3 days before he began 5 days of total body irradiation, and has yet to have any Mucositis in his mouth, 7 days later.

its worth asking your doctor about this drug, there have been lots of studies and trials on it and it is not experimental. I imagine one day it will become a routine part of radiation treatment regimens.

Donnyr said:

L-Glutamine

Good afternoon. I just came across this site. I've been looking for information that might help me out with a resent problem.

I'm 4 weeks out from treatments. 3 Chemo's (Cisplatin) 35 rounds of radiation. I did get very sick with the Chemo. I had cancer at the base of my tongue and also lymph nodes on both sides of my neck. I go for a pet scan in six weeks. As for right now, My taste has for the most part returned. I do still have a food peg in. For the last week I've been uping my calories by eating soft foods with not too much of a problem.

Thursday of this week I started to experience a lot of pain at the base of my tongue. Not only hurts to swollow anything but the horrible taste and junk that I spit up. I was told Tuesday through a exam that I developed an ulcer at the base of my tongue. Kind of a set back but I guess to be expected. I think we all want to healed yesterday. If I gargle with the L-Glutamine, do I swollow this? and how many times a day should this be done?.

Donny

 

 

 

 

 

PLEASE RE-POST to a new post. This one goes back to 2011 and many are nolonger here or won't see old posts. There are many that will try to answer and help. http://csn.cancer.org/node/add/forum/164 Here is the link to start a new one. I never had chemo or radaition, only surgery.

Donnyr said:

L-Glutamine

Good afternoon. I just came across this site. I've been looking for information that might help me out with a resent problem.

I'm 4 weeks out from treatments. 3 Chemo's (Cisplatin) 35 rounds of radiation. I did get very sick with the Chemo. I had cancer at the base of my tongue and also lymph nodes on both sides of my neck. I go for a pet scan in six weeks. As for right now, My taste has for the most part returned. I do still have a food peg in. For the last week I've been uping my calories by eating soft foods with not too much of a problem.

Thursday of this week I started to experience a lot of pain at the base of my tongue. Not only hurts to swollow anything but the horrible taste and junk that I spit up. I was told Tuesday through a exam that I developed an ulcer at the base of my tongue. Kind of a set back but I guess to be expected. I think we all want to healed yesterday. If I gargle with the L-Glutamine, do I swollow this? and how many times a day should this be done?.

Donny

 

 

 

 

 

You can also try a 50/50 mix of baking soda and salt mixed into warm water for gargling. It will give temporary relief.

Donnyr said:

L-Glutamine

Good afternoon. I just came across this site. I've been looking for information that might help me out with a resent problem.

I'm 4 weeks out from treatments. 3 Chemo's (Cisplatin) 35 rounds of radiation. I did get very sick with the Chemo. I had cancer at the base of my tongue and also lymph nodes on both sides of my neck. I go for a pet scan in six weeks. As for right now, My taste has for the most part returned. I do still have a food peg in. For the last week I've been uping my calories by eating soft foods with not too much of a problem.

Thursday of this week I started to experience a lot of pain at the base of my tongue. Not only hurts to swollow anything but the horrible taste and junk that I spit up. I was told Tuesday through a exam that I developed an ulcer at the base of my tongue. Kind of a set back but I guess to be expected. I think we all want to healed yesterday. If I gargle with the L-Glutamine, do I swollow this? and how many times a day should this be done?.

Donny

 

 

 

 

 

I can CERTAINLY relate!  I am having a PEG (feeding tube) surgically inserted into my stomach on Monday June 22, 2015. I am very lucky to have been referred to a wonderful doctor. I cannot eat or drink because my pain is so horrific. I am losing alarming amounts of weight fast. I have burns, ulcers, and thrush etc. all down my throat!  The doctor has prescribed HYDROMORPHONE aka "Dilaudid". This stuff is more powerful than oxycodone or even morphine I believe. Yes, there is relief in the form of this wonderful prescription medication. I have had limited results with magic mouthwash/lidocane maalox mix with benadryl... Gargling with salt water helps. I can tell you that I have never had such terrible pain in my life! I have had many surgeries in my throat and this is why I am more prone to suffer. On a scale of 1 thru 10, ten being the highest for pain, I rank my pain a 12! Yes, it is that bad! :-(  That said, the HYDROMORPHONE is controlling the pain so effectively now! Hallelujah!!  :-)  :-)  I am pain free for hours at a time taking it.   Ask your doctor for this medicine in liquid form. Boy, am I glad I found this doctor and she knew exactly what would help me after scoping down my throat and seeing all those frighteningly red, "burned up" injuries. I joined this site just so I could get the word out and hopefully help as many people as I can through my experience. No one should suffer like you and I!

Victorson said:

Helpful Advice

I can CERTAINLY relate!  I am having a PEG (feeding tube) surgically inserted into my stomach on Monday June 22, 2015. I am very lucky to have been referred to a wonderful doctor. I cannot eat or drink because my pain is so horrific. I am losing alarming amounts of weight fast. I have burns, ulcers, and thrush etc. all down my throat!  The doctor has prescribed HYDROMORPHONE aka "Dilaudid". This stuff is more powerful than oxycodone or even morphine I believe. Yes, there is relief in the form of this wonderful prescription medication. I have had limited results with magic mouthwash/lidocane maalox mix with benadryl... Gargling with salt water helps. I can tell you that I have never had such terrible pain in my life! I have had many surgeries in my throat and this is why I am more prone to suffer. On a scale of 1 thru 10, ten being the highest for pain, I rank my pain a 12! Yes, it is that bad! :-(  That said, the HYDROMORPHONE is controlling the pain so effectively now! Hallelujah!!  :-)  :-)  I am pain free for hours at a time taking it.   Ask your doctor for this medicine in liquid form. Boy, am I glad I found this doctor and she knew exactly what would help me after scoping down my throat and seeing all those frighteningly red, "burned up" injuries. I joined this site just so I could get the word out and hopefully help as many people as I can through my experience. No one should suffer like you and I!

This is an old post.  Start a new one and share the information about the meds that help w/ the pain.  Lot's of folks would be interested, but might not read an old post.

Lorna 2007 & 2014

lornal said:

Old post

This is an old post.  Start a new one and share the information about the meds that help w/ the pain.  Lot's of folks would be interested, but might not read an old post.

Lorna 2007 & 2014

I posted on here this morning, but now I can't find it. A lot of the posts are dated 2011, and a few 2015. Am I in the right place, or am I doing something wrong. I joined in June, but had not posted until tody. 

warrenw7805 said:

posting

I posted on here this morning, but now I can't find it. A lot of the posts are dated 2011, and a few 2015. Am I in the right place, or am I doing something wrong. I joined in June, but had not posted until tody. 

warren, you are in the right place but are posting to a very old post.  it would be better for you to start a new post with your questions or comments.  go to the top left corner of the page and chose "start new topic".  that way, more people will see your post and respond.  good luck.

God bless you,

dj

how long for mouth sores to heal....i am in month 4. baking soda and water mix 3 times a day. when will I be able to eat normally??

My mouth sores cleared-up right after the last Rads. Worst were when they extended onto face just below lower lip early in tx. I would definitely be talking to you C Dr.s about this if it's 4 months after tx.