Going home

VivianLee5689
VivianLee5689 Member Posts: 546
in Head and Neck Cancer #1
Today has been one of those very weird days. It started out with gagging and dry heaves at 5:00 am. At 9 we had a room full of doctors discussing our new treatment plan. They have decided to give David a nausea patch and then several other nausea medications. He still will have roxycet and they are increasing his Zoloft. They are giving him a high powered antibiotic and saying he will start chemo and radiation Monday. The doctor offered to get David a handicapped parking permit. I thought it a little strange but accepted. Then right before the doctor left he told David very seriously that he should not fall. He then said again it was important David not fall. It seemed weird. A couple hours later David got the nurse to look in his mouth and he is starting to get thrush. Long story short David is miserable, but we get to go home tonight. Maybe when we get there he will rest. I sure hope so because I am exhausted. Thanks for all the prayers and keep praying we don't have to come back before Monday.

Comments

  • luvofmylif
    luvofmylif Member Posts: 344
    #2
    Good luck at home and
    Good luck at home and praying you don't have to go back. I so hope things are improving for you guys. Get some rest and enjoy being at home...nothing like sleeping in your own bed. Please tell David that I hope he feels better and to hang in there. One day soon he will turn the corner and each day will have more good then bad. He just has to go through these dog days, although, he has certainly had more then his fair share.

    Joan
  • Pumakitty
    Pumakitty Member Posts: 652
    #3
    So sorry
    Vivian,

    I am so sorry you and David are going through this. I hope you have a calm and healing weekend. I hope Monday goes ok. Please let us know how things go.


    Kathy
  • Pumakitty
    Pumakitty Member Posts: 652
    #4
    So sorry
    Vivian,

    I am so sorry you and David are going through this. I hope you have a calm and healing weekend. I hope Monday goes ok. Please let us know how things go.


    Kathy
  • dales2loud
    dales2loud Member Posts: 45
    #5
    Hang in there!
    Sounds like you and David both are going through the ringer at once. I'm sorry this is happening to you and then treatments starting Monday, wow that's a load. I have had my bouts with Thrush and it is no fun, keep up with the mouth wash, we used pickleing salt, baking soda mixed with water. That will help but he may need meds too.

    My heart goes out to you both, I hope you get some rest and recovery.

    Prayers, love and luck to you!

    Dale
  • dales2loud
    dales2loud Member Posts: 45
    #6
    Hang in there!
    Sounds like you and David both are going through the ringer at once. I'm sorry this is happening to you and then treatments starting Monday, wow that's a load. I have had my bouts with Thrush and it is no fun, keep up with the mouth wash, we used pickleing salt, baking soda mixed with water. That will help but he may need meds too.

    My heart goes out to you both, I hope you get some rest and recovery.

    Prayers, love and luck to you!

    Dale
  • Billie67
    Billie67 Member Posts: 898
    #7
    dales2loud said:

    Hang in there!
    Sounds like you and David both are going through the ringer at once. I'm sorry this is happening to you and then treatments starting Monday, wow that's a load. I have had my bouts with Thrush and it is no fun, keep up with the mouth wash, we used pickleing salt, baking soda mixed with water. That will help but he may need meds too.

    My heart goes out to you both, I hope you get some rest and recovery.

    Prayers, love and luck to you!

    Dale

    No place like home
    I remember after a few days in the hospital feeling terrible and just not able to get comfortable. I was almost afraid to go home for fear that I'd only have to turn around and go back. However, first thing when I got home I showered, put my pjs on and was able to get comfortable for the first time in days! I had a hard time sleeping but it was still better being home!
    I'm praying the transition will be smooth and David will be feeling better soon.
    Keep us posted and get some rest!
    Billie
  • phrannie51
    phrannie51 Member Posts: 4,716
    #8
    Hoo rah for going home...
    Boo on the thrush!! The only thing that worked for me was Dulfican, and it works quick for thrush.

    I'm thinking that they don't want to him to hit his head because of his platlet count...I went the last 3 months of treatment with orders to not do things that risked hitting my head...horseback riding, etc were out (like I was going to that anyway)...But I did find out that my puppy had the ability to pull me off my feet if I was on a hill, so started being very careful with that. They also told me not to play with sharp objects.

    I'm so excited that he gets to go home!! Like Billie said, it's much more comfortable there, than laying around in the hospital.

    Sending prayers and positive thoughts that treatment will be kinder to him than to many...he derserves a break.

    p
  • hwt
    hwt Member Posts: 2,328 Member
    #9
    phrannie51 said:

    Hoo rah for going home...
    Boo on the thrush!! The only thing that worked for me was Dulfican, and it works quick for thrush.

    I'm thinking that they don't want to him to hit his head because of his platlet count...I went the last 3 months of treatment with orders to not do things that risked hitting my head...horseback riding, etc were out (like I was going to that anyway)...But I did find out that my puppy had the ability to pull me off my feet if I was on a hill, so started being very careful with that. They also told me not to play with sharp objects.

    I'm so excited that he gets to go home!! Like Billie said, it's much more comfortable there, than laying around in the hospital.

    Sending prayers and positive thoughts that treatment will be kinder to him than to many...he derserves a break.

    p

    Just a thought
    The scare of falling could come from all the meds. I woke one night to use the bathroom and my husband asked if I needed help, I said no. Well I lost my balance, fell and broke my ankle. David has been thru a heck of allot and is likely very weak. If you don't have a walker, you might want to consider borrowing one just for safety's sake.

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