The number I was waiting for.

seatown
seatown Member Posts: 261 Member
in Peritoneal Cancer #1
Just now getting my next-to-last taxol & carboplatin. I was just told that my CA125 marker is 79. Finally broke 100! And a far cry from when I was diagnosed in July with a CA125 score of 2,738. The bonus was my dear sweet PA said I look wonderful. I know she meant it sincerely--if I say so myself, I am looking well these days. It's no doubt due to the continuing good news.

I know all you PPC patients appreciate how great it is to hear good news. Thank you for all your kind thoughts and messages.

More at www.CaringBridge.org/visit/CaroleSeaton

Comments

  • JulieL
    JulieL Member Posts: 141
    #2
    Fantastic News
    What a wonderful result and to be sub-100 after the early result is amazing! Continue to enjoy your good health!

    Next week I will have my blood test for the result after 3 rounds of Doxil. Side effects have been awful so hope the news on the CA125 will be good and make it worthwhile!!

    Julie
  • dorothymarion
    dorothymarion Member Posts: 28
    #3
    So very pleased for you!
    That's great news on your CA125 numbers! Happy to hear that you're feeling good too!

    Dorothy
  • seatown
    seatown Member Posts: 261 Member
    #4
    dorothymarion said:

    So very pleased for you!
    That's great news on your CA125 numbers! Happy to hear that you're feeling good too!

    Dorothy

    Thank you . . . .
    Thanks, ladies, for your kind words. Next week, we're celebrating my last chemo treatment from this 1st round as well as my husband's milestone birthday. Fingers crossed for a good PET scan after New Year's!

    I appreciate your encouragement. Best wishes to all of you!
  • Nflinchum
    Nflinchum Member Posts: 75
    #5
    Great news! I am happy for

    Great news! I am happy for you. I just had my 3 month scan the last of November and it was clear. My CA markers were up from47 to 68 . My dr asked that I get them checked again mid jan. then I continue to see him every other month.if all stays good then I get another scan may.

    ther is an update on my caringbridge if you want to read. I have been reading your updates.

    i hope you and your family have a wonderful holiday!

  • westie66
    westie66 Member Posts: 642
    #6
    Nflinchum said:

    Great news! I am happy for

    Great news! I am happy for you. I just had my 3 month scan the last of November and it was clear. My CA markers were up from47 to 68 . My dr asked that I get them checked again mid jan. then I continue to see him every other month.if all stays good then I get another scan may.

    ther is an update on my caringbridge if you want to read. I have been reading your updates.

    i hope you and your family have a wonderful holiday!

    Great News!

    These are the best Christmas presents of all!

    Cheryl

  • seatown
    seatown Member Posts: 261 Member
    #7
    westie66 said:

    Great News!

    These are the best Christmas presents of all!

    Cheryl

    Best gifts

    You're right about the best gifts. Waiting right now for my PET scan, hoping it will show N.E.D. Thanks to all for your kind words. Happy New Year!

  • lulu1010
    lulu1010 Member Posts: 367
    #8
    Good News!

    I am getting what is supposed to be my last carbo treatment today. The Dr is thinking he may add a couple more to give it a boost. On the other hand he says that it may be better to get off it now and have it available for when it comes back. I guess you have to be off it for a while before you can take it again. My CA 125 was 11!!! This was my first recurrance that did not respond to Doxil. I am happy that we found something that worked!

  • lulu1010
    lulu1010 Member Posts: 367
    #9
    lulu1010 said:

    Good News!

    I am getting what is supposed to be my last carbo treatment today. The Dr is thinking he may add a couple more to give it a boost. On the other hand he says that it may be better to get off it now and have it available for when it comes back. I guess you have to be off it for a while before you can take it again. My CA 125 was 11!!! This was my first recurrance that did not respond to Doxil. I am happy that we found something that worked!

    Congrats! Seatown!
    I meant to make a new subject with above post! But I do want to congratulate you on your good CA 125 was so good so quickly! Wishing you the best of luck! Hope you are NED in no time!
  • lulu1010
    lulu1010 Member Posts: 367
    #10
    lulu1010 said:

    Good News!

    I am getting what is supposed to be my last carbo treatment today. The Dr is thinking he may add a couple more to give it a boost. On the other hand he says that it may be better to get off it now and have it available for when it comes back. I guess you have to be off it for a while before you can take it again. My CA 125 was 11!!! This was my first recurrance that did not respond to Doxil. I am happy that we found something that worked!

    Congrats! Seatown!
    I meant to make a new subject with above post! But I do want to congratulate you on your good CA 125 was so good so quickly! Wishing you the best of luck! Hope you are NED in no time!
  • lulu1010
    lulu1010 Member Posts: 367
    #11
    lulu1010 said:

    Good News!

    I am getting what is supposed to be my last carbo treatment today. The Dr is thinking he may add a couple more to give it a boost. On the other hand he says that it may be better to get off it now and have it available for when it comes back. I guess you have to be off it for a while before you can take it again. My CA 125 was 11!!! This was my first recurrance that did not respond to Doxil. I am happy that we found something that worked!

    Good news!

    I am getting what could be my last carbo treatment. I get it in the hospital as I am allergic to it. We do a desentization and it works great. The Dr stated he would like to do a couple more to give it a boost. On the other hand, he says you have to wait several months before I can take it again. I may need it later so I should probably get off it now while I am good and be able to take it when I do need it. The jury is out till January when we will decide. My ca 125 was 11!!

  • JulieL
    JulieL Member Posts: 141
    #12
    lulu1010 said:

    Good News!

    I am getting what is supposed to be my last carbo treatment today. The Dr is thinking he may add a couple more to give it a boost. On the other hand he says that it may be better to get off it now and have it available for when it comes back. I guess you have to be off it for a while before you can take it again. My CA 125 was 11!!! This was my first recurrance that did not respond to Doxil. I am happy that we found something that worked!

    Good News

    That is such good news - so thrilled for you.   What a wonderful CA125 result to end one year and start a new one!

    Julie x

  • seatown
    seatown Member Posts: 261 Member
    #13
    JulieL said:

    Good News

    That is such good news - so thrilled for you.   What a wonderful CA125 result to end one year and start a new one!

    Julie x

    Thanks again!

    Thanks again, ladies, for your kind words.  I'm beside myself with anticipation for what my doc will say on New Year's Eve about this week's PET scan.  Happy, healthy, hairy new year to us all!  ♥ ♥ ♥

  • fadingsmile
    fadingsmile Member Posts: 7
    #14
    Great news!!

    I'm glad you broke the 100 mark! =)

     

    I am new to this... But I've only seen people with CA125's in their early thousands. My mother is at 19,765. Is this terrible or is it just a number?

  • seatown
    seatown Member Posts: 261 Member
    #15
    fadingsmile said:

    Great news!!

    I'm glad you broke the 100 mark! =)

     

    I am new to this... But I've only seen people with CA125's in their early thousands. My mother is at 19,765. Is this terrible or is it just a number?

    See what happens over time.

    Thanks for your message! 

    I'm relatively new to this too -- only diagnosed 5+ months ago. I was alarmed when my oncologist reported my CA 125 number was "only" 2,700+. He said then the important thing to remember was not the CA 125 number at the outset of treatment, but how it changes over time. I've been pleased that my number has gone steadily downward ever since. Also, I believe it's important to try not to obsess too much over the number, but to savor each day and concentrate on feeling as well as you can overall.

    Good luck to you and your mother, and Happy New Year!

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