Pain in the Hip?? Anyone??
Comments
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BEST post ever!!!Helen321 said:I'm late but I had the hip
I'm late but I had the hip pain surrounded by large pockets of gas so I had to give up speed walking. Now I do more low impact exercise or slower, shorter walks. Xeloda and Oxilaplatin were my two drugs when it started. Once I stopped doing high impact, the gas completely went away and the hip pain was tolerable. I'm thinking about taking up swimming in a heated pool. Still have pain often in fingers, one knee but I'm currently only doing Xeloda and that seems to make a large difference, just minor discomfort. I have arthritis so it all makes sense.
I read that one of the most important things about joint pain is swelling and keeping it down through diet. Hence the fish oil. I've yet to get it right but I'm still working on diet. You want anti swelling foods. There are lists online. Pretty much the American diet is a disastrous one that causes tons of swelling. Slowly but surely I'm eliminating junk food. I am a sugar addict. Hello my name is Helen and it's been 6 days since I haven't had sugar although if brownies count I'm screwed. Obviously I've got some work to do. I just found a place that makes wheat pizza with vegetables on top that is delicious and hopefully their sauce doesn't contain a lot of sugar. Little daily changes. Also the new diet mixed with rad is causing havoc on my digestion so I'm switching between Imodium and stool softeners to balance.
I did Zoloft and it worked wonders but I took it with a mood enhancer wellbutrin. The combo was a good one and didn't require high doses. I don't need those currently but I do have Adavan around in case I have an anxiety attack which tends to happen before tests. Ambien made me nuts, literally. You can do things like walk in your sleep, make food, drive your car, yell at the dog and stand at the top of the stairs in knee slapping laughter. I yelled at the dog (don't remember) and obviously guilty of some knee slapping (which unfortunately I remember -thank God my kids didn't think to grab the video. lol). So just make sure when you take it, someone is monitoring you so you know if you are doing any of these things. A few people on here put me on to melatonin, which is natural and no crazy antics. Worked better to me than the ambien. Doctors tend to give you prescription meds. when nature usually provides.
The thing that has really worked best for me at this point is getting my personality under control. Calmer driving (I've stopped yelling at others - almost completely - so the guy can't drive, why would I make that my stress, that's his stress. I say that outloud a lot while driving.) and I'm out on disability and a LOT calmer now. Didn't realize how high strung and stressed I was while working. I go back on the 20th, but I'm going back with a much more relaxed attitude about it. Two months off got my life back in perspective. At the end of the day, I'm just an employee and I don't own the business. I am not going to make or break my life over someone else's business venture, it's not like they're going to give me their money at the end of the day. And others are not going to get to **** to me about their work problems, get a grip, it's really not that serious. The 17 year old me wants the 42 year old me to remember how relaxed and fun I used to be. It's just a job, it's just a long line, it's just a guy who can't drive, who cares, go with the flow. I could care less about the angry people around me anymore (America is shockingly angry all the time - just sit and people watch and you'll see it in the supermarkets, in schools, in cars, pretty much everywhere.) I've been doing a lot of people watching and listening. I don't feed into it at all anymore. I only get to live once and this is my wake up call. My sleeping has really improved (and I do more of it) with basic personality fixes and relaxation techniques.
If NED is under your tree, please send him to me. I am finishing this round of treatment on the 13th and looking for him myself=)
Helen
You win the award for the BEST Post Ever!
I could just jump up and down and hug you right now.
thank you, thank you, thank you.
I really needed this today.
Joe0 -
Just read through the rest of this thread...joemetz said:Hip update
got a dreaded phone call today... doc says that the X-ray on the hip shows a little something that is hard to distinguish what it is, so an MRI is being ordered.
the doctor gave me the choice, as the radiologist stated that it shouldn't be a concern right now, but to watch it or if there is concern order and MRI.
I wanted to know rather than worry or think about it.
I hate this crap!
shoot, that's a lot going on, Joe. Hopefully whatever is showing up on the x-ray will be "just" arthritis (only in the world of cancer would that be a "just"). If it does turn out to be arthritis, you might try adding sour cherry juice to your diet if you aren't keen on the NSAIDs. I have rheumatoid arthritis now, possibly due to the chemo, and can't take anti-inflammatories, as they kill my digestive system, so am looking for some natural ways to treat the pain. Supposedly the cherry juice is supposed to work fairly well. Let us know how the MRI goes...we'll be thinking of you. Ann Alexandria
PS Some thoughts on meds...Ativan is a great sleep aid, and can be taken in the middle of the night if the first dose wears off and you wake up. No hangover effect at all. And if the anti-depressant doesn't help, you might ask your doc about a mood stabilizer, like Lamictal. These can be very helpful at sorting out those highs and lows. Personally, I'm all for better living through chemistry.0 -
Hey Joeannalexandria said:Just read through the rest of this thread...
shoot, that's a lot going on, Joe. Hopefully whatever is showing up on the x-ray will be "just" arthritis (only in the world of cancer would that be a "just"). If it does turn out to be arthritis, you might try adding sour cherry juice to your diet if you aren't keen on the NSAIDs. I have rheumatoid arthritis now, possibly due to the chemo, and can't take anti-inflammatories, as they kill my digestive system, so am looking for some natural ways to treat the pain. Supposedly the cherry juice is supposed to work fairly well. Let us know how the MRI goes...we'll be thinking of you. Ann Alexandria
PS Some thoughts on meds...Ativan is a great sleep aid, and can be taken in the middle of the night if the first dose wears off and you wake up. No hangover effect at all. And if the anti-depressant doesn't help, you might ask your doc about a mood stabilizer, like Lamictal. These can be very helpful at sorting out those highs and lows. Personally, I'm all for better living through chemistry.
Ask your wife to learn Reiki.....she then can relax to sleep every night
I had it done one time and wow that was relaxing.....the sky could have fallen.....and it wouldn't have phased me.
Ask Santa for any kind of relaxation gadgets.....
Do you like to read? Ask Santa for.....
A good book (to help "some" of us make some sense of the crap that we are, or have, or perhaps will have to go through) is named:
reWritten -- by Bruce and Heather Moore. It's an easy read.....and one that provides that ......AH HA moment.
Joan0 -
So sorry that you have thisjoemetz said:Hip update
got a dreaded phone call today... doc says that the X-ray on the hip shows a little something that is hard to distinguish what it is, so an MRI is being ordered.
the doctor gave me the choice, as the radiologist stated that it shouldn't be a concern right now, but to watch it or if there is concern order and MRI.
I wanted to know rather than worry or think about it.
I hate this crap!
So sorry that you have this bone issue to worry about. That's the thing about cancer....we fear that every problem is a result of the cancer spreading or progressing. There is just so much to worry about. An x ray is not the best way to see what's going on within the bones. It very likely could be arthritis or any number of problems. One of the reasons that doctors are hesitant to order tests is because they so often pick up on things (that cause stress for the patient and cause the need for further tests) that end up being nothing to worry about. They don't mess around with cancer patients though. Here in Ontario my husband gets tests done immediately for every little problem that develops. For patients (in Ontario) who have not been diagnosed with cancer, they wait months for ct scans, mri's etc. I'm getting a bit carried away on a tangent. It just saddens me that you have to worry about this during the holidays. Try not to stress out over it.
Take care,
Chelsea
PS. How has your hip been lately. Has the pain subsided?0 -
hip pain
Yea, I have hip and lower back pain -- but mine is from bone mets -- I have quite a few, on my spine and hip joints. Have had radiation for a couple. On chemo now. The pain is worse for about 3 days right after chemo so maybe there is an additive effect.
Bone met pain is very strange (at least mine is) - the pain is hard to describe, hard to pinpoint the location, and it's inconsistent. I'm usually OK in the morning. Pain sometimes in afternoon and definitely worse in evening.
I'm taking pain medication including morphine patch (low dose), Celebrex, Panadol (acetaminophen), Tramal, Lyrica -- but just as needed. And the Tramal and Lyrica only at night coz they make me drousy. I was very nervous and reluctant to start the morphine patch but actually have no side effects. So managing OK now. I may have more radiation later, for one spot on my L hip.
Would like to hear from anyone else with bone mets re how you are experiencing/managing the pain (excuse me 'highjacking' your post, Joe!)
And Joe -- I sure hope that's not what you have!! Fingers and toes crossed.0 -
A Good Book, J?janie1 said:Hey Joe
Ask your wife to learn Reiki.....she then can relax to sleep every night
I had it done one time and wow that was relaxing.....the sky could have fallen.....and it wouldn't have phased me.
Ask Santa for any kind of relaxation gadgets.....
Do you like to read? Ask Santa for.....
A good book (to help "some" of us make some sense of the crap that we are, or have, or perhaps will have to go through) is named:
reWritten -- by Bruce and Heather Moore. It's an easy read.....and one that provides that ......AH HA moment.
Joan
Buy mine:)
Oh wait, that was published in another land - Dream Land:)
LOL!
My shill is a combination of "Ah-Ha" & "Oh $hit" moments cover-to-cover.
C'mon, that was funny right there, I don't care who you are:)
Speaking of relaxation gadgets...good idea...I'm wrapped tighter than ****'s hat band...and you can't peel me off the ceiling, my claws are dug in so hard from gripping this year.
Just a day off from the madness would be relaxing enough.
I just had to reach over and pull your chain:)
Luv:)0
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