ITS BEEN A LONG TIME MY FRIENDS

pakb56
pakb56 Member Posts: 141
in Uterine/Endometrial Cancer #1
Sorry ihave not checked in for so long it has been quite a summer plus pc problems user id password issues. Starting in may when a ct scan after a car accident a ct scan showed to brain tumors had surgery to remove. In junei started to have problems, went to er admitted had second surgeryhadsecond surgery and a chemo wafer was placed on my brain. I also had10 weeks of wholebrain radiation. Bald and no sign of regrowth of hair. My most recent mri showed no changes from the month before which is good. I have to have anoanother in 3 months. I havent seen the gyn/oncsince IHave been in the hospital. Going to him beginning of december..now that scares me. All in all ifeel pretty good and hope to get back towork end of november. Twobrain surgeries in the exact same spots really took its toll on me. I have lost 60 pounds since my hyterectomy last nov30 33 in the last few months. En dealing with some nausea issues makingit hard to eat. That seems to be subsiding. Myson and i made it on our trip to vegas he planned when we foundout i had cancer. Hoping to stay well enough to plan another.
Hoping you are all doing well!
Take care
Pat xoxoxo

Comments

  • daisy366
    daisy366 Member Posts: 1,458 Member
    #2
    Pat
    Glad you checked in. Your story is amazing. I can't believe you want to even think of working. Have you considered applying for SS Disability? I got it quickly when I had first recurrence of UPSC. And others have too. Just a thought.

    You deserve the best news in December. Until then please try not to worry - it's just wasted energy and increases stress which we don't need.

    Go ahead and plan that trip with your son. Precious memories have no price tag.

    Hugs to you. Mary Ann
  • Fayard
    Fayard Member Posts: 438 Member
    #3
    You are a real
    You are a real inspiration!
    Yes, go ahead a plan the second, the third one and the more to come trips with your son and rest of the family and friends.

    You are in my prayers!
  • debrajo
    debrajo Member Posts: 1,095 Member
    #4
    Thank goodness you are
    Thank goodness you are back!! I've been looking for you since I knew you were going back for second ct. Sounds like you got it whipped this time! So glad you made it to Vegas and I know you will make it back again! I agree with Mary Ann...unless you really want to go back to work, take you ss disability and relax. Just think of all the new plans and trips your could take! Best, Debrajo
  • debrajo
    debrajo Member Posts: 1,095 Member
    #5
    Thank goodness you are
    Thank goodness you are back!! I've been looking for you since I knew you were going back for second ct. Sounds like you got it whipped this time! So glad you made it to Vegas and I know you will make it back again! I agree with Mary Ann...unless you really want to go back to work, take you ss disability and relax. Just think of all the new plans and trips your could take! Best, Debrajo
  • pakb56
    pakb56 Member Posts: 141
    #6
    daisy366 said:

    Pat
    Glad you checked in. Your story is amazing. I can't believe you want to even think of working. Have you considered applying for SS Disability? I got it quickly when I had first recurrence of UPSC. And others have too. Just a thought.

    You deserve the best news in December. Until then please try not to worry - it's just wasted energy and increases stress which we don't need.

    Go ahead and plan that trip with your son. Precious memories have no price tag.

    Hugs to you. Mary Ann

    thanks!
    Thanks for ur reples..the are appreciated
  • TAyers
    TAyers Member Posts: 86 Member
    #7
    daisy366 said:

    Pat
    Glad you checked in. Your story is amazing. I can't believe you want to even think of working. Have you considered applying for SS Disability? I got it quickly when I had first recurrence of UPSC. And others have too. Just a thought.

    You deserve the best news in December. Until then please try not to worry - it's just wasted energy and increases stress which we don't need.

    Go ahead and plan that trip with your son. Precious memories have no price tag.

    Hugs to you. Mary Ann

    social security
    Mary Ann,

    Im a newbie, and I have grade 3 stage 3c UPSC. Ive had 6 chemos and starting radiation soon. Do most people wait until a recurrence to apply for ss disability? I am only 45 years old.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #8
    TAyers said:

    social security
    Mary Ann,

    Im a newbie, and I have grade 3 stage 3c UPSC. Ive had 6 chemos and starting radiation soon. Do most people wait until a recurrence to apply for ss disability? I am only 45 years old.

    Tayers
    I applied for SS Disability in -April 09 after I was diagnosed in Jan 09. Due to my diagnosis of UPSC stage 3 -C,
    I was approved. They actually went back to 10/08 where I had my abnormal PAP that was highly suggestive of
    Adenocarcinoma. You have to be disabled for 6 months, so I got my first check in May 09.

    Two years after you are on disability you qualify for Medicare. Some people are given a determined amount of
    Disability but due to my age (60) at the time and diagnosis I was not given a time limit of disability. Therefore I
    Started on Medicare when I was 62.

    I went to a lawyer who specializes in SS disability who only charges if you are approved. Others have just gone
    To the Social Security office, and they have gotten approval. Good luck. In peace and caring.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #9
    Pat glad to hear from you
    I have been wondering how you have been doing. I am glad you have had positive results from the radiation. I have not heard of a chemo wafer that was placed on the brain. Did it just dissolve? You have been through so much. Glad you got to go to LV with your son. Hope you have many
    More trips with him.

    Enjoy each day. In peace and caring.
  • debrajo
    debrajo Member Posts: 1,095 Member
    #10
    Ro10 said:

    Tayers
    I applied for SS Disability in -April 09 after I was diagnosed in Jan 09. Due to my diagnosis of UPSC stage 3 -C,
    I was approved. They actually went back to 10/08 where I had my abnormal PAP that was highly suggestive of
    Adenocarcinoma. You have to be disabled for 6 months, so I got my first check in May 09.

    Two years after you are on disability you qualify for Medicare. Some people are given a determined amount of
    Disability but due to my age (60) at the time and diagnosis I was not given a time limit of disability. Therefore I
    Started on Medicare when I was 62.

    I went to a lawyer who specializes in SS disability who only charges if you are approved. Others have just gone
    To the Social Security office, and they have gotten approval. Good luck. In peace and caring.

    Ro, do you think I would be
    Ro, do you think I would be approved since I "only work at home" i.e. housewife. I was 57 at diagnosis and am about to turn 61 in Dec Thanks, debrajo
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #11
    debrajo said:

    Ro, do you think I would be
    Ro, do you think I would be approved since I "only work at home" i.e. housewife. I was 57 at diagnosis and am about to turn 61 in Dec Thanks, debrajo

    Debrajo
    Sorry I do not know the answer to your question. You could call your Social Security office and ask. If you would qualify for SS at 65, I would guess you could get disability, but like I said I do not know. If you get an answer please post it. Others may want to know the answer. Good luck.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #12
    TAyers said:

    social security
    Mary Ann,

    Im a newbie, and I have grade 3 stage 3c UPSC. Ive had 6 chemos and starting radiation soon. Do most people wait until a recurrence to apply for ss disability? I am only 45 years old.

    TAyers
    I'd apply now rather than wait till recurrence. In my application, I attached an research article about UPSC and poor prognosis. I don't know what they will consider. It's worth a shot though.

    Good luck. Mary Ann
  • Shell bug
    Shell bug Member Posts: 76
    #13
    Glad to see a post from you!
    Glad to see a post from you! I remember reading about your car accident and falling in your garage. I've thought of you often. Try not to be a stranger!

    Rachelle

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