Doc said I'd just be "uncomfortable" for a day or two.

Get it checked...
Joe,

If it's uncomfortable, I agree to have it checked. We were told a couple of days with some discomfort. It was just that, then hardly noticeable. Just a bit of a nuisance.

Good luck....and I'd ask for a full refund plus some extra for your pain and suffering.(little humor)

~C

phrannie51 said:

Ya know....that's what my Dr. said, too....
and it hurt like HE**!! They finally knocked me out the first day with Dilaudid...the cramping was that bad (I was already in the hospital for a punctured lung from getting my port)...They sent me home the next day...but it was still cramping pretty bad (like labor pains...the cramp would build upon itself hitting a cresendo, then fade off...only to begin again 10 seconds later). Call your doc...but I'm sure that when he calls what you're feeling "uncomfortable" it's becyase he's never had one. I'm not the only one on here who thought it was pretty darn painful

p

Meds
Can't say enough about Dilaudid. Of course, missing out on everything is only worth it short term. Rick.

a pain in the... abdomen
My G tube was inserted 5.5 months ago. The pain was very intense for about 2 days. The pain was around the insertion area and also referred to the left shoulder (I can’t say which one was worse). The pain was either spontaneous or triggered by eating/tube feeding. The character of the pain was very similar with what Phrannie described earlier. I guess there was some peritoneal reaction involvement, but there was nothing to do (it happened during a long weekend) except for going to the ER. I avoided that, as I might have had the G tube removed (I didn’t want to go through the same procedure again).
Now, after 5.5 months, it is completely useless, as I had been eating “normally” for the last 2 months. The medical oncologist didn’t agree to pull it out until after the last chemo treatment (occurred 3 weeks ago), due to the dreaded mucositis (I had that, but I was able to eat). Now I am stuck with the tube until Jan 8th, as there was no earlier appointment available (they said the removal must be done at the same center were was inserted, with all the equipment – like imaging – available). I hate this thing, especially since I have some granulation tissue overgrown that makes it more difficult to tolerate.

corleone said:

a pain in the... abdomen
My G tube was inserted 5.5 months ago. The pain was very intense for about 2 days. The pain was around the insertion area and also referred to the left shoulder (I can’t say which one was worse). The pain was either spontaneous or triggered by eating/tube feeding. The character of the pain was very similar with what Phrannie described earlier. I guess there was some peritoneal reaction involvement, but there was nothing to do (it happened during a long weekend) except for going to the ER. I avoided that, as I might have had the G tube removed (I didn’t want to go through the same procedure again).
Now, after 5.5 months, it is completely useless, as I had been eating “normally” for the last 2 months. The medical oncologist didn’t agree to pull it out until after the last chemo treatment (occurred 3 weeks ago), due to the dreaded mucositis (I had that, but I was able to eat). Now I am stuck with the tube until Jan 8th, as there was no earlier appointment available (they said the removal must be done at the same center were was inserted, with all the equipment – like imaging – available). I hate this thing, especially since I have some granulation tissue overgrown that makes it more difficult to tolerate.

Granulation tissue
might be able to be cauterized. That happened to me with my trach stoma. It's now gone and not painful anymore. And now to Joe, there is no way it should be hurting now that you've had it that long. Does it look red or swollen underneath the flange? You might have an infection. If it's that painful, I would go to an ER. Otherwise check with your doctor first thing Monday morning.

phrannie51 said:

Ya know....that's what my Dr. said, too....
and it hurt like HE**!! They finally knocked me out the first day with Dilaudid...the cramping was that bad (I was already in the hospital for a punctured lung from getting my port)...They sent me home the next day...but it was still cramping pretty bad (like labor pains...the cramp would build upon itself hitting a cresendo, then fade off...only to begin again 10 seconds later). Call your doc...but I'm sure that when he calls what you're feeling "uncomfortable" it's becyase he's never had one. I'm not the only one on here who thought it was pretty darn painful

p

Did you adjust to the tube
Did you adjust to the tube naturally or was there any other procedure to improve the adjustment to it during those first days and weeks? Just curious what to expect.

I know the biggest bummer for me is the lack of joy tasting wonderful food. LOL

don

phrannie51 said:

Oh Don...you are in for a bummer....
Taste goes away with the first chemo (with a return about a week or so later)...radiation kills them for weeks/months after it's finished. I'm 6 months out of rads and can only taste the first few bites of food (scantily)...then it's back to tasteless.

p

I forget the medical term
I forget the medical term, but this is a cruel trick your eyes and mind play on your taste buds. It also happened to me. You eyes see the food and your mind tastes it from past memory, for a while. You can "taste" the first few bites from memory, but soon the taste sensation goes away.

Be encouraged that your real taste does come back, little by little, but it's not likely that you will get back 100% of your taste for every kind of food.

Mike