Explanation of what NED means... :)

Noel
Noel Member Posts: 3,095 Member
edited March 2013 in Breast Cancer #1

I have noticed that some of the newbies don't seem to know what NED means. I didn't until someone told me. So, just so you know, NED is a good thing! NED means No Evidence of Disease! We usually post it after a check up of some kind or a test to let everyone know that they didn't find anything. ( no more cancer or suspicious cells ) So, we post that we are dancing with NED or NED visited us. Stuff like that. Before I knew what NED was, I just kept thinking " Man, that dude really gets around. And, what the heck does he do and why does he visit so many?" LOL Hope this informed some of you.

Wishing everyone a LIFETIME with NED!

Comments

  • Pink Rose
    Pink Rose Member Posts: 493
    #2
    I saw it on one of the posts

    I saw it on one of the posts the other day and asked what it meant.  Thanks for explaining it Noel!

  • SIROD
    SIROD Member Posts: 2,194 Member
    #3
    Not Used By The Medical Profession

    Noel,

    As long as they understand that NED is not used by the medical profession.  I did ask my oncology nurse once if the use the term NED.  She said, "no, but knew what I meant".  

    We use it as well as the stable boy, but if I said that at the cancer center, they would think I'm NUTS.

    I doubt that I will ever meet up with NED again, the best is the stable boy.  Sometimes he is just as fickle.

    Best,

    Doris

     

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #4
    SIROD said:

    Not Used By The Medical Profession

    Noel,

    As long as they understand that NED is not used by the medical profession.  I did ask my oncology nurse once if the use the term NED.  She said, "no, but knew what I meant".  

    We use it as well as the stable boy, but if I said that at the cancer center, they would think I'm NUTS.

    I doubt that I will ever meet up with NED again, the best is the stable boy.  Sometimes he is just as fickle.

    Best,

    Doris

     

    Noel, thanks for your post! 

    Noel, thanks for your post!  Besides not knowing what NED meant when I first joined the site, I didn't know what all the dancing with him was about.  lol  I know, silly me! 

    Now, I absolutely love to see my pinkies dancing with NED and I think it is the perfect term to use!

     

    Sue :)

  • Alexis F
    Alexis F Member Posts: 3,598
    #5
    Ritzy said:

    Noel, thanks for your post! 

    Noel, thanks for your post!  Besides not knowing what NED meant when I first joined the site, I didn't know what all the dancing with him was about.  lol  I know, silly me! 

    Now, I absolutely love to see my pinkies dancing with NED and I think it is the perfect term to use!

     

    Sue :)

    I think most of us hear the

    I think most of us hear the Nothing Has Changed from the techs after our mammo's and ultrasounds.  But, I always love to log in here and see who NED has on the dance floor swinging around to some happy music in celebration of good results!  It makes our good news all that much better! 

    Let's keep NED dancing and let's keep passing him around!  LOL

    Lex

  • gagee
    gagee Member Posts: 332
    #6
    Didn't know who Ned was either....

    Was so happy when I learned who he is.  Wish we all could dance with Ned forever. I to come on here to see who Ned is with today. I don't usually post as much as I do read. Thank You for bringing it up again as newbies will be happy to meet Ned one day also. 

    Thoughts and Prayers with All,

    Diana

  • susie09
    susie09 Member Posts: 2,930
    #7
    gagee said:

    Didn't know who Ned was either....

    Was so happy when I learned who he is.  Wish we all could dance with Ned forever. I to come on here to see who Ned is with today. I don't usually post as much as I do read. Thank You for bringing it up again as newbies will be happy to meet Ned one day also. 

    Thoughts and Prayers with All,

    Diana

    I'll take NED, nothing has

    I'll take NED, nothing has changed, it looks good, whatever they want to say as long as it is good news!  I think they told me that everything looked the same. 

    I've just always been so happy that I get my results right then and don't have to wait. 

    Good post Noel!

  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #8
    susie09 said:

    I'll take NED, nothing has

    I'll take NED, nothing has changed, it looks good, whatever they want to say as long as it is good news!  I think they told me that everything looked the same. 

    I've just always been so happy that I get my results right then and don't have to wait. 

    Good post Noel!

    Thanks for explaining NED!

    Thanks for explaining NED!

  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #9
    gagee said:

    Didn't know who Ned was either....

    Was so happy when I learned who he is.  Wish we all could dance with Ned forever. I to come on here to see who Ned is with today. I don't usually post as much as I do read. Thank You for bringing it up again as newbies will be happy to meet Ned one day also. 

    Thoughts and Prayers with All,

    Diana

    I love NED!

    I love NED!

  • Angie2U
    Angie2U Member Posts: 2,991
    #10
    survivorbc09 said:

    I love NED!

    I love NED!

    I am going to be looking for

    I am going to be looking for a visit from NED soon.  I've got my tests coming up.  ( sigh )

    Thanks for the post!

  • jnl
    jnl Member Posts: 3,869 Member
    #11
    Angie2U said:

    I am going to be looking for

    I am going to be looking for a visit from NED soon.  I've got my tests coming up.  ( sigh )

    Thanks for the post!

    How sweet of you Noel to put

    How sweet of you Noel to put the explanation on here for the newbies.  I am also one of the ones that just went along with it

    for a long time until someone like you explained it. 

    Hugs, Leeza

  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #12
    jnl said:

    How sweet of you Noel to put

    How sweet of you Noel to put the explanation on here for the newbies.  I am also one of the ones that just went along with it

    for a long time until someone like you explained it. 

    Hugs, Leeza

    NED has been dancing with me

    NED has been dancing with me and I pray and hope he will continue forever with everyone!  I think it is great that we have a term to use that also makes us all smile when we all put our dancing shoes on and do the dance! Laughing

  • blazintrails
    blazintrails Member Posts: 52
    #13
    WHOOHOO FOR ALL NED

    Thank you for posting this.  We ALL want to see NED posted!

  • Angie2U
    Angie2U Member Posts: 2,991
    #14
    blazintrails said:

    WHOOHOO FOR ALL NED

    Thank you for posting this.  We ALL want to see NED posted!

    We sure do blazintrails! 

    We sure do blazintrails!  Happy dancing with NED to you!

  • SIROD
    SIROD Member Posts: 2,194 Member
    #15
    blazintrails said:

    WHOOHOO FOR ALL NED

    Thank you for posting this.  We ALL want to see NED posted!

    For Sharon

    Someday,  I hope that 100% of all women and men who will say, I'm ... or .... or ....  for breast cancer.   

    NED,  (No Evidence of Disease), NEAD, (No Evidence of Active Disease),  NERT  ("No Evidence of Recurrent Tumor,").  That will be the day we all will truly celebrate.  Smile  

    The old pink bus will be retired and forgotten.

    Best,

    Doris

     

    PS:  I was hoping to insert the old pink bus but was unable to change it from a TIFF to a Jpeg. 

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #16
    SIROD said:

    For Sharon

    Someday,  I hope that 100% of all women and men who will say, I'm ... or .... or ....  for breast cancer.   

    NED,  (No Evidence of Disease), NEAD, (No Evidence of Active Disease),  NERT  ("No Evidence of Recurrent Tumor,").  That will be the day we all will truly celebrate.  Smile  

    The old pink bus will be retired and forgotten.

    Best,

    Doris

     

    PS:  I was hoping to insert the old pink bus but was unable to change it from a TIFF to a Jpeg. 

    LOVE NED!

    I always pray for NED for all of us!  I know that every time we go for any test, that we are so

    nervous and apprehensive waiting to hear that everything is alright. 

     

    I've always loved the "Dancing with NED" on here!

     

    And, even some of these silly pinkies, me included, do the "Happy Dance with NED" in naked!

     

    I look forward to many, many " Naked Dancing With NED" for everyone!

     

    Sue :)

     

     

  • SIROD
    SIROD Member Posts: 2,194 Member
    #17
    blazintrails said:

    WHOOHOO FOR ALL NED

    Thank you for posting this.  We ALL want to see NED posted!

    For Sharon:

    If you want to read about the "Pink Bus" click on my name SIROD, it will take you to a page, then click under Expression.  Smile

    My old bc support forum began using the "Pink Bus" back in 2001, though some have claimed to have started the Pink Bus on other breast cancer support sites.  None can show that it dates back to 2001.  Since it was printed in a booklet which you can find and read online, we might have been the first to use the Pink Bus.  There is a possibility that the originator found it on another web page back then, but all my searching hasn't come up with it.  

    The support forum lost it's funding and are now on Facebook.  They don't realize that the bus is still going strongly.   They believed that it needed to be taken out of the junk yard before using it two weeks ago.  Unfortunately, the bus is still needed, until there is a cure.  There is a photo which shows how they perceive it.  Only two of us from that group are now stage IV.

    How I wish that the bus really looked like that one.  Cool

    Best to you Sharon as you struggle onward in this journey,

    Doris

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