CA125 went up all else is good, should I be worried?

norma2 said:

Norah

Your kind words helped a lot.  I am not good at waiting for anything.  As old as I am you would think I would be able to wait.  Focus on the positive.  And there is a lot of positive to focus on.  I am 3 yrs past treatment with no detectable cancer.  That is good and I am going to dwell on that.  My doctor is one of the top doctors in the country and I am blessed to go to MD Anderson in Houston.  I have to put my trust in that.  Dr. Levenbach is not usually one to be overly optomistic.  In the beginning he was a downer.  This last visit (prior to the results of the CA 125) he was very optomistic.  Said I was doing great.  I am going to just let that make me at ease. 

The comments from all the ladies here have made me feel so much better.  Makes this journey so much easier to have you.  Pray for you guys everyday.

Hi Norma,  Just wanted to let you know I'm thinking of you.  I go for my PET scan on 2/7, my knees are starting to shake.    Sounds like you are in great hands, I will keep you in my prayers. 

-Laura

norma2 said:

my computer is fried

i am typing this on my phone....screen is so small...how do these kids send messges....laura.jazzy nd debrajo...love you guys.i am coping.  ifeel great except for ...having computer withdrals...laura...praying for your pet scan...i cant read what i typed...too small...will say more later...love you ladies

Hope you are going to get good results from your tests on Feb 1.  May you have many more years of NED.  Enjoy each day.  In peace and caring.   

laura25 said:

Norma

Hi Norma,  Just wanted to let you know I'm thinking of you.  I go for my PET scan on 2/7, my knees are starting to shake.    Sounds like you are in great hands, I will keep you in my prayers. 

-Laura

Laura, we all know what the waiting game is like.  Please do your best to keep calm.  I know ----easier said than done.

norma2 said:

Looks like I won't have to wait....

Dr Levenbach's office called me yesterday to schedule a CT Scan, X-rays, and bloodwork for Friday Feb 1.  He saw the CA 125 and scheduled the tests.  I am afraid but also comforted by the fact I have one of the top doctors in the country at one of the best hospitals in the world.  Going to put on my big girl panties and quit whining.  I will pray this is a false alarm and hope the rise is just a fluke. 

Everything in my life is going so well right now.  I had put the cancer way back in my mind.  Now it is here again rearing it's head.  You gals who are battling it are so very brave.  I am always uplifted by the posts of those who keep up their courage.  You are my heros.  I am going to fight this thing.  I have way too much to live for right now.

I have had 3 wonderful years of NED.  For which I consider myself extremely lucky by God's grace.  I feel great.  No symptoms.  Just a 20 poing rise in the CA 125 from 40 which it has been for over a year to 62 points. 

Will have to wait.  Like you said Jazzy WAIT is a four lettered word.  hahaha....wait and pray.  PRAY is also a four lettered word.  Going to do a lot of that....praying for all of you too....

So pleased you are being followed up.  Sounds like you have a really good gyn/onc who's not taking any chances.  I know how you must be feeling (I'm on my third recurrence, so I've been "through the loop" of tests etc several times!).  It's hard when you are so far down the path of NED to have to think about cancer again, but I hope and pray that this is just a false alarm and the CA 125 is raised for some other reason.

Thinking of you
Helen

jazzy1 said:

HAPPY BIRTHDAY NORMA!!

You look simply marvelous!!!  I love your strong and positive attitude.  Remember, our minds have such a strong control over our bodies and I know and feel it in my bones, you'll have good results that we're praying for daily.  

 

Enjoy this special day...let others pamper you as IT'S NORMAS BIRTHDAY!!!

 

Keep us posted on all your results and tell your docs you expect nothing but great news!!!!!

Jan

I must say....63 looks very good on you!  

laura25 said:

HAPPY HAPPY HAPPY BIRTHDAY!!!!!!!!!!!

Wishing you a VERY Happy Birthday.... ENJOY YOURSELF!!!!! 

May you be blessed with many more.  Again wishing you good results from your upcoming tests.   In peace and caring.

Sisters three said:

Enjoy your birthday!

I hope you are eating out!!!!!!!!

 

Hope you are enjoying every minute and will have even more to celebrate in a few days.  Good luck.

norma2 said:

THANK YOU!!! SO VERY MUCH LADIES

I finally on a computer whose screen I can read.  My laptop is in the shop.  Of all times for the thing to break down...

I can't begin to thank you ladies enough for your support.  It means the world to me and has given me great comfort. {{{ DebraJo, Claudia, Connie, Jan, Helene, Laura, Nempark, Norah, Suzanne, RO, Trisha}}}}....hugs to you for your wonderful comments. 

I am going to go into this with a spirit of adventure and hope like I did on the beginning of this journey. CT Scan is on Friday...with chest-xray and blood work.  I will concentrate on the positive.  I have been NED for 3 years....I feel wonderful.  Am in good health except for the pesky 3 years ago.  I can touch my toes. 

When I wake up in the night I count my blessings and thank God for these wonderful years.  I ask for grace and know that God heals us in all ways.  I firmly believe everything happens for a reason. 

As a little girl (if i have told this story before forgive me, I am old and repeat myself) I did embroidery.  The front shows all the beautiful stitckes and picture.  The back looks knarly and has knots and no discernable patter.  I think life is like that.  We don't see the beautiful picture quite yet.  Just the back.  One day we will see the picture and understand.  That is my story and I am sticking to it....

TODAY IS MY 63rd birthday!!!!  Made it this far...and hope for more to come....

My thanks and prayers to you ladies....love you!!!

Happy Birthday, Norma.  Love the embroidery allegory - never thought of life like that, but it so vivid in my mind now!

Fingers crossed that scans are clear and you continue to dance with NED.

Helen