I KILLED MY STAGE IV EXTENSIVE CHOLANGIOCARCINOMA!!! In less than two years!!!

CrazywithFear19 said:

Glutathione
Hi Laura, I am truly inspried by your story. I am still trying hard not to freak out over my fiance's condition but it is not working.

My fiance was diagnosed with advanced cholangiocarcinoma last week and was considered inoperable by his oncologist. The right lobe of his liver is 75% spotted with cancer and it also has a 5 cm tumor growth on it. His bile duct is obstructed and it was not sure whether his pancreas is affected. He was given 6 months.

We are seeking a 2nd opinion at MD Anderson next week from Dr Ahmed Kaseb and I have been having anxiety attacks thinking of every possible outcome of the meeting and none of them are good in my mind. Statistics show that there is 0% life expectancy of 5 years for this type of advanced metastatic disease. In fact, most victims succumb to the disease within a year.

I have alternated between despair, grief, anger and depression but am trying very hard not to show it as it makes my fiance feels worse. It has been such a shock to us as he is 50, always been a health freak, diet conscious and exercise fanatic. We were planning to marry this year and this disease has caused us both unspeakable anguish.

I am heartened to hear that you are fighting cancer and beating it too. I read about glutathione and a friend recommended that I buy Immunocal, which I am not sure whether I should or not. My fiance is a red neck who does not usually believe in alternative or herbal remedies but I am willing to try anything at this stage. If necessary I will force feed him if it works. Have you used Immunocal before?

I am hoping and praying that he gets the best possible treatment and that his body responds to the treatments positively but at times, we feel that we won't be so lucky. There have been many cases of tumours being chemo resistant. Surgery seems the best possible chance of survival but if he is deemed inoperable, then I guess they would recommend chemotherapy, which most blog sites say that it is not very effective and that the side effects are toxic.

I am sorry to bother you with my tale of anguish but I feel like as if I am going crazy with my brain working overtime and emotions on a rollercoaster. I am going to take your advice and get the book on The Cancer Fighting Kitchen. Meanwhile, I am still trying to deal with the possibility of losing a loved one within a short period of time.

Debbie

shumaila said:

horrible CC
Hey Laura!

What an amazing story and i pray for the success of ever CC patient. My father suffers from CC and was diagnosed in Dec 2011... the docs only gave him a few months. He now only eats organic fruit and veg, does not drink alcohol and refrains from sweets. However, he now suffers from constipation... does anyone know a natural remedy? we seem to have tried all medication and now resort to natural properties.

Debbie, i am so very sorry to hear of such a tragedy...i will always remember you and your fiance in my prayers. i too have heard of the chemo killing off the good cells too.. and if one lacks good cells to start with, then it does sort of cause a dilema.

My fathers tumors are are in the bile duct and had to be opened using the stents. their is also another tumor on an artery connecting the liver to the heart, the tumor is on the outter part of the artery thank god. it is inopperable.

if you have any information at all that can possibly help my father, please do reply as soon as... i shall too ask around for the Immunocal .

do remember my father in your prayers please...

Shumaila

Hi Laura! My name is Ciprian, I am from Romania and my father was diagnosen with Cholangiocarcinoma. The doctors perform a surgery but they said they couldn't do anythyng because the cancer invaded too much the liver and if they tried to resect it the liver that would have left would have been too small. Please Laura will you mail me exactly what you did and what you ate. I need to know everything! thank you very much! i am really glad that you are ok and God help us all!

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ciprian said:

Hi Laura! My name is Ciprian,

Hi Laura! My name is Ciprian, I am from Romania and my father was diagnosen with Cholangiocarcinoma. The doctors perform a surgery but they said they couldn't do anythyng because the cancer invaded too much the liver and if they tried to resect it the liver that would have left would have been too small. Please Laura will you mail me exactly what you did and what you ate. I need to know everything! thank you very much! i am really glad that you are ok and God help us all!

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My wife has gone through this disease going on 7 months.  Relative to surgery, doctors are doing amazing things with resection of the liver.  They are able to resect when there is 20-30 percent of the liver being clean and limited lymph node involvement.  They enlarge the healthy part of the liver pre-surgery by injecting micro particles into the hepatic veins and cutting off circulation to the affected area.  The remaining liver grows to compensate and after 7-10days resection becomes possible.  Lymph node involvement is a factor and surgeons may argue that the cancer has already metastasized and therefore surgery doesn't make sense because the cancer will likely come back.  Endoscopic biopsy/pet scan help make that determination.  

my wife did have the resection and some lymph nodes were found to be cancerous.  She was treated with gemcitibine/cisplatin which is the standard first line combo for this.  She just had a scan and was found to have to small lesions after having two prior clean scans. Recent Pet scan didn't show anything which is a good thing.

there are a couple different avenues to go now.  Ablation with follow up aggressive chemo 5 F-U with 2 other drugs or ablation with less aggressive oral chemo.  

My wife is also doing alternative medicines and is working with an oncologist who specializes in this.  She is on a very regimented low meat, low sugar--almost vegan diet.  She also takes Celebrex, Tagamet, thysilin and pancreatic enzymes--look all of this up as there is research supporting their benefits specifically to cholangocarcenoma.   

The pet scan showing no uptake is a good thing because it indicates that the cancer cells are not using energy. And are not up taking the glucose.  The goal here is to not feed those cells and that's why the diet is so important.  My wife feels fine right now and we're likely to use the less aggressive chemo going forward.   The idea here is to save the "nukes" for the time when all out warfare is needed.   Right now using a pistol makes more sense because after you use the nuke, what do you have left in the arsenal?

Regardless,  the fact that the pet scan showed nothing despite the cat scan and MRI results is a good indicator that the cels are not energized.  In my opinion,  this is likely the result of the alternative meds and diet along with the chemo.  My wife is 49 years old.

carolenk said:

Thank you for sharing your
Thank you for sharing your story. Do you know how you will be monitored. I don't think there is a blood test for your type of cancer.

Have you considered stem cell therapy to prevent recurrence?

Best wishes for your future!

Carolen

CEA, Alkaline phosphatase and alphafetoprotein are tumor markers and blood is the specimen, but the reliable one is the CT scan.We also read about stem cell but we don't consider it this time.Thank you.

Anyone of you who can give us Laura's email add, I will appreciate it.Thank you.

What an absolutely inspiring read.  I live in the uk and we are catching up with many of the alternative therapies offered in the usa.  My father has advanced liver cancer and has been written off by his GP and Oncologist.  We have changed his diet in the same way that Laura did.  He has been taking capsules in the form of Turmeric, IP6, Graviola leaf and Milk Thistle.  In the short term he says the pain he was feeling has deminished considerably and had virtually gone and he feels generally better.  We may not win the war but hopefully a few battles along the way.   I'll try and get some advice about Glutathione  after reading Laura's story.  Thanks so much for sharing this experience  and information with us.

dkoch said:

Metastatis Liver Cancer

My partner was re-diagnosed 6 weeks ago with metastatis liver/lung cancer orginating from his bladder 3.5 years ago.  His oncologis has basically told him not much more can be done, it is Dave's dicision to try further treatments.  Doctor said what is important now is to manage his pain.  So over the last six weeks they have increased the pain meds, cancer is throughout his lymphatic system now.  Dave's basic diet for years included meat and dairy in almost every meal, I have been researching going to a vegie meal plan, and seen claims that  this has worked for other cancer patients.  I have also been research the Gerson Diet, anyone have any experience with this.

We are at the point where he has started planning his funeral and his sister is assuming his personal affairs, she just keeps saying to him, Dave, day is coming and I have to know your finances if I am going to be the one to settle you estate.

 

DKoch

Hi Dkoch, I don't have any knowledge about the Gerson Diet, but I am going to research tonight. My mom was diagnosed with bile duct cancer in the liver and she has been following the "acid-akaline diet", also known as the "Crazy, Sexy, Diet". She has another scan this week, but her last scan showed improvement since she started the diet and chemo (the chemo was supposed to only attempt to keep things at bay).

The diet is a litlte more complex than what I can explain here, but its basically vegan, gluten-free, low carb and high in green veggies. There is also an acid-akaline food pocket guide and a cookbook for the "Crazy sexy diet" (both on amazon). I don't know if you will find this info helpful, but I thought I would at least post it. This diet can potentially help many types of cancers, not just liver. i was a skeptic, but I think at the very least it is an extremely healthy diet and could at least improve anyone's quality of life (cancer or not).